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Posted 11/14/2008 6:19 PM (GMT 0)
Hi,

I read in another post someone say something about Asacol and fatigue. I'm exhausted most of the time. Could it be the Asacol? I'm kinda in remission, but every time I think about dropping my dose I have a minorly bad day and think twice. I feel pretty good, though, so maybe it's not the DD.

 

I looked up Asacol side effects and fatigue wasn't listed. Any insight? I'm getting ready to start a full-time job instead of my cushy part-time one. I don't know how I'll manage, though.

Posted 11/14/2008 8:07 PM (GMT 0)
I think it's worth a try, but the way to decrease/taper is one pill a week.

So, that way, you'll find the amount that agrees with you.

Starting a new job is stressful....that could be part of the problem....but DO stay on the Canasa at least nightly till you're a bit more settled in your job.

q
Posted 11/14/2008 8:11 PM (GMT 0)
I don't think it's the asacol that causes fatigue - I think more it's just this disease. When I was in the worst part of my flare I couldn't sleep enough. I was proud if I got a sink of dishes washed. Now that my uc is better, not in remission, but better, I do get tired easier and I sleep like a rock at night. Bright side for me, because I feel there is always a bright side to every bad situation in life, is before UC I never slept!

Gigi1227
Posted 11/14/2008 9:45 PM (GMT 0)
When I was taking Asacol, over a two year period, I went from being moderately active to not even being able to keep my eyes open during my lunch break. When I stopped the Asacol, for a couple of weeks I felt like the fog had been lifted from my mind/body. But soon enough, a full blown flare appeared, so I wasn't able to enjoy the new found energy I had. Now I'm on Lialda, and the same thing is starting to happen, which leads me to believe I have a slight intolerance to 5-ASAs.

Your tiredness could be the UC, or it could be the Asacol. If you want to try life without Asacol, do a slow taper, and keep your doctor informed about what you are doing. If you go into a flare after going off the Asacol, you'll want to have a back-up plan in place and ready to go quickly, especially if you are starting a new job.

Good luck, and I hope you find something that works for you.
Posted 11/15/2008 1:15 AM (GMT 0)
Thanks for your responses. I'm not flaring right now. So, I'm thinking that maybe it is the Asacol. I'm gonna follow quincy's advice and do a slow taper, 1/wk. If I start flairing, I'll go back up. I don't wanna tell my doc, though. I don't think she'll approve. It took 3 years to find her and meds that work! I gotta do something, though. I'm so tired all the time. My 81 y/o mother in law has more energy than me!

Posted 11/15/2008 11:54 PM (GMT 0)
I did a rather quick taper off Asacol. Went from 9 a day one week (going down by one pill every couple of days) to 6 a day the next week to 4 a day the next week. Then I told my doc and he told me to slow down. I was tapering with out his knowledge at first. I still ended up in a flare...I guess I was in remission while taking the Asacol. I sure was exhausted all the time, but my bm habits were pretty regular.

If your doctor is concerned about your well being, she won't mind your going off the Asacol. She might not recommend it, but at least you'll keep her informed. Some people can maintain remission without meds.
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