Worried about side effects of taking Remicade

My daughter is suppose to start remicaide next week. I have read about all of the side effects and am very worried about this. Any suggestions?

I've been on Remi for over three years with no side effects and am in total remission. I was so very sick when I started my treatments and I'm now back to living life again.

I've been on it for nearly three years with total remission and a normal c-scope, no side effects. Hopefully it will be successful for your daughter.

I think the side-effects are rare -- mostly people posting to the board are reporting either success (mostly) or failure with no adverse effects. When my GI heard from me that I was active on the UC sites, he warned me that people NOT doing well tend to post more than people who do well, so to try not to get too alarmed at a lot of negative posts. Well, if this is true, Remicade must be quite safe as hardly anyone seems to be posting negative effects. Of course, I think the longest anyone can have been on it, barring clinical trials, is just a few years.

I've been receiving infusions since July 2007 and it was only was I was able to get off the Prednisone. It took me a very long time to achieve remission, however, I was seing enough of an improvement that we kept at it. This past October my colonoscopy showed I was just about healed, only a final few centimeters were moderately ulcerated and Rowesa and Canasa seem to have set that right. Except for a few rough mornings now and then I seem to have achieved a good remission.

Your daughter will be closely monitored for ALL infusions, not just the first three. After more than a year my BP and temp are taken before infusion and every 30 minutes and I am checked on frequently. Nurses never leave the room.

Make sure you bring along plenty of quiet activities for her to do, she'll be confined to a comfy easy chair for several hours.

Meesh