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Is there anyone besides me that refuses to go on Pred?

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Posted 2/18/2009 6:06 PM (GMT 0)

Buckeyeinfl said...

I'm not trying to scare anyone, but to raise awareness. If you have painful joints, clicking or popping sound, PLEASE have the joint MRI'd because ON will not show up on x-ray in the early stages and bone scans often do not pick up all areas of ON...and early treatment is key to preserving your natural joint.

I forgot about this. When I was tapering off Prednisone, my joints popped like crazy and the joints in my hands hurt. Thank goodness I was only on Prednisone for three months at a maximum dosage of 40mgs.
Posted 2/19/2009 1:30 PM (GMT 0)
well- i usually 'refuse' to go on it until the 11th hour-- ie/ can't stand my symptoms anymore!....last year, i refused to go from 30mg to 40mg and it cost me the quality remaining 6 mos of my mat leave w/ my son and about 40 lbs (ok- that part wasn't so bad- except that i had no energy for anything)...w/i one week of going up to 40, my symptoms were gone-- my energy was back (as was my big butt- but what are yougoing to do?)
Posted 2/19/2009 1:47 PM (GMT 0)
Mommy pooh,

Did the 6MP end your flare? I am asking because I do not want to take prednisone again and I am using entocort as well. I still have blood though.
Posted 2/19/2009 3:07 PM (GMT 0)

Well, once again - looks like we are all different in how we respond to prednisone as well as other medication. 

I am on second week which is 30 mg. - two more days to go - then down to 20.  I am so thrilled with the way I feel.  NO insomnia, arthritis in my bad knees feels so food and other joints.  Nothing really except a couple cramps in my toes which could be related.  NO BLOOD, NO bad cramps or urgency (actually sitting here "holding" it to finish LOL).  2 or 3 bms mornings and then wonderful day.  I sure hope it can continue.  BUT - especially notable for me is NO weight gain - in fact lost 3 lbs. so far on it.  I am obese so that is good news. (I even ate a banana yesterday which did not agree with me before.)

Now - I know I can't stay on it forever at this doseage especially.  I am also interested in 6MP or Remicade or other mainteance besided mesalamine which I can't tolerate.  I am to call doc when down a couple days on 20 mg.  Crossing my fingers!!

ElaineNY

Posted 2/19/2009 4:44 PM (GMT 0)
I'm not sure if 6MP or switching to Lialda ended my flare but yes, I have been in full remission since the 6MP kicked in which took 3 months. However, I am now in the process of getting an appointment at a research hospital for a condition called porphyria. I'm afraid the 6MP has triggered this condition. I have another thread about 6MP being damaging to other organs and will update when I find out if the 6MP is now causing problems for me. A lot of people on here have great luck with it and there are also a lot of people on here that have had to stop 6MP due to it causing other probelms. Try to search some old threads about verious problems people have had on 6MP.
Posted 2/19/2009 4:53 PM (GMT 0)
Thanks so much responding Mommy pooh.You are giving me lots of hope right now. I am having a problem with blood. Maybe it is bloody diarrhea, but not all stools are bloody. I am in the 7th or 8th week of Entocort. I hope I will be put on 6mp so this stubborn flair will go away.

BTW, can you tell me the symptoms you were having before you were put on 6mp? Blood, pain? What exactly?
Posted 2/20/2009 6:41 AM (GMT 0)

Mommy pooh said...
I'm not sure if 6MP or switching to Lialda ended my flare but yes, I have been in full remission since the 6MP kicked in which took 3 months.

I find this very strange. I've read quite a few posts that say 6MP takes time to kick in. The reason I find this strange is that my first flare lasted six months. It went away on its own without medication. So my question is this: How can one tell that it was the 6MP that helped the flare and not just that the flare went away on its own? Is it because you were flaring for many years, and the flaring stopped only after you started taking 6MP?
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