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Posted 3/21/2009 1:58 PM (GMT 0)
confused  

I am in my third flare of UC.  My blood tests indicate UC, my biopsies indicate uc, and my drs have always said after my colonoscopies that it appears to be UC.  The disease is evident but not active in the ENTIRE colon, and I have been in this flare for 2 years.  I am currently on 8 pentasa and 1 canasa supp a day. 

However, I had a small bowel series and the report said possible nodule/lymphoma in the illeus.  My dr said probably not, but now he has 3 options for diagnosis:

UC and Crohns cross over

Crohns

or UC with lymphoma in the small bowel.

I have to go back in 1 month for new blood work and another small bowel series and 3 months for a colonoscopy.

Has anyone ever had UC that effected more than the colon, or had this much trouble being diagnosed?

FOr almost 8 years I have been told I have UC.

Other symptoms:

severe fatigue, painful joints, severe left sided pain up under the rib cage.  A feeling of twisiting in intestines, and I think from straining and constant diarehea I am getting a hernia.  I feel like I have gone through labor just to have a bm sometimes.  In fact I always get the hiccups when I have a BM, I guess too much pressure on my diaphram?  

Posted 3/22/2009 1:39 AM (GMT 0)
ANYBODY want to comment...i am almost freaking out. The test says cancer!
Has anyones disease progressed this way?
Posted 3/22/2009 2:18 AM (GMT 0)
Sorry to hear about the scary diagnosis. I've never heard of anything like that so I can't be of too much help. I am sure it is just UC. I have all of the same symptoms that you describe except the hiccups. Try not to stress. I know that is easy to say and much harder to do. I hope you can get some rest. Whatever is going on, it is just going to be worsened with all of the stress. Stay positive.
Posted 3/22/2009 2:45 AM (GMT 0)
I am totally new to UC and I am far from being a doctor but here are my thoughts and I hope it helps...
My specialist told me that we have around 5% more chance than non-UC people to develop colon or digestive system related cancer and he also reassured me that 5% is not that big... We have the same chances to get any other type pf cancer as the other humans, from what I understood, so I guess lymphoma is included in that category. I know that UC is often caused... or causes your white blood cells to go a little crazy and lymphoma is related to white blood cells and the immune system ( from what I can remember from my pathology classes). So my opinion is that maybe your tests show high white blood cells counts and auto-immune activity, even maybe bigger ganglions somewhere but remember that those results and symptoms are not always related to cancer, it might just be you body's way to deal with UC and infections! Try to stay positive, I believe our bodies are definitely influences bu our emotions and thoughts, so much stress before knowing for sure whats going on is not good for your flare and you'll feel even weaker and worry even more. Its a sad vicious cycle that I know darn too well! Your symptoms are the same as mine and I have UC.
Hang in there xoxox get a lot of rest and also go outside! It really helps a bad mood to be outside, well it works for me :)
xoxox
Posted 3/22/2009 1:48 PM (GMT 0)
thanks for the encouragement....
I am a need to know kiinda person, so not knowing is what really stresses me.
I will let you know as I have my follow ups. I wish my doctor would have never said lymphoma. He could have said it showed something abnormal, and my mind would have never gone to cancer! It is bad enough to deal with autoimmune, I am too exhausted to deal with cancer.
Thankfully, I have a super busy life with kids, a business, a husband, and full time school. I don't have too much time to worry. :)
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