aned said...
I think it is crazy that this disease is so hard to manage. For the last few years, I think I must be in some kind of constant flare. I do have periods of feeling much better, but the never last more than a few weeks at the long end. For me it is much more a day by day thing. So far, no medication seems to make any real difference. If I stay on Asacol or Colazal I seem to have a few less severe episodes, but I have to balance that with unremitting side effects from those drugs like dizziness, ringing in the ears, etc. I guess I am just having one of those days where I really wonder if I will ever just be able to take for granted that I will feel okay tomorrow. I am tired of not being able to plan my life because I never know how I might feel. Thanks for all the info. and letting me vent.
I completely understand. I feel the same way, except Asacol didn't seem to make any difference at all for me.