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First Remicade treatment & already in Remission!

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Ulcerative Colitis
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Posted 7/1/2009 1:11 PM (GMT 0)
 wanted to take a moment to say how excited I am about my first Remicade treatment! I was very scared about starting it... not because of the actual IV procedure but because I was afraid it won't last long for me and would give me either no remission or not very long. I did my 1st infusion last week and the next day I had normal poop and what seemed to me to be alot more energy. I could actually leave the house which I have not been able to do!! I was using the bathroom more than 30 times a day which made me really depressed because I couldn't even go to the grocery store without the fear of or without having accidents. My marriage seemed to suffer because my husband is very active and I was house-bound. I am only 1 week into it and have my next treatment next week. I am excited about being able to enjoy a long 4th of July weekend with my husband on our boat - which I haven't been able to do for obvious potty reasons. I am hopeful that this will continue to work for me and want those who are considering this treatment option to talk to your doctor about it. I am very glad that I did. I have my 30th birthday coming up next month and I for the moment I feel like I am getting my life back!! I know this is very early but if even for the moment, I am so thankful.

  yeah

Posted 7/1/2009 1:31 PM (GMT 0)
That's wonderful!! Enjoy the time on your boat - how fun!
Posted 7/1/2009 1:53 PM (GMT 0)
Wow, good for you!
Posted 7/1/2009 2:03 PM (GMT 0)
Great news, and make the most of getting into remission!
Posted 7/1/2009 3:00 PM (GMT 0)
Great news Shortstuff! I too was in the same "boat" as you; and the next day after my first infusion I felt the same way; more energy and formed bms...and no blood. And it's been that way since. Fingers crossed for you; have fun this weekend, and keep us updated on how you are doing. :-)
Posted 7/1/2009 4:33 PM (GMT 0)
Great!!
Posted 7/1/2009 5:57 PM (GMT 0)
Good for you!  My third treatment is in a couple of weeks, and it really does seem to be helping a great deal for me as well.  Yay!
Posted 7/2/2009 2:42 PM (GMT 0)

Awesome!! I had my first Remi infusion on 6/23.  I got great results, not quiet into remission but in the right direction.  I too have alot more energy!  I have no bleeding, but a little D, only about 2 x daily.  A huge difference.  I can tell it's working.  Can't wait for the next loading dose and see what response I'll have after that.  Enjoy the boat during the holiday weekend.  We are so thankful for the meds coming out. The scientists are working hard for us....so many people afflicated with this disease. 

Hopeful4UC

Posted 7/2/2009 3:39 PM (GMT 0)
Hooray for shortstuff! I had my first remicade infusion 6/22 and although I didn't have a great reaction like you, it does seem to be helping a little. I have high hopes for the second dose this monday. Have a great fourth of July!!
Posted 7/2/2009 4:22 PM (GMT 0)
Its a big relief when something finally suits our body....wish u all the luck! Happy for you :-)
Posted 7/2/2009 4:23 PM (GMT 0)
Sweet!
Posted 7/2/2009 5:17 PM (GMT 0)
It looks like AmyWaffle, Hopeful4uc & librarychick, we all look to be starting about the same time... keep us all posted on how your treatments go... it may be the encouragement someone needs to make the choice to start the infusions. I am sooooo thankful to have this forum ~ It's the posts that I read daily that make me strong enough to fight this disease and to not let it overcome me :)
Posted 7/2/2009 7:27 PM (GMT 0)
The same thing happened to me! Enjoy the good health!
Posted 7/3/2009 12:43 AM (GMT 0)

Hey Shortstuff, you can include me in the group of first time Remicader’s. I got my first infusion on 06/23.  I think I have improved a little but nowhere near remission. I am hoping the second infusion on Tuesday the 7th will do the trick. Let’s keep the faith.

Posted 7/4/2009 8:13 PM (GMT 0)
I've had three infusions, and it put me in remission immediately. What a tremendous relief! I'm so glad to hear it's working for others. My doc has had people using it successfully for about 10 years.

I'm juggling a lot right now but can still sit back and think, wow, life is so much easier now.
Posted 7/8/2009 12:54 AM (GMT 0)
Yayyyyy! So glad that we have great success stories to share! I would be guessing that diaper man is getting some zzzz's today which is well needed :)... I hope you are feeling even better tomorrow. I go back tomorrow for my 2nd infusion and I am so excited!!! I feel like such a goofball and my family thinks I'm nuts because I am actually looking forward to it! I had such a great long weekend on the boat and ate whatever I wanted (within reason, of course) and still feel great. I don't think I could express how excited I am with any more exclamation points - LOL

I'm so thankful for having you all here... what a nice group who truly understands.
Posted 7/8/2009 1:28 PM (GMT 0)
Hey shortstuff -- I too look forward to my infusions as it gives me some good energy the next day! I have one today and I can actually say this is the first time in a long time that I'm feeling as if I really need it. I'm zapped of energy this time around. My boss was very nice yesterday; I told him Wed. is my infusion day and he said, "Great! You'll be getting the energy juice!" And then he wanted to know all about it. So, have a good infusion tomorrow!
Posted 7/8/2009 2:10 PM (GMT 0)
I'm over three years into it, and still doing great. I recently had major surgery without a blip. I hope all of you have results as good as I've had.

Like, Carol, I look forward to my infusions. It's a day of relaxation followed by increased energy!
Posted 7/8/2009 7:46 PM (GMT 0)
Just got back from the GI today.  He wants to start me on Remicade.  I have to get off the prednisone.  I am a little scared of it but after reading all the posts I feel better.  I am leaving for vacation next week so I won't start until the following week.  I hope it works. 

Posted 7/8/2009 8:56 PM (GMT 0)
Hi Boxermom2!

I just got back from my 2nd infusion and wanted to share with you what to expect. The whole process lasts just over 2 hours and you are so CLOSELY monitored. They give you Tylenol and Benedryl. The Benedryl makes you sleepy and helps you to relax. The Tylenol keeps you from having any pain. I can relate to you being on pred and all the nasty side effects that go along with it. I think the rest of us who replied to my first posting feel good about making the decision to start the infusions. Enjoy your vacation and let us know how you feel after your first dose!! Safe travels!! smilewinkgrin

 

Posted 7/9/2009 12:56 AM (GMT 0)
Thanks Shorstuff. I did get some good zzzz's during my second infusion. I really needed to catch up. I didn't realize the energy boost you get after the infusion. Lets hope the infusions start working soon.
Posted 7/9/2009 3:46 AM (GMT 0)
Yeah, that boost is awesome isn't it?! Today I had my infusion and all the pain went away, had one big bm and I'm good to go. I feel so much better!
Posted 7/9/2009 4:40 PM (GMT 0)
That's great for you, I hope it sticks!
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