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No prednisone side effects?

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Posted 9/7/2009 2:56 AM (GMT 0)
Hi, I was wondering how many people here have had few if any side effects when on prednisone? Do most people have the moon face, acne, shaking, and hairloss that comes with it? I haven't really had anything (so far).... not even the increased hunger and ive been on it for a 3 week period at 60mg and tapered off. As soon as that ended, I started right back on the 40 mg  because my symptoms came back.
Posted 9/7/2009 3:10 AM (GMT 0)
I've only ever gotten tiny little acne spots on a small portion of my back when on pred and that was on 40mg for 2 weeks before tapering so no biggie for me whenever I had to go on it, unfortunately it no longer has any affect in aiding with my symptoms now.

:)
Posted 9/7/2009 3:30 AM (GMT 0)
Pred stays in your system for a bit so it likely wouldn't really ware off by night-time, I think that this DD has a mind of it's own for the most part and that right now night time just isn't a good time for you disease wise, remember, this stupid disease is famous for playing with us, and that includes on emotional/mental levels as well...you really can't win, you just have to keep trying is all, otherwise the disease will chew you up and spit you out, it's nasty that way.


:)
Posted 9/7/2009 7:57 PM (GMT 0)
I have unfortunately found that when I didn't get the side effects from pred., well, those were the times that it wasn't working on me! I am on 40 now, ans feeling pretty wired. I have no visible side effects, just trying to manage the "swimmy head" feeling and jitters. I have been taking a 5mg of ambien to sleep... so far so good there. Also, I am starting to get HUNGRY... and also having very specific menu cravings. All part of this great game, right? So, hang in....and feel better soon.
Posted 9/8/2009 12:40 AM (GMT 0)
The first time I ever took pred the only side effect I had was feeling a little hyped up for the first week when I was on 40mg. The second time I took pred was a WHOLE different story...
Posted 9/8/2009 1:58 AM (GMT 0)
I didn't notice any side affects first few rounds I had to go on it. Of course, I didn't stay on it long and quick tapered off it like a retard.
Posted 9/8/2009 3:40 PM (GMT 0)
I was on it for about three months with very little side effects, no hair loss or growth, no skin problems, no bruising...I had some water retention which caused a slight weight gain and some swelling, I also had some insomnia but not horrible...my mom has been on and off of it for YEARS with asthma and never has any side effects at all...
Posted 9/8/2009 3:50 PM (GMT 0)
I was on varying doses of pred for 2.5 years. I had minimal side effects; ocassional insomnia and ocassional anxiety. However, it wasn't until I completely tapered off that I suffered the worst of side effects; joint pain. It lasted about a year post taper. I will never take pred again, not even for short durations.

Sue
Posted 9/8/2009 4:12 PM (GMT 0)

I was the same as suebear - little side effects - felt good on prednisone.  HOWEVER - now off a few weeks and the joint pain is terrible.  I would go back on it but only if I did not have to come completely off and get the joint pains back.  Now sure yet which is worse.  Wondering how long the pain will last!

ElaineNY

Posted 9/8/2009 4:59 PM (GMT 0)
I was on prednisone for three months. The highest dosage was 40mgs. The average dosage was 25mgs. I got the moon face, which did not bother me. But my massage teacher would lecture about the dangers of taking steroids whenever he saw me; so I guess it was very noticeable. I also got terrible leg cramps. The muscles in my legs would twist in yoga class, and the muscle would end up hurting for a couple of weeks after that. Those were the short-term side effects I noticed. The other side effect I got was aging of the connective tissue. This side effect is harder to notice. My teeth became sensitive to cold beverages, my eye pressure reading has risen, and a got a couple of wrinkles. These are all external signs that the connective tissue has aged.

I also got side effects from tapering off the medicine too quickly. Again, they were connective tissue related. My joints would crack and the joints in my hands hurt.
Posted 9/8/2009 6:32 PM (GMT 0)
I promised myself that I would post about my experience with Prednisone when I was placed on the medication after being diagnosed with UC. I read plenty of horror stories about the side-effects of Prednisone and steriods, which caused me additional anxiety while dealing with being diagnosed with a chronic illness. I just wanted to share my experience with Prednisone to let other Prednisone Neophytes know that there are plenty of risks and downsides to taking Prednisone, but they don't always occur.

I was on Prednisone starting at 40mg per day for 10 days, decreasing 10mg after each 10 day cycle. All told, I ended up on Prednisone for over 40 days due to a slight flare up as I stepped down to 20mg.

When I first started taking Prednisone I did get an increased appetite and found that I was slightly jittery. It was tough to sleep, however I found that I was able to wake up very easily in the morning and get going. I didn't gain any weight or experience the "Moon Face" that may sometimes occur. All in all, my experience was very positive with Prednisone. I saw my UC symptoms fade during the first week (while also taking the maximum daily dosage of Lialda) and felt better very quickly.

I just wanted to share my experience and offer that even though there are plenty of things to worry about with Prednisone, it's possible to have a good experience with the medicine. If I can offer my experience to those recently diagnosed with UC, there is enough to worry about and think about that worrying about Prednisone doesn't necessarily have to be one of the main concerns.
Posted 9/8/2009 8:02 PM (GMT 0)

One thing that has become obviouos is the time frame and amount of time tapering, etc.  I was fine for first month or so - about same side effects - slight insomnia - lots of energy, skin was nice and arthritis wonderful.  UC bleeding stopped first week and left sided pain.  I believe my problems now are because I had to stay on the prednisone for nearly 6 months - going back up twice to stop bleeding, etc. from UC.  I would do it again. 

ElaineNY

Posted 9/8/2009 8:08 PM (GMT 0)

I don't have (noticable) side effects from Prednisone.  I am hungry but it's manageable and the weight gain is never anything more than a few pounds.  I did have the moon face the first time I was on it but I was on it for 3-4 months instead of 2 weeks and then a one month taper. 

Don't worry - not everyone reacts to drugs the same.  Hopefully you can continue side effect free and start feeling better.  :)

Posted 9/9/2009 2:26 AM (GMT 0)
Hello.. For me, the side effects didn't really start until after I was on it and had been tapering for a few weeks.. I was at 50mg at the highest dose, and was jamming around so much because of the hyperness, that I didn't even notice any side effects really. It wasn't until I started tapering once I got my bleeding to stop that I started noticing the moonface, hunchback, acne, and weight gain..  Sometimes I would feel really weak in the legs and shaky.. like I could just collapse, but that didn't happen that often. Other than those side effects it wasn't too bad... LOL.. OH.. and the appetite.. I wanted to eat EVERYTHING....

  ANyhow, just had to go back up to 20mg today.. had slight bleeding this am, so went to 20mg for 10 days then back down to 15 and will try again.. I don't wanna have to try Imuran or 6mp... those drugs scare the heck out of me... ( so did pred)...

 

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