Shadam,
Those dark nights of the soul (and I am using this a metaphorical sense for illness, not in the religious context) are not uncommon for those who have suffered tremously. I think this phase is of most concern to me: "lie in bed at night hoping not to wake up the next day." I know you just want the pain to stop and it seems impossible sometimes. But I think you do have hope. And hope is a mighty powerful thing. I want you to keep that hope alive. I want you to keep plugging away even though the future seems dark. Because you do have options and you do really have some hope for the future. It may seem slim, but I want you to hold on to it.
There seems to be some kind of dog on getting psych help with chronic illness. Well frankly very few people really have the support system in place in order to deal with severe chronic illness. I think psych (in addition to medical) helps when you are at such a level of pain that one is wishing to die. This tells me that person's disease is pretty severe and not just an "incovenience" to them. It can be an utterly life changing event. One can lose not just their job, but their ablility to work at all. This disease can just absolutely effect the level of functionality that a person has. From relationship ending to career ending, severe disease can effect your entire well being and therefore your family's well being.
I hope you understand that I think chronic illness psych might help, because they are your advocates (especially those who have gone thru severe chronic illness themselves). They can help you deal with the vernerablity that comes with being incrediblely ill and without the support that is needed. I think of psychs are as much a preventive as dental floss and as protective as body armor, there is a great range so it might take time to figure out what works for you. There are also different techniques to help you deal with the pain. I worry when people say what you said, because so many of them can be helped thru this, and sometimes it is just having a compassionate ear helps so much.
Hugs,
Navy