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Ulcerative Colitis
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Posted 12/23/2009 4:56 PM (GMT 0)
The past few days I have noticed some changes in my condition and once again, I have been thinking positive and hoping for the best even though I thought *maybe* it was going to get worse.

The first thing I noticed was hairloss. I am starting to wonder if losing hair is due to a flare more than it is due to the meds? Next, bloating followed by reduced appetite. about a day later I had bad D two times. It wasn't constant D, just bad D on 2 different occassions. I wasn't going frequently and my stools were firm, no blood. about a day later, I saw a drop of blood. That was yesterday. Fast forward to today, I have already been in the bathroom 4x and it has been loose. I also have my period which is making things worse. The BMs are always preceeded by cramping and one time I went to the toilet and nothing was there except a bit of mucus - sorry for the pretty picture.

Things are defintely getting worse. What do I do? Should I call my doctor?? should I try doubling my rectal meds? Should I increase my meds? should I take it easy? Is it possible that my period is making this happen?

I am worried. It is crazy that I could go from being healthy 3 or 4 days ago to BAD today. I am scared to leave the house but I really want to go out. I am going. I hope I don't crap my pants.

Maybe I need to change my name back to SicklyGirl.

Hope everyone has a great day.

Posted 12/23/2009 5:11 PM (GMT 0)
Hey NSSG...

I definately think your period can make things worse... But how much worse for you is normal? If this is beyond the normal as far as symptoms go for you during your period, I'd give your GI a call and ask for his advice.. I'm not one to suggest upping your meds because I'm no doctor and wouldn't want to suggest something that might not be good to do.. Until you get a hold of your GI though, I would increase my water intake and definately take it easy!! I have a stepdaughter and she doesn't even have U/C but EVERYTIME she get's her period, it's a major deal.. lots of D and cramping, feeling just plain ol' SICK... So I can imagine how it's worse for someone with U/C... I don' have periods anymore due to hysterectomy at 31 years old... probably a good thing now that I have U/C and don't have to deal with that every month.. just the hormone part still as I was left with one ovary.. (PMS stuff... eek)

I sure hope you feel better soon...
Posted 12/23/2009 6:59 PM (GMT 0)
I know what you mean.  A lot of the symptoms could be due to my period and hormones but I am not sure. I know it is definitely partly due to the UC but I wonder if it will calm down after my period ends. I don't know if I should call my Gi and bother her if it's possible that a lot of my symptoms are from hormones. The bloat could definitely be caused by my period but I have been going more than normal and I had bad D with cramping 2 times. I saw some blood which could have looked worse than it was because of my period... I don't know whether this is going to get worse or if it may get better when my hormones level out. I am not hopeful because I think it is mostly UC unfortunately mad

I am happy to report I made it through morning errands without any issues. I haven't eaten anything today because I am scared it will put me in the bathroom.

Posted 12/23/2009 7:11 PM (GMT 0)
It seems you've been up and down for the past while....and a period can definitely exacerbate things.

What meds are you on at this time...9 asacol and one canasa nightly?
Do you sometimes forget the mid day med dosage?

The anemia would definitely add to the hairloss..

You should make sure you eat during the day. you need your energy!

How about trying fibre supplements as well?

ARe you on any other supplements such as vitamins/minerals?

quincy
Posted 12/23/2009 7:17 PM (GMT 0)
I take a ton of supplements and vitamins. I've been consistent with my midday dose, never miss it at all. I just had more cramping & you know what follows... I am going to go to whole foods and get a bunch of probiotic tea. Maybe that will help. I am increasing Canasa  to morning and night. I hope it helps nip this. Now I am stressed and it's only going to make things worse.
Posted 12/23/2009 7:21 PM (GMT 0)
I think it's time, however, to call the doc and ask for Rowasa.

I can relate to the frustration of flares.

I've never heard of probiotic tea....what kind do you use?

ARe you still using probiotics anyway?

The twice a day Canasa will help...but the enemas will be better.


Hope you feel better soon.

quincy
Posted 12/23/2009 7:25 PM (GMT 0)
I haven't taken anything today because I don't feel so great but I think I am going to take one in a few minutes.

I drink this tea called Synergy Kombucha tea. It's kind of bitter but I've grown to like it and it's very good for you. it is fermented.

I am so thankful to have this board with other people who understand the frustration. It's unfortunate that I have to feel bad during the holidays. Same situation last year except that flare was going a lot stronger for a lot longer.

Posted 12/23/2009 7:29 PM (GMT 0)
Christmas is usually a bad time for me too, but I think in part it's because I'm usually sick with colds before the season begins and then during the season. Double whammy.

This year is probably the first time I've not been sick, and my butt is following suit. It's not over yet, I'm hoping it continues into the new year.

Please consider the enemas...you do need a long break.

Hope the tea helps you....I've never tried it.

quincy
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