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anyone have ulcerative colitis for 15+ years with no surgeries? normal BM?

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Ulcerative Colitis
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Posted 1/10/2010 4:37 AM (GMT 0)
When you go in remission is it like you have normal formed stools like before you were even diagnosed.  I have had UC for many years.  I havn't been in remission as far as I know but mine is well managed and i have one BM a day.  I never have a normal BM though its not well formed and I have excess gas during teh day...  Just wondering if the inflammation has permanently altered my colon and as such i don't get as much absorption out of it.
Posted 1/10/2010 4:45 AM (GMT 0)
I was diagnosed 21 years ago and when not in a flare I have one bm daily, two at most depending on how much I've been eating.

You need to be on rectal meds as well...

q
Posted 1/10/2010 4:46 AM (GMT 0)
Almost 15 yrs here... Feeling pretty good recently...Never been back to the way I used to be...during "remission" I still have soft poop and occasional urgency depending on what I ate... Little to no mucous, no blood.
Posted 1/10/2010 4:53 AM (GMT 0)
I should suck it up and get a colonoscopy. I just have avoided it because i don't have the money to pay for my insurance deductable right now.
Posted 1/10/2010 12:06 PM (GMT 0)
First DX with proctitis almost 27 years ago, left-sided colitis 24 years ago and pancolitis 19 years ago. When I'm in remission I still have several poops a day - 3 or even four. There's a huge amount of scarring in the left side and lower part.
When I finally learned the logic behind the maintenance rectal meds (THANK YOU, QUINCY!!!!) this Fall I've been down to 2 poops most days - makes me wonder about some of those "remissions."

Annual colonoscopies with a bunch of biopsies because some 20 years ago I had an adenoma.
So far, so good.
Posted 1/10/2010 1:04 PM (GMT 0)
This will be my 18th year and after reducing the amount of my Colazal I am now having firm bm's for the first time in all those years. I am in remission now but I just got over a minor blip. I still get an occasional twinge on my left side though and I have good days and bad days still. But for the most part I am almost back to normal now.
Posted 1/10/2010 3:14 PM (GMT 0)
13 years for me, and I've been in a flare more than not during those years. Currently I'm in remission and hoping it stays that way. I have bms like any normal person has, but I do avoid excess dairy and pasta as those bug me. My experience with flares is that they come about out of nowhere (no trigger foods, no stress), so I just take it one day at a time.
Posted 1/10/2010 9:09 PM (GMT 0)
I can't answer the long-term thing, but I'm in remission now and have 0-2 BM's/day (usually 1, if I've eaten a lot of fruit, etc the previous day, it's 2, and if I'm traveling, it might be 0 as I have a "shy colon"!) and they're just as formed as they were prior to UC. My poop has never been really hard...I think it's because I eat a high fiber diet and drink at least 3/4 of a gallon of water most days.
Posted 1/10/2010 9:29 PM (GMT 0)
And what we don't want is it to be hard....takes too much effort methinks..lol.

fruitgirl...explain your shy colon. I like that term.

q
Posted 1/10/2010 9:59 PM (GMT 0)
Oh, it's just my silly little term for tending to get slightly constipated (as in not having a BM in 1-2 days) when I'm away from home. I guess I just have to get used to a new potty, or something! And, when I'm traveling for work, I usually don't eat as many veggies (due to eating in restaurants...veggies can be scarce!) or drink as much water as I normally do.
Posted 1/11/2010 2:01 AM (GMT 0)
Have had U.C since 1985,flared badly in'86.Been under control since,minor flares that rowasa always did away with.This year different story,been on pred,6mp since summer,seems to be getting better SLOWLY,also on other anti's.GOOD LUCK
Posted 1/11/2010 12:11 PM (GMT 0)
I was first diagnosed 24 years ago. When in real remission I have 1 or at most 2 movements a day, formed mostly, depending on what i have eaten. The urgency has never gone away even at the best of times though.
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