Got the go-ahead for the Remi infusion this Friday

Yup Christine, the standard amount is 5 but a lot of people here (even their children) have tried the double dose of 10 mg/kg, which can be done no matter what you weigh. Your GI might try something in between (around 7.5 mg/kg maybe) first though just to be safe - I assume the risk of an allergic reaction goes up the higher the dose.

Also your insurance would need to approve the dose increase, since the price of the remicade is also essentially doubled. I think most insurance companies approve of Remicade at 10 mg/kg given to patients as often as 6 weeks, though I've heard of people having infusions every 4 weeks (but at that point it's probably barely even working for them).

As for me, when I had a 10 mg/kg infusion after 4 1/2 weeks and that did little-to-nothing, I knew I was done with the med.

     Moved my bowels a little this morning.  Not as much pain, formed stool, mucus and a bit of blood on toilet paper.  Do I dare think things are improving?   I believe the body heals itself while asleep.  Slept for seven hours straight.  Oh I sure hope and pray Remicade will work.

Glad to hear things are looking up!!  Yes, you dare hope - we all have to have hope!!

Hugs, ElaineNY

Hi Christine :)

I'm hoping that things are still improving for you... I'm anxious to hear how you are doing.... I know you don't want to get your hopes up, but Remicade worked LITERALLY overnight for me... I was bleeding with every BM, even on the day of my infusion, but the very next day, nothing, no blood, and completely normal poo... Soooo, I'm really hoping that it IS the Remicade and that it IS working for you after all.

:)