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6 weeks pregnant and UC flaring on me.

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Ulcerative Colitis
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Posted 3/13/2010 7:58 PM (GMT 0)
Well before I conceived, I was in remission, but wah lah...right when I found out I got pregnant, I went into a flare-I am not sure if it is due to something that I ate or due to me being nervous.  One minute I am happy about the pregnancy and the next minute I am nervous.  One of the main reason that I am nervous is because I am wondering how is my baby doing inside of me with this flare up.  My flare up consist of bloody stool and mucus, but no urgency use the restroom.  Has anyone ever been pregnant and flared throughout their pregnancy?  I know that the first trimester is very critical and I just really hope the baby is ok.  When I see the blood in the stool, I get so worried-can someone please chime in and let me know if you have went through this.  If you did, any advice on how to stay in healthy during a flare?  My first ultrasound will be 3/22 so I am praying that all is well.  I am currently taking Apriso and I was wondering if I should start taking the Rowasa enemas (really don't care for enemas and all the meds during pregnancy).  I am just so confused, any advice or success stories would be great.
Posted 3/13/2010 8:27 PM (GMT 0)
yes, i was hospitalized during early pregnancy because i was so dehydrated. I had to go in for fluids a couple times. I was so sick I couldn't keep even water down. My son was born full term and healthy with a good weight
Posted 3/13/2010 9:04 PM (GMT 0)
Yes, I started flaring at 8 weeks.  I am 16 now and still in a minor flare but bay is doing fine.  I have bleeding as well.  I ended up in the ER Thursday night b/c on top of the flare I got a stomach virus that really dehydrated me.  Honestly though for the most part of the last 16 weeks I have felt pretty good.  Even the minor flare has been managable.  I have not added enemas but enemas tend to irritate my colon lining when flaring.  I have used Canasa when needed.  I have been taking Lialda daily since 8 weeks.  If you make sure you are eating and drinking well and taking your vitamins you and the baby really should  be fine.  Also make sure your OB knows you have UC.
Posted 3/13/2010 10:13 PM (GMT 0)
I started flaring but didn't know I was pregnant until my doc prescribed prednisone. We were trying, so I bought a test....sure enough it was positive. My doc said the flare was from the huge amounts of hormones running through me from the pregnancy. No worried, I am sure the baby is doing just fine in there. rest, take it easy and try not to stress. Hoping the rest of your pregnancy goes smoothly.
Posted 3/13/2010 11:58 PM (GMT 0)
Thanks ladies,

I appreciate the feedback.

Thatfield...so the bleeding from the rectum will not bother the baby? I get to scared when I see the blood in the stool. I won't know how the baby is doing until the ultrasound of 3/22. In the meantime I have been getting alot of growling stomach and no pregnancy symptoms nor morning sickness-is this common in pregnancy?
Posted 3/14/2010 12:20 AM (GMT 0)
I was one of those women who always flared when they got pregnant too. It was awful. With my last child, I knew as soon as I flared that I was pregnant. Don't stress about it. That will only make things worse. I was on prednisone throughout the pregnancy. Yes, my photos from that time are horrendous but I had a healthy son and that got me through it all. I didn't know about rectal meds back when I was pregnant so I can't help you out there. You GI and OB may need to touch base with each other to determine what's best. You do need to get your flare under control though, whatever it takes.
Posted 3/14/2010 1:03 AM (GMT 0)
Does anybody know about taking Imuran and being pregnant?  I am afraid I may have to go back on it because I have to pay for my Humira and Imuran is only $23.00.  My other meds are so expensive I am going to have to get off of them.  Was considering getting pregnant because I will be forty in August.  Was waiting to be in remission but that isn't happening and my clock is ticking. 
Posted 3/14/2010 1:36 AM (GMT 0)
Scrapgirl,

Does my flare sound pretty bad? I am trying to figure out what exactly is a flare.

Boxermom,

I was in remission when I got pregnant and end up flaring so what's the point in waiting. If a flare is going to happen, it just going to happen but surely your clock is ticking and I wouldn't let UC take control, you have to take control of UC...Good luck and baby dust to you.
Posted 3/14/2010 1:38 AM (GMT 0)
UCisnotmyfriend- that is what I thought exactly.  I figure I should just do it anyway.  From the sounds of it I am just going to flare in the end. I don't have much time left if it is even possible now. 

Posted 3/14/2010 3:34 AM (GMT 0)
It's hard to tell how bad your flare is. Mine got really bad, really fast. Have you talked to your GI about this?

Posted 3/14/2010 12:12 PM (GMT 0)
My next question is how do all you people manage to take care of an ifant from the bathroom.   Constantly spending all my time in there I don't know how I will manage to even make a baby. 
Posted 3/14/2010 1:35 PM (GMT 0)
UC, I bled from the rectum throughout my entire pregnancy. It did not hurt my baby. I got pretty anemic but he was fine.

Boxermom, it was tough. I hated putting him down or hearing him cry while I was in there. Early on for some reason, breastfeeding triggered me having to go to the bathroom, so it seemed like every time I got him latched on, I had to go, take him off, and hear him cry. It was upsetting. A big reason I chose surgery was I wanted to be a better mom. I was still a good mom with the UC, though. We made the best of it and my son is a very happy boy.
Posted 3/14/2010 7:22 PM (GMT 0)
I have bleed off an on since 8 weeks. More often than not actually. I have had two blood counts done since getting pregnant and have not been anemic either time. With my first pregnancy I actually did get anemic even though I did not have UC at that time. It is not uncommon to become anemic at some point in pregnancy UC or not. I will not hurt the baby unless you get really really really run down. I was just given extra iron when I got anemic and it helped.
Posted 3/14/2010 7:28 PM (GMT 0)
Thanks for the positive feedback. I did not start flaring until week 6...its like my stomach starts growling and then time to run to the bathroom-I sware I hate seeing blood in the stool. It would be different if I already had my ultrasound and was told everything was ok even though UC is flaring. I am getting so impatient for the first ultrasound...I got about one week to go before I see the baby's heartbeat. Sometimes I have to strain to use the bathroom and I really hope all is well. I am a christian and I will leave everything in God's hand.
Posted 3/15/2010 2:48 AM (GMT 0)
I'm 12 weeks and mildly flaring - have been since week 4. I don't really mind - it doesn't interfere with my life too much - and I just hope it doesn't get worse or make me too anaemic. The GI is talking about trying to get me back on AZA/6MP again, but I think this is a bit premature... I feel like I could get things under control if there was a little person inside me messing with my hormones!
Posted 3/15/2010 8:32 AM (GMT 0)
I started flaring around 24 weeks, went on prednizone for two weeks and seem ok now. I was also dx with anemia, but have been with all my pregnancies. This is my first pregnancy since being dx'ed.

If I were you I would either try to see your ob asap or your GI. I would not wait til the 22nd. They can do a blood draw at 24 hr intervals to make sure your number are doubling which would let you know that baby is growing ok.
Posted 3/15/2010 2:09 PM (GMT 0)
Becky - glad to see someone else on Lialda and pregnant. I am taking the 4.8g/day most days but sometimes go down to just 3.6g or 2.4 for a week or so when feeling better. So far so good! I agree that if you are just in a mild flare you probably don't need the AZA/6MP. Best of luck!
Posted 3/15/2010 5:49 PM (GMT 0)
During my first pregnancy, I flared at 20 weeks. My GI increased my Pentasa dosage to the max and the rest of the pregnancy was great! I could even eat ice cream:-) I am now pregnant with my second and at almost five weeks, started flaring. I was only in remission for a month or so before getting pregnant. A bit worried that I wasn't actually in remission at all and got pregnant during a flare. Anyone else out there possibly conceive during a flare and have a successful pregnancy?
Posted 3/15/2010 6:04 PM (GMT 0)

Mommav,

I went in for bloodwork on 3/11 and waiting for the results which should be back today.  They did a full OB Lab test...is that the same thing as a blood draw at 24 hr intervals?  If my HCG levels are high and are doubling, does that mean everything should be ok?

Posted 3/15/2010 6:44 PM (GMT 0)
If your blood work comes back fine (which I am sure it will) you should not worry about anything. The 24hrs blood draw would mean that you have to get blood drawn one day then again 24hrs later but that is really not needed unless there is a problem. I have never had it done and only know one person who did and that was because she was having vaginal bleeding and bad cramping - thought she was having an early miscarriage...
Posted 3/15/2010 6:48 PM (GMT 0)
There's absolutely no reason to do 24 hour draws to check your HCG unless you are having problems (like thatfield describes), you have a history of miscarriage, or you have some other known problem. It doesn't sound like you're too bad off right now. And I thought you were mildly flaring when you got pregnant, too???
Posted 3/16/2010 12:44 AM (GMT 0)
I was in remission when we conceived and then when I found out I was pregnant, I went into a mild flare...so far I have seen no spotting or no cramping. This is my first pregnancy and I have never had any miscarriages. I guess the only thing that is worrying me is that I do not "feel" pregnant and haven't had any morning sickness or pregnancy symptoms. I heard somewhere that morning sickness and symptoms = healthy pregnancy. I hope this is not true, and I hope all is well. I think I am going to worry myself too much...I just need a vacation, thank goodness we are heading to Chicago on Thursday, yahoo. Is it common not to feel pregnant this early along? Is it common not have any symptoms?
Posted 3/16/2010 1:03 AM (GMT 0)
Yes, it is common not to have symptoms. Many women never do have morning sickness. Take it from someone who has now gone through morning sickness twice now - you are lucky if you don't get it! :)
Posted 3/16/2010 5:00 PM (GMT 0)
Thanks for the feeback thatfield...I wish you a healthy pregnancy and baby! Matter of fact what are you having a boy or girl?
Posted 3/16/2010 6:26 PM (GMT 0)
Thanks so much! We are very excited. I won't find out the gender until next month - can't wait. We have a 3.5 year old precious little girl. She is hoping for a girl but my hubby and I will be trilled either way! Are you planning to find out the gender! The fact that you are so worried about your little baby bean tells me you will be a good mommy! I hope you can relax and enjoy this sacred time. Growing a new little life is a miracle - even science cannot completly explain how it all happens! :)
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