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Ulcerative Colitis
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Posted 3/20/2010 8:00 PM (GMT 0)
Bowels are inflamed. Waiting for pred to kick in. Meanwhile at ER last night for pain shot, but that wears off!. Cannot keep walking in to ER.

Can you think of what to eat besides maybe bananas and water that won't add to the pain.

Put myself on pred fruitgirl and quincy, but still faithful to the enemas!

Ellen
Posted 3/20/2010 8:05 PM (GMT 0)
     Activia yogurt is fine with me.  I also eat baked salmon and a sweet potato with mushy carrots for dinner.  Do you have pain pills at home?  I was in severe pain last week and the doctor ordered Hydrocodone.  I take it sparingly but when I need it...I sure take it!  No need to suffer so.
Posted 3/20/2010 8:06 PM (GMT 0)
Ellen, I wouldn't self-dose with pred!!! Given how it seemed to affect your bipolar/interact with your bipolar medications, are you sure that is a wise decision? You could perhaps ask your doctor about steroid enemas...there's MUCH, MUCH, MUCH less systemic absorption with them. I also think you need to get in to see your GI (quit messing around with stuff on the phone...you need to be seen) and in with your psychiatrist. Does your psychiatrist have experience with helping people with chronic, non-psychological disorders? If not, I think you'd benefit from seeing someone like that, to help you deal with the emotional ramifications of having UC.
Posted 3/20/2010 9:10 PM (GMT 0)
Hi Fruitgirl,
The ER doc told me to go on pred, the psychiatrist told me to go on pred, the GI on call told me to go on pred, I'll have to go see or talk to my GI on Monday. The odd thing is I saw him only a week before all this began to happen. First the constipation and he told me to go on Miralax... well, you know the rest of the story ad nauseum. Last night at ER they dosed me with up with strong pain med, i couldn't even walk unassisted. It's the colon. Rectum is fine, I believe, thanks to the enemas.
Posted 3/20/2010 10:10 PM (GMT 0)
Maybe you can eat rice? With butter, salt and pepper, is good comfort food. Or maybe little soy sauce or teriyaki?
I'm sure brown rice would be better for you, but I would just try white rice to keep the fiber low.
Posted 3/20/2010 10:34 PM (GMT 0)
Seriously I would consider stopping the Asacol, it isn't helping you since you had a major flare, and most likely is making you worse, and tell your doctor you want to try Sulfasalazine and take it at a low dosage. Increase Vit D to at least 4000ui a day for rest of your life. Eat canned spinach, and juiced carrot juice with apples. Red meat, baked or grilled not fried, salmon, chicken soups, stay away from MSG, too much sugars, watch tomato products and gluten products, take quality Enzymes and probiotics. Jarrows Whey protein powder can possibly help heal because of the proteins, amino acids, and glutamine. B-12 is always good too.

Just some suggestions, I think Asacol is absolute scam and is making some people sicker, might work for some, but adversely affects others.
Posted 3/20/2010 10:50 PM (GMT 0)
When my boyfriend is feeling worse than usual he sticks with the BRAT diet.. Bananas Rice Applesauce Toast(Tea)..Id keep the rice as plain as possible with just a little seasoning for taste. The toast should be plain, with only butter. The best teas are any with peppermint, chamomile, or ginger, as those help ease upset stomachs. I know you said your tired of bananas but maybe you could try bananas with peanut butter for a bit of a change and some protein. Hope you start feeling better!
-Emily and Spencer
Posted 3/20/2010 11:01 PM (GMT 0)
Thank you, everyone.
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