I am new to healing well, been reading a ton of information on so many topics here. Everyone here seems so kind and helpful!
My son, who is 21, was diagnosed with Ulcerative Colitis in September 2009. Before all of this, he was the picture of health and fitness. Very in tune to healthy foods and always at the gym. He has always been very fit and trim. He was at 145 lbs, in December had gotten down to 119 lbs. He was going to college on a soccer scholarship, but this has put a major hold on his life.
He is currently taking Lialda, 3 per day, just started taking probiotics. He develops these terrible nodules (doctor said erythema nodosum) currently he has more than ever, and they are bigger than any before. We are waiting on the cultures taken at the docs office to make sure they are not infected. For these, he is on prednisone and dapsone, plus has been into the doctors office for IV antibiotics and pain meds. I think he has turned the corner with them, but will most likely take another 2-3 weeks for them to heal completly. Does anyone else suffer from these nodules? How have you delt with them?
He was on Humeria, but we decided to stop that...everytime he had an injection he would get sick a day or so later plus it didn't really make much difference. He said it wasn't worth it to him. The Lialda seems to help a little, but I'm starting to think we need something else. Oh, he was on Asacol back in October, it did not help at all.
I'm sure I'm forgetting a lot, but if anyone has any suggestions or ideas, I would greatly appreciate it!