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I have to deal with another month of this?!?!

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Posted 3/23/2010 8:42 PM (GMT 0)
Well, my drugs are finally reminding me of why I did not want to be on prednisone in the first place.  Insomnia and pred munchies are smacking me full blast now.  Plus the super moodiness...I am a total roid monster lately.  I feel so bad for my boyfriend for trying to put up with me.  And I'm surprised I haven't beaten the crap out of some of my customers (oh, the joys of working retail).

On the plus side, the UC is much better.  Been having one formed poop per day in the morning, no real urgency.  Had beans the other night and they just gave me gas.

But &@#& the steroids!!!

Posted 3/23/2010 8:49 PM (GMT 0)
So, beans aren't a good idea when your gut is giving you grief...although high in protein. When you eat them....use Beano, that stuff is awesome.


Are you not able to use the steroid enemas?
What about entocort considering your UC is already in the transverse?

Maybe much better for YOU than the pred.

q
Posted 3/23/2010 8:54 PM (GMT 0)
quincy-tried entocort, it did nothing. Or very little. I continued to deteriorate on it. I asked the doc about steroid enemas but he said they probably won't do too much for me considering how high up my UC is. Also the regular 5-ASA enemas bother me, I'm not sure how that would translate to the steroid ones though.

I do have some beano, lol. My boyfriend insisted I get it because gassy foods make my UC more uncomfortable, but I keep forgetting to take it.
Posted 3/23/2010 8:54 PM (GMT 0)
Well, I'm glad the symptoms are getting better.

Maybe you should get a job as a collections agent in the meantime! :)
Posted 3/23/2010 8:57 PM (GMT 0)
Fruitgirl-Maybe, but I'd have to sell my SOUL for that job, and I'd like to think I'd need that in the future =P
Posted 3/23/2010 9:49 PM (GMT 0)

Malkavian said...
quincy-tried entocort, it did nothing. Or very little. I continued to deteriorate on it. I asked the doc about steroid enemas but he said they probably won't do too much for me considering how high up my UC is. Also the regular 5-ASA enemas bother me, I'm not sure how that would translate to the steroid ones though.

I do have some beano, lol. My boyfriend insisted I get it because gassy foods make my UC more uncomfortable, but I keep forgetting to take it.

Glad your doing better. Just a note, the 5-ASA enemas did bother me but the hydrocortisone enemas didn't. I guess bothered me in a sense that I always seemed to have more D and cramping everytime I used them.
Posted 3/23/2010 10:30 PM (GMT 0)
I feel for you i to turn into a roid monster when on the dreded pred hubby is very good about it and pre warns people he knows all about roid rage glad your u/c is getting better.
Posted 3/23/2010 11:02 PM (GMT 0)
While I am right there with you with cursing the side effects I am thrilled for you that your UC is better!!! :o)
Posted 3/23/2010 11:06 PM (GMT 0)
Doc-Hmmm.  Though it's a little late as my symptoms are gone and I still have to taper the stuff.

lambkins and ugh-Glad to know I'm not the only pred monster, lol.  Hopefully the aza will keep me in remission without this crap.

Posted 3/23/2010 11:10 PM (GMT 0)
you definately shouldn't eat beans when having a flare-up.

try having organic chicken broth and very cooked and blended carrots.

also completely avoid refined sugars.

I find that people eat the craziest things, then wonder why they have lots of flare-ups.
Posted 3/24/2010 12:05 AM (GMT 0)
Once again food does not CAUSE flares but it can make them uncomfortable.  The low residue diet is great when flaring just because it doesn't hurt when going through.  Then add about anything when inflammation/bleeding/etc. is gone!

ElaineNY

Posted 3/24/2010 12:26 AM (GMT 0)
Poor thing. I am the same way. I didn't get any sleep for a month until I got some sleeping pills last week. I hope you continue to feel better and can get off the prednisone quickly. I have to slow my taper because I keep having trouble once I go below 10mg.
Posted 3/24/2010 12:31 AM (GMT 0)
I am glad you are getting better, and RIGHT there with you on the roid rage!!!! OMG-the cravings are ridiculous, I am a monster at the drop of a hat-then there is my face. My cheeks actually hurt from being so swollen up. And I my facial hair is darkening, and I am broken out like a love sick teenager.

Then there is the rest of the swelling, and the insomnia-oh and yes-again with the rage!!!!

And just think-there is still the taper to deal with...

Sorry you are dealing with it too!!
Posted 3/24/2010 2:02 AM (GMT 0)
I don't get roid rage I get like roid high, happy psychotic

But who knows, maybe if I need it again, now that I'm older maybe it'll make me bad-crazy instead XD
Posted 3/24/2010 1:29 PM (GMT 0)
Actually, the members of this forum are very aware of the fecal transplantation procedure; there have been very in-depth discussions about it and anyone that is interested in reading the threads can Google the subject. Some have fared well from it, and some have not -- as we say on this forum, what works for some doesn't always work for others. I'm happy to hear that your daughter is doing well and hope that she experiences continued success with the procedure.

Posted 3/24/2010 2:11 PM (GMT 0)
ekspain-If I wanted diet advice I would have asked for it. Considering I haven't had normal food in months and I'm feeling fine UC wise, I think I will keep eating my beans.

kops2da-Thanks.

Supa-Luckily I don't get acne (or haven't been) but I think it's cause I had the WORST acne as a teenager and have learned how to deal with it since.

ElephantPipe-I tend to get both, I guess...just really violent mood swings in either direction depending on what's happening. Most of the bad moods come from either being hungry or dealing with crazy family/coworkers/customers.
Posted 3/24/2010 2:19 PM (GMT 0)
Ucnomore,
Thanks for posting your story, it's useful. Maybe you could post a new thread with details like what type of lab tests your daughter's mom went through to be cleared. As Lonie said, this has been a much discussed issue. I've spoken to Dr. Barody's office myself when my child was diagnosed but they do not perform the procedure on children or I would have taken her to Australia. Of course, it is not without its risks and it has a success rate of 50-60% (which is higher than remicade) but hardly a cure all. Some members have flared after trying this at home. Another mom has been attending sessions in Chicago and apparently they are due to begin trials shortly as well.
Please do post the details of your case as others might benefit. I'm glad it worked for you.
Posted 3/24/2010 2:22 PM (GMT 0)
Just one more comment.  Although not for everyone I don't think I could have made it through 5 months of prednisone with Xanax.  Two years before diagnosis I had a couple panic attacks (once when about to have knee surgery which never happened).  I tried two other anxiety medications but they just made me jittery or droousey - finally tried 1/2 doses of Xanax every 4 to 6 hours.  I have not increased the doseage for 2 years or so.  I may be addicted but I don't intend to go off to find out.  It keeps me "sane".  I am 69 and my Mom always refused her "nerve" medicine and went through so much - I will stick with the medication to help me!  When I act out to my husband he always asks me if I have taken my "happy" pills.  He also takes Xanax and Zoloft for PTSD from Vietnam and having lung cancer.

ElaineNY

Posted 3/24/2010 2:23 PM (GMT 0)
ucnomore; if you do decide to post something on the fecal transplantation subject, please start a new thread for it -- the original poster is asking about prednisone use.
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