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And here it goes again..........

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Ulcerative Colitis
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Posted 4/20/2010 6:41 PM (GMT 0)
I've been enjoying my remission...I mean really really enjoying it but like all good things, it has to end eventually.  I don't really know yet if I am beginning to flare or having a minor blip due to hormones or allergies.  It started last Thursday, I started having some urgency and a lot of gas with some D.  Friday was about the same but this weekend I was fine.  I wasn't home so maybe the change of scenery helped.  Yesterday, I was out shopping with my daughter and I had to run to the bathroom - gas again and some D.  Today I have been to the bathroom 6 times already with gas and D - no blood yet thankfully but dang does my hemmies hurt. 

I am going to give it a couple more days to see if is just a blip but if it doesn't improve, I guess I will be making that call to the GI again.  It just stinks because I know he is going to have me start on steroid enemas again since I can't tolerate mesalamines.  I hate hate hate steroid enemas 'cause I am sensitive to any and all steroids now.  I had to do a short bout of them last December because the stress of my Gma's death upset me.  But it was short lived and I reached remission again.

I am getting so fed up with my body!  Anyone know of a store that I can trade mine in for a new and improved model????  mad

Posted 4/20/2010 6:42 PM (GMT 0)
:( Bummer.
Hopefully, if you have to do the steroid enemas, a really quick shot will get things back under control!
Posted 4/20/2010 6:44 PM (GMT 0)
Don't wait Sherry....maybe ask for the steroid suppositories and use them twice a day.

Maybe up the probiotics.

Trading in....that would be a good option...you definitely have lots of issues.

Tell me again, are you not able to handle any type of fibre supplement?

q
Posted 4/20/2010 7:18 PM (GMT 0)
No, I can't tolerate fiber supplements. They give me very painful gas and D....I've given them a fair go many times over the years and I've always had the same result.
Posted 4/20/2010 7:25 PM (GMT 0)
Sorry, Sherry. Dang, it's never easy when we start seeing/experiencing symptoms. Again.

I wouldn't wait..... it started Thursday and today is Tuesday....? With me, even a minor bit of inflammation due to allergies/hormones, if it lasts 4 days......I hope you get it under control quickly. The sooner you do something, the more likely you are to "nip it in the bud".... or is it "butt"...?

Keep your chin up!!
Posted 4/20/2010 8:10 PM (GMT 0)
I woud not wait either . If you are in remission and then having lots of gas and D and up to 6 times a day that is defeinitely something going on in there UCwise.
IF you have full blown D I am not sure enemas or supps are what you need though..wouldnt that mean its higher up??
Posted 4/20/2010 8:12 PM (GMT 0)
Bummer my friend. Ditto to getting on those meds right away to nip it in the bud. ((Hugs))
Posted 4/20/2010 10:23 PM (GMT 0)
Oh no, I hope you are not going into a full flare.

If you find that store where you can trade in your body, let me know!
Posted 4/21/2010 1:21 AM (GMT 0)
Oh no. You have been doing so well, I hate to hear that you are (possibly) going into a flare. Ugh. But 6 x's a day is not normal for you, so don't let it go on too long. You have been at this game long enough to know that you need to stay on top of a problem! Hope you work your way out of it soon.
Posted 4/21/2010 1:43 AM (GMT 0)
I guess you're all right. Can we say denial???!! I have some enemas left so I may just start them anyway since I know what my doc is going to say - after all I have been with the same doc for 16 years now!

Krissy, I have left sided Uc and usually I can tell where the inflammation is after having it for 18 years. I don't feel that it's high up since I have that ooey gooey feeling down low plus I am not bleeding - which for me is an excellent sign because I have always had issues with bleeding in the past.

So I guess I will nip this in bud before it gets out of hand.
Posted 4/21/2010 5:02 AM (GMT 0)
Yay....not denial necessarily. maybe you're a waiter and seeer....while we're nip in the budders...lol.

Let us know how it goes.

Oh, double or add extra probiotics.

Yeah, I thought that was the thing with fibre.

q
Posted 4/21/2010 12:22 PM (GMT 0)
Nip in the budders??? LOL I like that :)

My hemmies feel better this mornings but I'm still having D :( Most times, if this was just a blip a one shot of steroid enema will help but I have a feeling that this is a minor flare...bummer.

I have a lot going on right now and why is it that Uc tends to rear it's head at the most inconvenient times?! Well if this is a minor flare, hopefully it will resolve itself in time for my son's graudation in June.

Cross your fingers for me!
Posted 4/21/2010 12:42 PM (GMT 0)
OK Red - remember "positive attitude"!!  You WILL feel better by June for sure.  I am going to fly to Orlando next week, visit Sea World and maybe Disney - see Mickey, etc.  I also worry about being sick but developing a positive attitude like my husband will help!!

Hugs, ElaineNY

Posted 4/21/2010 12:52 PM (GMT 0)
*clicking my ruby red slippers together* I do believe in happy thoughts! I do believe in happy thoughts! I do, I do believe in happy thoughts! :)

We went to Sea World last summer and we didn't really have much fun. It was super duper hot and extremely crowded. But going at this time of year should be nice. Enjoy your trip and scratch Mickey between the ears for me ok?
Posted 4/21/2010 1:07 PM (GMT 0)
Will do that RED.  I know it is a lot of money for Sea World when we don't do rides, etc. but we love people watching and our son and 14 year old granddaughter will do some rides.  My husband wants seafood.  Where we live it is not the greatest!  I will tell Mickey hello if I see him!

I am just looking forward to getting away.  It should be about 80ish and past Spring break so crowds are traditionally down.  That is why they picked this time for the old veterans to have the reunion LOL!!

ElaineNY

Posted 4/21/2010 1:50 PM (GMT 0)
Thinking of you and hoping you get this turned around pronto!
You jumped right on it, having the enemas there and ready to go, so - you're doing what you need to do! That's great!
Sometimes the enemas take a few days to get everywhere they need to get, has been my experience, - although, also like you, I've had them work with the first dose.
Is springtime a usual flare time for you?
Posted 4/21/2010 2:10 PM (GMT 0)
Maybe try a crazy experiment, don't take any Colazal for one day and see what happens. :)
Posted 4/21/2010 3:00 PM (GMT 0)
Well, I have been happily going along mostly in remission with a few minor flares per year. But ended up in the ER on Sunday with a fecal impact.
Not sure why this happened or if UC is related. But undoing the pain and being manually cleansed has seemingly caused me to fare a bit. As well, the doc wants me to add Prune juice to my regiment. I already take metamucil and probiotics along with Azulfadine.

This disease is a master at torture. Just when you think you have beat the worst of it, it comes back and reminds you it is still there, waiting to pounce.
Maybe because I have lived so long with this disease, it is getting me down. I was diagnosed at 16 and in October I will be 64. Do the math.
I am tired of it. I know this flare is not that bad compared to what it can be. My worst years were between 16 and 35.
But still, it's wearing, especially since there really are so few people who get it. Most of my friends now, for the first time are dealing with chronic issues, themselves. Type II diabetes, arthritis etc......and talk to each other. Once again I feel like the odd person out.

Just needed to vent.
Posted 4/21/2010 3:09 PM (GMT 0)
"I am getting so fed up with my body! Anyone know of a store that I can trade mine in for a new and improved model????

Been asking myself the same thing, lol.
Posted 4/21/2010 3:17 PM (GMT 0)
Yeah, spring and fall are the hardest on me because of my allergies. My flares are tied in with my allergies - when they act up, so does my Uc. I'm already on allergy meds and it only seems to help marginally with them.

Zippy, I would be afraid to try that! lol As far as I know, the Colazal is keeping it down to a slow simmer in addition to my 6mp. 6mp in itself doesn't keep me out of flares but it does make them milder. I can't process the 6mp properly so I only get a partial benefit from it.

Jjc, actually I don't feel left out but more of a mentor now to my aging friends! :) They are now starting to have bowel problems and who do they come to? Yep, that would be me. Same with the arthritis. But I do know what you mean, I have felt alone with this disease for so long that it's actually nice now to be able to talk poop with friends!
Posted 4/21/2010 3:19 PM (GMT 0)
Heather (Malkavian), I think that if we find that ever elusive store that we should come on here and share the wherabouts with everyone, what do you say?? :)
Posted 4/21/2010 7:00 PM (GMT 0)
Sherry....double the probiotics or add another one to the mix.

Hope you improve soon.

q
Posted 4/21/2010 9:25 PM (GMT 0)
Just a reminder: there is now a sulfite-free Rowasa available in U.S. I know you can't take a lot of stuff due to sensitivities. Hopefully, you'll put out this small fire quickly. Went to my gastro for check-up a couple days ago, good thing, because gastro thinks I was about to flare! So we're adjusting the med a little 'cause I haven't shown the usual symptoms to-date. It pays to stay aware. Best wishes! / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 4/21/2010 9:30 PM (GMT 0)
Hope this is just a minor blip
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