HealingWell
Search Close Search
☰

World IBD Day

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 5/19/2010 5:00 PM (GMT 0)
Had no clue it was world IBD day today.  Very cool!  I tell very few people about my UC, but today I took a stand.  I changed my facebook profile pic to show that it is World IBD day.  I don't care who knows!  It isn't my fault I got this crappy(pun intended!) disease.  Why should I be ashamed of it?!!!  More people need to be aware of it so they can find a cure.  If I keep hiding it, more people won't know about!
Posted 5/19/2010 5:03 PM (GMT 0)
Good idea! I'm going to change my status to say something about world IBD day. Most of my friends know I have it, but it's still good awareness!
Posted 5/19/2010 5:08 PM (GMT 0)
I'm in a facebook group called "I Have Crohn's disease...a little **** never hurt anyone". I should probably get them to add UC to the title ;p

I don't really mind people knowing, but it just gets so annoying to have to explain everything every time. And most people still don't get it after I explain it.

HAPPY IBD DAY!
Posted 5/19/2010 5:08 PM (GMT 0)
I will do that as well! Thanks Jen for the info!
Posted 5/19/2010 5:10 PM (GMT 0)
CCFA has a group on facebook called CCFA: Crohn's & Colitis Foundation of America They are the ones that told me it was IBD day and have an icon picture you can download and change your profiel pic too.
Posted 5/19/2010 5:11 PM (GMT 0)
As for explaining things, I tell most people I have UC and if they say what is that I tell them my body attacks my colon. That pretty much shuts them up and I don't have to explain the blood and D issues. I just say it is very painful when I'm in a flare and I have to take daily medication.
Posted 5/19/2010 5:25 PM (GMT 0)
Thanks Jen! So if you search World IBD Day on Facebook you will find a couple events to post to your page. One says World IBD Day and the other has a picture of the earth. You are also suppose to wear Blue today.
Posted 5/19/2010 6:46 PM (GMT 0)
i just wanted to say THANK YOU for this thread!! i have crohn's, not UC- but i saw your post and you have inspired me to change my facebook status!! i always think it is shocking that the general public have so little knowledge and awareness about IBD, yet i dont want to change my facebook status about this! that's just backwards on my part! i'm going to change it!
Thanks for the inspiration and hopefully if enough people do this, then our diseases will finally get some more recognition and some of the stigma about talking about poo/ blood will go too! :)
Posted 5/19/2010 7:03 PM (GMT 0)
Thanks...I posted the link on my FB. It's kind of ironic that the first annual IBD day is on my birthday! I didn't wear blue because I didn't see it until now. Next year I'll know!
Posted 5/19/2010 7:09 PM (GMT 0)
wow, glad I made a difference. You guys made my day!
Posted 5/19/2010 7:40 PM (GMT 0)
OK, so I just checked my facebook and one of my "friends" commented under my post about IBD day: "acidophilus, it cured me." I tried to set her straight. We will see... I thought you all would appreciate my frustrations with that.
Posted 5/19/2010 8:27 PM (GMT 0)

It is so great that the world is beginning to take notice! This is a fantastic day.

beeswax - isn't it annoying?? My friends think if I just don't eat junk food, I'm just fine. Kind of like a "diet". Not many people know much about it.

Posted 5/19/2010 9:50 PM (GMT 0)
I just updated my facebook status as well. Not changing my picture, though, lol.
✚ New Topic ✚ Reply