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Reposting-Both oral 5 ASA and Rectal meds

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Ulcerative Colitis
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Posted 6/12/2010 3:45 PM (GMT 0)
Hi guys,

Reposting b/c I think my other post was confusing. (Don't know how to edit)  Wondering who has had UC for a while and has been able to control using only 5 ASA's (oral or rectal....rectal steroids are ok too)  Trying to see how many are able to control w/out using the "harder" drugs.  Thanks for your input.:)

Posted 6/12/2010 5:13 PM (GMT 0)
I've NEVER used anything else except 5ASA oral AND rectal for over 21 years.

of course it takes commitment....and of course, 5ASA oral/rectal are expensive.

q
Posted 6/12/2010 5:25 PM (GMT 0)
I have only used  5ASA (SALOFALK) ORAL and rectal for the last 13 years it wasn't until  recently that I occaisionaly use hycort enemas or the cortifoam.  I have never used prednisone though It was perscribed a couple of years ago when I was pregnant and the doctor wanted to control things quickly but I just couldn't take the pills. Now  when a flare starts to come on I usually increase my probiotics to about 4 times a day and I cut out irritating foods as well as increasing my rectal meds (I add vitamin e into the enema bottles every time to stop the bleeding quicker).  Its been 15years since I was diagnosed so I hope never to go to the stronger stuff.
Posted 6/12/2010 7:09 PM (GMT 0)
Thanks guys. I like to hear that since obviously I would prefer to not have to go to more serious drugs.  I notice you both use the same probiotic.  I think I may give it a try. 

 I love to talk to people who have figured out a good formula for themselves, makes you feel like you can have a normal life w/ this crazy disease.   Thanks again.  Oh and Quincy, after reading many of your posts, I asked my Dr. about prescribing rectal meds (he only had me on Lialda and it wasn't doing the job) The Rowasa so far has helped me the most (knock on wood) Why are they so hesitant to prescribe rectal meds??? Who knows??? Thanks!

Posted 6/12/2010 7:59 PM (GMT 0)
I have only been on salofalk orals until now and I have finally beenrx'd salofalk 2g enemas but my GI was hesitant too!!! I dont get it, he wouldnt give me the 4g enemas either... weird.
Posted 6/12/2010 9:34 PM (GMT 0)
I've only had UC for a year but I've only been on Asacol and Rowasa.  I had to ask my doc for the Rowasa, he told me that most people don't want to do them, that's why he usually waits for someone to ask, then he knows those peeps are committed to them...haha!

 

Posted 6/12/2010 11:25 PM (GMT 0)
I dont understand why your doctors are hesitant on perscribing rectal meds they are definately better than the oral meds.  They should be the first things these doctors perscribe.  I wouldn't leave the office until I convinced them of the benefits and a percription was written.
Posted 6/12/2010 11:26 PM (GMT 0)
I don't think that doing the enemas is such a big deal. I mean, okay, it is not glamourous, but it is less glamorous having all of these bathroom problems. Geeeshh. I know, I had to really push to get those enemas.
Posted 6/13/2010 6:33 AM (GMT 0)
puffed rice...I'm assuming you mean systemic oral meds such as pred and immunosuppressants... and not the oral 5ASA?
One should really be on both oral/rectal 5ASA.

Great to hear that you got the enemas hateUC....I'm puzzled by the fact that so many GIs don't prescribe rectal meds. Even my doctor's expression when I tell him seems that it's an odd thing.

q
Posted 6/14/2010 11:53 AM (GMT 0)
I use Asacol and started using Mesalamine enemas after my last flare. Fortunately I did not have a spring flare this year as I have had for numerous years in the past which I think is a result of the psyllium seed powder. I have used prednisone a number of times in the past to get things under control when things got really bad. I was hoping for better results from the enemas. I had a colonoscopy in April and it showed that I still had mild inflammation in my rectum and lower colon so I decided to start using Vitamin E in my enema.
Posted 6/14/2010 3:05 PM (GMT 0)
Very interesting about Vitamin E. How do you add the vitamin E into your enema?
Posted 6/14/2010 3:18 PM (GMT 0)
Where can I get physillim Seed powder? I have found only the husk and not the seed anywhere.
Posted 6/14/2010 5:35 PM (GMT 0)
I'm sorry I don't know where you would get the seed. I currently take Metamucil wafers and they have the husk. I hope someone else can answer you.
Posted 6/15/2010 1:08 PM (GMT 0)

hateuc said...
Very interesting about Vitamin E. How do you add the vitamin E into your enema?


I just unscrew the top of the enema bottle and squeeze the contents of the capsules into the bottle and shake it all up after screwing on the top. I use four 1000 IU capsules which I open with a fingernail clipper. It's pretty simple. My biggest challenge was finding the correct vitamin E (D-alpha Tocopherol) in 1000 IU capsules.
Posted 6/15/2010 1:13 PM (GMT 0)

KrissyUC said...
Where can I get psyllium Seed powder? I have found only the husk and not the seed anywhere.


Here are a couple of sites that sell it. I bought 12 pounds last fall so I got free shipping.

www.morethanalive.com/Psyllium-seed-powder
www.starwest-botanicals.com/product/2-psyllium-seed-powder.html
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