Facebook

Has anyone seen the UC page on Facebook. First, there are a lot of people getting their colons removed, but that's understandable. But secondly, there's a lot of whooping and hollering by people celebrating their remission and reveling in the fact that they can stop meds. "Anyone want 13 weeks of enemas?" There's a lot of people on no meds and flaring.

It's very different here. People seem more informed and taking care of themselves.

I find all forums/groups/etc. about same.  Fun to read about all the "unusual" treatments that work for some and not for others.  I don't really blame some for trying anything that might work but I rely on my doctors to help me.  I DO enjoy reading advice/encouragement from here.  Quincy convinced me to try rectal meds which helped me a lot.  She did not say they were wonder drugs and my doctor had prescribed them - I was just scared to try them and needed a "push" from someone who had the experience.  Thanks!

ElaineNY