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Ulcerative Colitis
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Posted 11/20/2010 3:27 AM (GMT 0)

I have made an appt at Mayo Clinic for January.  Right now I feel like I *might* (hope I am not jinxing) be getting an almost 6 month flare under control  Would you go to Mayo if your symptoms were controlled but still wanted information about the next steps?  Ot give up the appt and make again while you had the symptoms?  I do not live near the clinic so scheduling something like this has not been easy. 

Thanks for any input.

Stacy

Posted 11/20/2010 4:02 AM (GMT 0)
I would say to go, it's not often easy to get to the clinic with wait times, etc.. And I assume with proper doctors that are experienced with this disease to see you.

You could view it as starting a baseline point with your file and flare and they could definitely monitor it. The tests they may request to do I think would probably be best also. That way, if things start to go way off to left field as it sometimes does with this UC (my condition was not the same as other flares, always something new with each flare), they would help to other medications or methods later. I thought of going there also, if my condition turns for worse some day just because it is the mayo clinic.

Consider it for your peace of mind.
Posted 11/20/2010 4:29 AM (GMT 0)
I went there following 6MP not working for me... looking for last resort options...

They told me my only option was surgery, and nothing else. One year later I'm in remission via VSL#3 and psyllium husk powder. I would save your money - the best information I've ever gotten has been on these boards.
Posted 11/20/2010 5:14 PM (GMT 0)
Every option is offered and discussed most thoroughly here, I agree!
Next steps are meds, diet/supplement experimentation, or surgery.
I'm not sure they could do anything special for you there.

My impression is that it is a good place to get a diagnosis for a mystery ailment, but no different from any other good place for treating a known disease.

Also, it seems the Cleveland Clinic comes up more often as the best place for GI stuff.

Post Edited (Peety) : 11/21/2010 6:18:23 PM (GMT-7)

Posted 11/21/2010 2:58 AM (GMT 0)

My GI here has recommended 6Mp or Remicade.  I am just scared.  Scared of meds, scared of surgery.  I am now taking a ton of supplements from a naturopath and modifying my diet but what i am struggling most is the timing of supplements and elimination of certain foods. 

Posted 11/21/2010 4:30 AM (GMT 0)
I get my U.C. treated at Mayo in Scottsdale, AZ. Nothing really magic about the place. There is such a limited range of medical options for treating U.C. that they can't do much more than anyone else. Surgery is a different story. I think they do have some of the best surgeons.
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