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Ulcerative Colitis
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Posted 11/23/2010 2:30 PM (GMT 0)
hi quincy i know u know ur stuff thats y im asking, a few weeks ago i finish my steroids everthing was great, i was on 8 5mg a day for a week then 6,4,then 2 for a week,i was back at work and the jym,then the other day i had a bad bm,and now im back in the flare zone, in ireland there is a soup called homemade and its great but its very high in fibre,and the next day i had a bloodly bm im not sure if this was the cause,or was it i thought i was better but not on the inside  how long does it take to heal inside after a flare?and is there any thing i can get to help me heal? i am SO SO ANGRY with this its getting me down,my GI is getting me in soon for a scope, im going to ask if there is any other meds other than asacol i dont think this is helping from both ends,do u know of any other stronger meds i can be on?as for my diet i dont know what to eat my head is away with this do u any good sites or foods i can work with, any info would be great this illness is beating me everytime im up it knocks me down how am i suppose to win.thanks for ur time..
Posted 11/23/2010 5:45 PM (GMT 0)
I don't think one bad day means you're necessarily headed into a flare up. Have you been consistently bad since that day? I think Asacol is pretty standard treatment for UC, all of the other meds are similar, not stronger, some treat different areas of the colon or large intestine. If you have the scope and you find that all of your inflammation is on the left side, you may want to try colazal... You should deinitely get some rectal meds, Rowasa can be very helpful, as can Canasa if you can't retain Rowasa or even steroid enemas/foam if you need something stronger. Try not to get down. I've been up and down and I am trying to keep remembering one bad day doesn't mean you're going to relapse. Hope you're feeling better.
Posted 11/23/2010 6:23 PM (GMT 0)
thanks for that i will defo look into colazal as my last scope showed left side and rectum can i also say in the back of my mind im a bit worryed about bowel cancer,as it runs in the family, i belive if u take a 1/4 of an asprin a day it reduces bowel cancer by a 1/3, i know u can look into things but its good to know.
Posted 11/23/2010 10:09 PM (GMT 0)
Hi...it's not the soup..truly.

I would strongly say it's the tapering of your pred....a slight setback. What are you on at this point?

You don't have colazal in Ireland, nor Rowasa. The equivalent of the Rowasa enema would be Salofalk, Asacol or Pentasa I think. Get on the retention enemas. Asacol has a foam form...that would be a good start.

How much asacol are you on?

Hang tough...while I've never been on pred, I had many setbacks the first 3 years.

We all worry about bowel cancer, but you are already on a 5ASA med, so not needing the aspirin to cover the cancer aspect. You do need to get on a retention enema rather than the suppositories. Stay on them nightly until you're off the pred...and continue on them for at least another month. Then see if all is fine, taper to every second night.

Why were you put on pred in the first place?

ARe you taking any probiotics?

Are you taking any fibre supplements?

Regarding tapering the pred....you can alternate the dosages at each lower level. It would look like 6,6,6,6,6,6,4,6,4,6,4,6,4,6,4,,,,4,4,4,4,4,4,,,4,2,4,2,4,2,4,2,2,2,2,2,2,,,,2,1,2,1,2,1,2,1,2,1,1,1,1,1,,,,1,0,1,0,1,0.1.0.....0

q
Posted 11/23/2010 10:50 PM (GMT 0)
I agree about not needing the aspirin. There are equally good alternatives for us anyway that help reduce colon cancer risk like turmeric, CoQ10, boswellia, fish oil, vitamin D, fiber, blueberries, or not eating red meat or a diet generally high in fat and sat fat.
Posted 11/24/2010 9:04 PM (GMT 0)
thanks guys, heather im back the pred from yesterday and again after the 1st dose it has help but its just a quick fix for me im also on 800mg asacol 4 times a day im on pred foam and ive got my asacol foam ready for when im on the men, i was talking to someone a year ago and they said they were on COLAZIDE, i think its the same as COLAZAL, but im not sure my GI phone today and wants me in on monday for the scope i really hate it but has to be done,i just feel that i could try other meds because i just keep flaring and its doing my head in big time, o and i am talking psyllium and probiotics only because have read it here i dont really know what there for sorry, i will try tapering like u say, i know u having got the answer for this but do u know of anything that will help keep me in remission at least for 1 year. LEVI what is TURMERIC,COQ10. thanks again every little helps.
Posted 11/24/2010 10:11 PM (GMT 0)
I totally don't have the all or even most of the answers, but I can make suggestions. Hopefully, some will work.

Regarding the colazide..aka Colazal..it's not available in Canada, but it might be in UK. How high of a dosage are you on pred?

Were you already on the pred foam and had the setback with symptoms?

q
Posted 11/24/2010 10:47 PM (GMT 0)
i am on 6 5mg of pred for a week then taper of, no i was not on pred when i can setback but u did cut way back on the asacol foam,do u think when im fine i should stay on the asacol foam? whata about food and beer? thanks.
Posted 11/25/2010 7:05 AM (GMT 0)
OK...back to 65 mg prednisone or 6.5 mg?

food...I eat what I like to eat, but I don't really have a horrific diet by any means. I don't drink, maybe a sip of wine here and there.

I think moderation is really the key, try and eat as balanced as possible. Beer..well, how much do you normally drink?

q
Posted 11/25/2010 5:30 PM (GMT 0)
6 a day 5mg. i used to drink alot now just on a sat nite with my wife, i got my perp today 4 litres to drink on sunday yuk' have to get extra bum paper this week lol, do u not drink because of ur UC? do u think alcohol is no good for it? thanks
Posted 11/25/2010 9:56 PM (GMT 0)
Hi...ah, the dreaded prep. I use the 4 litre one as well. No flavouring.
At least you can have a light breakfast or brunch. Start it around 4 30 or 5 at the latest.

what works for me....mix and put it in the fridge tonight or tomorrow morning at the latest...I forgot once and it wasn't chilled enough. ugh.

using a straw helps get it all down quickly...no breaths in between ... put the straw as far in as comfortable and go for it! Hold your nose if you have to...but it's the best way I've found regarding mouth comfort, etc. I've never puked from it ever, that's why I stick with that.

Regarding the butt wipe...if you have lotion to use afterward, that can help...wow, butt-burn..I don't envy you!

Drinking alcohol...well...my body doesn't like it. I feel sick. Even a few sips of wine (which I love) make me feel horrible..so I drink a bit to taste and that's it.
I personally don't think it's good for the body to drink large volumes, especially binge drinking. Hard on the liver, and for you it doesn't mix well with pred.

I'm also from a family of alcoholics and was married to one in my early adult years...I have emotional issues relating to that as well. Once a certain facial expression, drooped eyelids, smirk, slur of words..etc from anyone....the hairs on the back of my neck stand up.

I'm glad I can't drink.

Hope your c-scope goes well....keep us posted.
q
Posted 11/26/2010 12:31 PM (GMT 0)
Pauly-CoQ10 is an enzyme the body naturally produces, but it can produce less with age. Turmeric is just a spice that has a wide range of health benefits, including reducing the risk of colon cancer and healping with your colon inflammation at the same time.

Here's a link to a nice portal site that links to MANY different pages showing many different items that some particular study has shown with reduce colon cancer risk by some signifigant amount. Hope it helps, as I think almost any of them would be better than taking a baby aspirin every day.

http://discount-vitamins-herbs.net/colitis_ibd.htm
Posted 11/26/2010 7:10 PM (GMT 0)
thanks guys, defo do the prep with the straw and put it in the fridge, i myself have family who are alcoholics,and i c what it does to them it makes me so sad, im glad u got out of your situation too, lifes to short to b drunk half the time. well i just like a few now my wife and i look forward to a sat nite inn. BUM lotion already here lol.. levi thanks for the site and the tip i will defo look into it but one last question can one take to much supplements? thanks again q and levi i will let u know how i got on.
Posted 11/26/2010 7:18 PM (GMT 0)
That's something I've wondered myself about taking too many supplements. I would lean towards know if you are careful about your selection and note any unintended effects. Maybe someone else will chime in. The only thing I could think of is if you took too many that were hard on the liver, like Niacin, or something or something like that.
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