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anyone else had this reaction to the hydrocortisone enema +

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Ulcerative Colitis
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Posted 12/16/2010 11:55 PM (GMT 0)
my gums are terrible inflamed and bleeding. I'm also starting to get canker sores :(
Posted 12/17/2010 12:33 AM (GMT 0)
No, I am surprised you've had that response to an enema. Maybe it is unrelated? I get cankers sometimes too, they hurt!
Posted 12/17/2010 12:37 AM (GMT 0)
That's not a usual reaction to steroid enemas. Have you reported it to your doctor? I would phone him/her right away. / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 12/17/2010 1:13 AM (GMT 0)
I will call the doctor tomorrow morning. My mouth was perfectly fine until I started the enema and have been eating the same foods, too :( Day 6 of steroid and still bleeding a lot, c reactive protein elevated. I'm losing all hope.
Posted 12/17/2010 1:25 AM (GMT 0)
Don't lose hope. We are all in this with you. To be honest, the only thing keeping me alive to fight my UC is hope. With out that, i wouldnt be here. Even the smallest bit of hope is enough. I hope if I can't offer actual support I can at least give mental support. :-)
Posted 12/17/2010 4:55 AM (GMT 0)
What's the "dosage" listed on the enema...how much hydrocortisone in each enema?

How many have you used so far...over what period of time?

q
Posted 12/17/2010 5:27 AM (GMT 0)
you could have inflammation in your mouth. my GI said that you can get UC or crohns clear into your throat and mouth, even your eyes... maybe thats what it is?
Posted 12/17/2010 11:15 AM (GMT 0)
I had something similar happen to me last year. I was on vacation and I my gums just started bleeding. When I brushed and spit in the sink, it looked like I slaughtered someone. Since I was 1500 miles from home, I tried my best to take care of it until I got back. It last only about a week and a half. My gums never hurt really bad but they would ache sometimes. When I went to the dentist, all the symptoms were already gone and she was stumped, thinking that it was a herpes type infection of the gums. I never correlated it to being on the steroid enemas though which I guess could've been possible.
Posted 12/17/2010 12:34 PM (GMT 0)
No that never happened. This sounds more like too much blood thinner which your not on. They tell me to watch for bleeding gums and I just had my 6 month teeth cleaning and that did not even cause them to be irritated. Certainly not the H-enemas.
Posted 12/17/2010 1:33 PM (GMT 0)
I've done more than my share of steroid enemas over the years ... haven't really noticed that. I have had a bit of gum inflammation from time to time, but I haven't thought about it in relation to the enemas. I'll have to watch for that!

I had some canker sores in my mouth before my diagnosis. I'd been ignoring the rectal bleeding, and my dentist told me the sores could be a sign of lingering infection somewhere in the body.... so I went to the doc, had a sig. got referred to the GI... (and the rest is history....)

Alba, if the enemas aren't helping, or haven't kicked in yet, maybe it's the inflammation itself causing the gum issues?

Let us know what your doctor says!
And - hang in there!
Posted 12/17/2010 5:30 PM (GMT 0)
Curious if you're female and if you're near your period?

q
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