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Ulcerative Colitis
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Posted 12/18/2010 12:43 AM (GMT 0)
Hello Room,

I just went for a flex an everything was great normal looked healthy bio's came back with mild UC but not active it was a great feeling after 6 months of pred and playing the meds game. Now out of nowhere I have been getting attacks of urgency it comes out of nowhere an I can hardly make it to the bathroom sometimes. I'm currently taking 6-mp 100 mg and Calazal 9. For the first time I am very worried about where I go when I eat. Now this is all new to me even at my very worst I never had anything other then blood I would only use the bathroom once a day rarely twice I also always eat normal I never found anything that made it better or worse. An the past weeks I have noticed that I go normal once and then the second or third are urgent and loose. An my Doc finds all this a bit odd going with my results so he wants me to use Canasa at night, I used this when I first went to a doc about 3 years ago before I had full UC. It worked then to stop the bleeding but I still only went once a day. Are the any members's that have used Canasa for urgency?

Any Help would be great,
Tom
Posted 12/18/2010 1:38 AM (GMT 0)
Have you ever taken Bentyl? Sometimes this can help with the urgency. Do you have UP? Is that why you are using the Canasa instead of Rowasa?
Posted 12/18/2010 5:49 AM (GMT 0)
My most recent flex sig said I had mild UP (not active) yet lately I too have been having increased urgency. I used to go twice a day (even whilst my UP was actively bleeding), now I go around 4 (sometimes 5) times per day. My stool ranges from formed to mushy. This has all been going on for about 3 weeks. My GI and GP said it is likely to be spastic colon so i need to watch the foods I take as well as take OTC meds to relieve my colon spasams. My symptoms developed quite suddenly 3 weeks ago and apparently this is quite normal for IBS.
Posted 12/18/2010 11:48 AM (GMT 0)
Have you been eating more chocolate than normal? 'Tis the holiday season :-) or perhaps more coffee. Whenever urgency hits me out of the blue I always do a lookback in food/drink, remove the offender and use mesalamine enema to get back to normal.
Posted 12/18/2010 12:45 PM (GMT 0)
I just cant find one thing really different only thing I have been drinking is ice tea but it never has given me a problem before an its also decaf.

I just didn't know that Canasa could be used for urgency.

I have never taken Bentyl, what us UP? I have only been told I had UC through out an for right now its looks to be healed up.
Posted 12/18/2010 6:35 PM (GMT 0)
I think you need to do more research to actually understand how meds can work for you.

I would suggest you get on a rectal retention medication and try not to think that it's all about food.

UP is ulcerative colitis limited to the rectum.

REctal meds will help urgency since most urgency is caused from an inflamed rectum.,

The rectum should be dealt with regardless of how high up the extent....consider that's where is starts and ends while healing. The rectum can be most difficult to treat...hence most of us will encourage its use for treatment and tapered to maintenance.


q
Posted 12/18/2010 8:53 PM (GMT 0)
Thank You all very much
Posted 12/18/2010 8:55 PM (GMT 0)
I ditto the suggestion of a mesalamine enema over canasa.
Posted 12/18/2010 9:41 PM (GMT 0)
Could also be some ibs causing the urgency. You can also try Renew Life Intestinal Bowel Soother which was formulated by Dr Brenda Watson, I've been using it for yrs and it does wonders.

I third the recommendation for rectal meds for anyone with uc.
Posted 12/18/2010 9:58 PM (GMT 0)
     I had ulcerative proctitis, limited to the rectum only for twelve LONG years.  I did enjoy a few years of remission here and there (1998-2000 and then again after my bout in 2000, from mid 2000 - 2002).  After that, I flared yearly and after my second hospitalization in 08, almost constant flare.  6MP kept me in remission from 2000 to 2002.  I went the entire gamut, rectal meds, 6MP (seven years on that), Remicade (developed antibodies after 3rd infusion) and Humira (three months and no change).  The rectal meds just dripped right out when I flared.  I became prednisone dependent the last two years and decided to have the surgery...total colectomy and permanent ileostomy on June 28th.  Best decision (other than marrying my wonderful husband wink ) that I ever made.

     My advice is to try the meds but if they fail, seek out a good surgeon.  I did NOT have a j-pouch.   I am 64 yrs old and a long history with prednisone, my surgeon flat out refused me a j-pouch.  When I told him I had no problem wearing a bag, he was ecstatic because he knew I had a badly diseased rectum.  My colon only had minor diverticulosis but they won't just take out the rectum.  It was a long recovery, had some blips, but I can finally say I feel GREAT!  I went from taking 17 - 25 pills daily plus the rectal meds to taking 1 pill a day....Toprol for my BP and sometimes I wonder if I really even need that!

     Best of luck to you.  I hope you feel better.  The rectum is very stubborn to treat.

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