Joint Pain while on remicade

I had the exact pain you are describing ten days after my first infusion of Remicade. It hurt so much that I cried and I had to crawl around and my husband had to carry me down the stairs. Pain meds did nothing. I had no fever though. My nurse tried to tell me this was a normal side effect. No way could that type of pain be normal and something people would be willing to deal with. So I canceled my next infusion, met with a surgeon, and decided to get a permanent ileostomy. Fortunately, the Remicade pain did subside once the Remicade got out of my system roughly 6 weeks later. My guess is if you are experiencing pain that bad and a fever, Remicade is not a good drug for you to be on. You are probably having some type of reaction to it. It can possibly cause drug-induced Lupus also, which I got tested for but did not have. Everyone is different, some people do great with Remicade, others do not. Yes, surgery and ostomy supplies are pricey, but isn't Remicade pretty expensive too without insurance? My surgery went well except that my incision is still having some healing issues 8 weeks out due to being on Prednisone for so long. Even so, none of the pains I have had with surgery even come close to that excruciating pain from Remicade.

remi gave me joint pains too but Humira (though it seems ineffective now) so I would definitely try Humira before throwing in the towel.

I had the same thing. If it only lasts for a few days, it is probably just a reaction. Mine was lessened each day and gone in about 3 days. I told my doctor about it and he agreed it was a reaction that could be treated with premeds before each infusion. After that I would IV benadryl and prednisone before each IV and I never had a problem again.

Sometimes it can be something more serious so definitely mention it to your GI, but I think the more serious issues last longer and don't clear up in a few days like an infusion reaction.

Humira wasn't nearly as effective for me as Remicade.