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Does UC have its own marker, carried from family members? Considering HPI

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Ulcerative Colitis
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Posted 1/10/2011 4:19 AM (GMT 0)
Please forgive my ignorance on UC and all its complications, I'm just trying to do one day at a time. about fecal bacteriotherapy, if I am to consider this, does it have to be a member of your family, if they MAY have the possibility of UC themselves? I know my mother and sister have their IBS symptoms most of the time. Is there a definitive test that defines UC? I am guessing probably not hence the science behind this all.

Can another person donate this? I guessing they have to have your same blood type, etc? I don't know, your comments about this would be great!
Posted 1/10/2011 6:19 PM (GMT 0)
Good question.... and I don't know the answer. UC does have genetic markers, but whether one should be worried about those affecting a sample from a family member who has not yet been diagnosed with UC..... hmmm, not sure.
There are a whole lot of things donors might someday be diagnosed with and we just can't worry about that too much, on the one hand; on the other hand, we wouldn't want to potentially add specifically to our gut-related issues.

If I were to try fecal transplant I would try to find someone without IBS, I believe. Blood type....? Can you try a search for Fecal Transplat here on our forum? One long, long thread was called "I took the plunge" as a I recall.

Good luck!
Posted 1/10/2011 6:50 PM (GMT 0)
In theory, according to the Borody protocol, both you and your donor are supposed to get a battery of tests which would typically not be covered by insurance (they were not on ours) and cost a fortune.  I got my wife to be my donor and I barely tested myself for any of them items (seeing as I am not exactly going to infect myself), but even though it seems a bit silly to be testing a spouse with which one is already sharing every germ, I had her tested for about 80% of the items listed, and it cost around $1500 for all those blood tests (ouch!!).  She came out pretty clean- though some items are ambiguous grey areas because most of the healthy population will show antibodies indicative of exposure to something or another over the course of their life.

In the end, I discontinued the HPI after the second day, because it immediately resulted in a flareup for me that seemed pretty clearcut cause-effect.  I haven't whipped up the courage since to try HPI with another donor though I sometimes consider travelling and using a sibling as my donor- but the cost of those tests was so insane that I am reluctant to go to the trouble again.  My wife's stool may just not have been the greatest mix of probiotics- her stools tend to be soft and mushy although she does not have any diagnosed intestinal ailments.

 

Posted 1/12/2011 7:19 PM (GMT 0)
thank you for this guys!
i do recall seeing something about borody protocol which was why I was asking this question. it's another thought.

Update on myself: in a mild flare, blood, etc., minor compared to past.
Still didn't take the antibiotics for h.pylori, still debating but taking manuka honey on a little piece of bread on an empty stomach 20 minutes before eatingand chewing on raw cabbage a few times a day. Was thinking of trying oil of oregano, I never tried before but wondering if the "warmth" of it will exacerate or slow down the h.pylori.

And my eye problem was doing great, received prescription for garamycin eye drops but today, now the left eye, inside corner was a bit red this morning, but slowly going away this afternoon. Optometrist Appt tomorrow at 11:45 a.m.
I feel like my sinuses want to act up also. Geez, all this whining and complaining I'm doing, but it makes me feel better in this forum!
Posted 3/31/2011 4:38 AM (GMT 0)
I am trying the HPI now... I have not started hte infusions yet, still getting tested... anyone have any advice or questions/??? I saw Dr. Wettstein (Dr Borody's colleague in Sydney) and Im going off what they told me to do, said I have a 50/50 shot
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