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Sacroiliitis caused by UC

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Posted 2/16/2011 7:46 PM (GMT 0)
Hello, Ive been kinda struggling on and off with hip/SI joint pain caused by my UC. My joint specialist a little while back finally identified this nagging ailment as Sacroiliitis, meaning inflammation of the large joints due to inflammation of the bowels/intestines. Just wondering if anyone else out there shares this diagnosis and what they do to alleviate the pain. My UC's been pretty great for about a year now and my hips too, but its been a couple weeks now and the hip pain has unwelcomely returned.
Posted 2/16/2011 9:00 PM (GMT 0)
I just posted something about this a few days ago. I have pain in my SI joint too but I haven't been "diagnosed" yet. It is a known extra intestinal manifestation of IBDs. Red34 and others have problems with this too.
Posted 2/16/2011 9:15 PM (GMT 0)
Yes, I've had SI pain for a loooooong time. An MRI 3 years ago showed arthritic changes in my left SI. An MRI last year showed arthritic changes in both. I have a chronic hamstring tear at the muscle origin, probably due to the dysfunction in my SI. It is not fun!

However, I am 48 years old and until I was 45 I jogged for fitness, even doing a half-marathon when I was 30. I wear an SI belt to support my pelvis when I jog. I'm supposed to be doing core strengthening exercises to increase the muscle strength around my pelvic girdle so the joint doesn't move around so much, but it's often difficult to maintain this. I recently started doing a "boot camp" program to keep my strength training up.

I do gentle yoga once a week, too, to maintain general fitness and flexibility.

There are stretches and adjustments you can do yourself to address muscle spasms around the SI joint. You can probably find out a lot via an internet search, or make an appointment with a physical therapy group to get some ideas.

I tried cortisone injections to the SI and got no relief. It might be a good idea for you to see a rheumatologist if the joint pain continues to be a problem.
Posted 2/16/2011 11:33 PM (GMT 0)
Yeah, I have SI pain, though I haven't pursued a formal diagnosis. I've been to the chiropractor for it on and off for years.
Posted 2/17/2011 12:26 AM (GMT 0)
I've had SI issues for about 4-5 years or so. I received two cortisone injections in the SI but found no relief. Now I use either a heating pad or ice to help alleviate the pain.

But I agree that by going to a physical therapist, they can show you some good stretches that can help. A chiropractor also helped me but if you go the chiro route be sure to do your homework and find a good one.
Posted 4/13/2011 2:52 PM (GMT 0)
Hello.  I too suffer from sacroiliitis and had ulcerative colitis as a teenager (had my colon removed with a jpouch, so technically, no longer have UC).

My rheumatologist said that the sacroilitis is related to the colitis.  He recently did tests for ankoliyn spondylitis (spelling is totally off) as they are both immune diseases where the immune system attacks itself.  Thankfully the test came back negative for this, but if it did show this, there are meds you can take that supress the immune system.

For temporary relief, I got a cortisone shot on both sides, but to be honest, the affect didn't last that long.

For now, I simply take celebrex when I'm really bad...but only take when really needed as I don't want to irritate my stomach (catch-22).   So to manage, I avoid the triggers...avoid sitting for long periods if I can, watch exercise as this can cause a flare up, if walking lots then take lots of sitting breaks, etc.

Another thing is I avoid lifting heavy things, which is hard as I have a daughter under 2.  When my husband is home he lifts her but I hate it as he's the primary care giver when we're both around and it's a horrible feeling that I cannot care for my daugher 100%.  It's not that I cannot lift her...but one wrong lift and I could be out of commision for month (i.e. if a full flare up with the shooting pain).

I find it very frustrating as my issues were suppopsed to be gone many years ago with the colitis and I like to be active...which I cannot.

Good luck to you.

Post Edited (Lu2011) : 4/13/2011 9:02:10 AM (GMT-6)

Posted 4/13/2011 4:31 PM (GMT 0)
Yes, I have problems also. In addition to the mobic I take for arthritis, my therapists and trainer have shown me some good gentle stretching exercises to help relieve the pressure. It's absolutely miserable when it acts up, though.
Posted 4/13/2011 4:36 PM (GMT 0)
Am sorry you suffer too.  Do you find physical theraphy helps?  My rheumatologist suggested it, but I tried it years ago and it did nothing (plus it's hard to find time with 2 kids).

I know...the shooting pain is awful.  I'm pretty bad now too that even on "good days" I'm in pain (back/joint hurts)

Posted 4/13/2011 6:17 PM (GMT 0)
I have this too; I go to a massage therapist. I couldn't believe the last time I went she just concentrated on my glutes and the hip areas and what a difference it has made.

Posted 4/13/2011 6:26 PM (GMT 0)
Add me to the list; I also suffer from pelvic floor pain since getting UC
Posted 4/13/2011 8:27 PM (GMT 0)
there is a strong corellation between UC and sacroilitis or Ankylosing Spondyltis or Undiferentiated Spondiloarthropaties...

They are all auto-immune diseseas and they seem to react to the same triggers...
Also anti-tnf's wich work for UC work well on AS too.

I control both of them trough diet. Pretty well.
Posted 3/20/2013 10:14 PM (GMT 0)
hi all, i live in england, am waiting for an mri , suspected sacrueliitis, however, im not sure it is. i hurt everywhere, wrists, elbows, shoulders, feet, but predominantly my bum and legs, i also have tightness in my chest , though not all the time. Does anyone else suffer these symptoms?
Posted 3/20/2013 11:18 PM (GMT 0)
+1 to Alinus, right on the spot.

See if PT can help you and how it is developing. May be you should see a pain management specialist because AFAIK, there is not much you can do about it.

@Alinus,
You are just 31 (M/F ?) and you already have Ankylosing spondylitis diagnosis!! What are you doing about it and how it is affecting your day-to-day life?
Posted 3/21/2013 1:08 AM (GMT 0)

Yes, I have ankylosing spondylitis, tested positive  in 2011 for the HLA-B27 Autoimmune gene.  It was actually an AS flare that kicked my first “real” UC flare (although small flares since 2010).  I fell down a flight of stairs on December 26, caused extreme pain for my AS, I started taking 12-14 advil a day until January 20…that’s when the constant D, blood, pain started.  On January 24 I had a cortisone shot into my hip joints, haven’t had any pain in my hip/back since (thank God).  But I have found (for me) that icing helps more than heat.

Posted 3/21/2013 11:03 AM (GMT 0)
I had sacroiliac joint pain that shifted from side to side. I had it about 1 or 2 months before U.C symptoms/diagnose.

The first week of it, it was very painful and had to lie down alot.

Although I was and still am kinda certain I developed it from getting back into weight training, after along period. Because i've read a cause is a lack of use or over use, and felt like I over stretched it one day. I toke 2 weeks of anti inflamitories and thats when I saw tiny blood on toilet paper, but I duno cause I had a hemroid and used to wipe to hard back then to.
When I started prednisone it went away with in a month of two.

Is there any hard evidence/studies to suggest SI joint pain and U.C are related?
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