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does anyone have IBS or celiac and UC?

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Ulcerative Colitis
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Posted 3/30/2011 6:09 PM (GMT 0)
I notice even when i am not flaring, I get EXTREMELY bloated, some gas.  I know I am lactose intolerant so i avoid that.  I also get stool that sits in my rectum, i think its called an incomplete bm? I can't pinpoint a specific food at this point.  Whats weird is I can be severly bloated and uncomfortable and still have cravings for something to eat, either sweets or a snack type food like chips or fritos.  does this sound like anything? I am short, and a regular weight, but when i get that bloated my pants dont fit, i just want  to be in sweats as soon as i get home from work.

 

Posted 3/30/2011 7:33 PM (GMT 0)
Are you still taking all that fiber every day? That stuff made me blow up like a balloon.
Posted 3/30/2011 8:21 PM (GMT 0)
I wish I could eat fiber, it throws me in the bathroom all day with the worst gas ever! There are also some sweetners in some foods that give me terrible, terrible gas
Posted 3/30/2011 9:44 PM (GMT 0)
Yes, UC and IBS... I find the Bowel Soother and Intesti New capsules from RenewLife are excellent, been using them for years now
Posted 3/30/2011 9:47 PM (GMT 0)
Yes, UC and IBS... I find the Bowel Soother and Intesti New capsules from RenewLife are excellent, been using them for years now. I'm also lactose intolerant and avoid most all dairy; there are some cheeses that are very very low in lactose ie Parm, Swiss, Romano etc. Bryers also make a lactose free vanilla ice cream.
Posted 3/30/2011 10:42 PM (GMT 0)
I have both UC and Celiac. I was diagnosed with both of them at the same time back in 2006. I started an extremely strict gluten-free diet and though it helped a little bit with UC related bloating, that was about it. It did nothing to get me in remission, and in fact, I had a severe flare in September and ended up getting a permanent ileostomy in November. Surgery has made me feel much, much better! One of the things that I love about it is that I no longer feel so bloated. I used to look 6 months pregnant sometimes and I have a really thin body frame. Hated that.

However, for non-UC related stuff, the gluten-free diet has helped a lot. I used to be plagued with asthma and sinus infections and both of those completely went away after going gluten free. I still stick with the gluten free diet post-ileostomy, as Celiac affects the small intestine and I want to take good care of that... it is all I have left:) Not to mention that gluten may be related to other auto-immune disease stuff, and I don't want to open a hornet's nest by eating gluten when I know my body produces antibodies to it (I had a positive antibody blood test for gluten sensitivity).

I will say that having to be on a strict gluten-free diet made me realize that I did not want to try the SCD diet. I felt like I already had enough difficult food restrictions and didn't want to deal with any more.

Anyway, you can get the blood test to see if you may have a gluten sensitivity. There are very few false-positives, though sometimes the test can be false negative. In that case, you can just try the diet and see if it helps anyway.
Posted 3/31/2011 6:10 PM (GMT 0)
Yes, I have UC and gluten sensitivity. Suffered with IBS for years before the UC diagnosis.

I recommend you check out the book The False Fat Diet. It talks about food allergies and sensitivities and how they cause water retention, gas and bloating. It also tells you the most common offenders (wheat, dairy, peanuts, sugar, etc.) and offers different levels of diets to help you pinpoint what your trigger foods are.
Posted 3/31/2011 10:07 PM (GMT 0)
Yes. IBS and IBD. I don't have any IBS symptoms as long as I avoid foods and beverages high in fructose. This includes food/beverages containing HFCS.
Posted 4/1/2011 3:09 AM (GMT 0)
I find that probiotics help me with gas and bloating. I know for some people that works the other way but if I'm gassy its often because I forgot my UFCC.
Posted 4/1/2011 3:37 PM (GMT 0)

thanks everybody so far for the responses:

Fiber-I am about to run out of my fiber, so maybe i will goa  week or so without it and see if its the fiber, although i suspect not.  I think its food related, since i get it after lunch and dinner and i am only taking the fiber with dinner.

bbc:  What is in the bowel soother and intestinew capsule?

curious about the blood test for gluten sensitivity.  Is this a reliable test, i heard there are alot of false negatives.  do i ask my regular dr to test me or me gi dr? 

thanks for the book rec, false fat, will look into it

Posted 4/2/2011 1:06 PM (GMT 0)
The blood test is reliable. Generally you have that first and then they do an endoscopy which shows blunted villi. My regular doctor suggested it because I had various GI symptoms. I didn't even know what gluten, Celiac or UC was at that point. Just knew I was having stomach problems and rectal bleeding and had been for about 5 years at that point. I had been to numerous doctors and had even gotten colonoscopies and no one could tell me what was wrong. Then in 2006 I moved to a new state, got a new doctor and she was the one who started making all the connections and ordered the blood test. Once that was positive she referred me to a GI doctor. I think either of your doctors could prescribe this test.

I had the positive blood test, but my endoscopy wasn't as conclusive. Still, my doctor felt I should follow the gluten free diet permanently anyway just to avoid problems in the future since the blood test showed that my body was producing antibodies to gluten which isn't a good thing and can cause other conditions besides Celiac. I had a colonoscopy the same day I had the endoscopy and that is where it was revealed I also had UC which is why I had been having the bleeding. Generally folks with Celiac don't have bleeding.

The test is called the Anti-Tissue Transglutaminase (tTg) IgA. There can be false negatives. If that happens, sometimes people just try the gluten free diet anyway to see if they feel better. There are very few false positives though. Do not go gluten free before taking the blood test or getting an endoscopy though, as that will alter the results and may cause false negatives.
Posted 4/2/2011 3:33 PM (GMT 0)
thanks blue heron, i am going to request the blood test for gluten.  i have had endoscopys and they only ever saw esophagitis.  could that be a symptom ?

princesa, ordered the false fat book, it was only $4 used through amazon, looks good

i feel like something else is going on, cause i have these other symptoms even when my uc is under control

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