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To Boxermom2 your questions on LDN

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Ulcerative Colitis
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Posted 4/6/2011 7:45 AM (GMT 0)
Boxermom2,

LDN is working on a very individual plan, meaning, it kicks in between 1 day after ridding a few symptoms or all, and sometimes ridding them gradually during the first year.

Getting increased diarrhea may be a symptom of
a) a need to use transdermal cream instead of the pills
b) a shift in the immune system sometimes leads to a candida overgrowth

getting rid of candida: order s. boulardii a yeast eating up candida bacterias.

Your having u.c., why don't you use a mild maintanance medicine like Asacol with LDN, they are doing a great job together. turn
Posted 4/6/2011 5:37 PM (GMT 0)
I am already on 12 Asacol a day. I don't think the Asacol helps me but my doctor never changes it. Today is one week on the LDN. I can't tell if it is helping yet or not.
Posted 4/7/2011 9:42 PM (GMT 0)
I think the LDN is making me feel sicker than I was.  I called today to see about trying the cream.  If not I may just stop it.  Not sure I can take it for the next four weeks to see if it starts to kick in and feel this way.  Wondering if I should go straight to the Imuran.  Anybody try Cimzia?
Posted 4/11/2011 12:06 PM (GMT 0)
Boxermom,

I believe the diarhrea you are experiencing may be due to a reaction to the LDN. Are you on the LDN that has avicel filler or hypoallergenic formulation?

Many people cannot tolerate the avicel filler and get diahrea and stomach cramps, and headaches. I was one of them. I lost 5 weeks to LDN, first 2 weeks to oral LDN with avicel filler, which gave me terrible stomach pains, diarhea, and headaches, then I switched to hypo-allergenic formulation, but after 3 weeks didn't find a great deal of difference. My pharmacist finally told me I wasn't absorbing the LDN, so I switched to the Transdermal LDN. AND finallly after 4 days of transdermal LDN, I started noticing improvement: my bleeding went from a 10 to a 3. And then a few days later, it went down from a 3 to a 1. Now, third week into Transdermal LDN, my bleeding is at a ZERO.

So perhaps, you may want to consider and discuss with your pharmacist, which formulation of LDN you were given (i.e. avicel filler or not?), and ultimately, if you suspect you have any absorption issues at all, you may want to consider going on transdermal LDN.

Let us know of your progress.

Take care :)

Posted 4/11/2011 1:29 PM (GMT 0)
I pick up the cream today. Hoping it works.
Posted 4/11/2011 10:01 PM (GMT 0)
I know that 'transdermal' means absorbed thru the skin, but just where on the skin is this cream applied?
Posted 4/11/2011 10:29 PM (GMT 0)
I am not sure I have read you put it on the inside of your arm by the wrist.
Posted 4/12/2011 2:27 AM (GMT 0)
Transdermal means absorbed by the skin and in this case, via a cream. It goes right into the bloodstream, bypassing the gut.

You apply a small amount (dosed) to the under side of the forearm, adjacent to the wrist, and you alternate wrists, i.e. apply on the left wrist area, then the next night apply on the right wrist area.

Also, it's important to apply after 10 pm.

Let me know how you make out with this.

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