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No active disease in colon, yet still symptomatic.

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Ulcerative Colitis
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Posted 4/10/2011 9:51 PM (GMT 0)
A recent colonoscopy showed no findings of active disease. However I still never have formed stools, get cramps, certain foods bother my stomach.

What is the deal? Is it just from the prior inflammation and now my colon will never function normally again like it did a long time ago?
Posted 4/10/2011 9:54 PM (GMT 0)
Did you GI mention that you could have IBS? When I was having symptoms and very minimal inflammation, my GI suggested IBS. You could also have a food intolerance. Have you tried modifying your diet?
Posted 4/11/2011 1:21 AM (GMT 0)
Do you take metamucil daily to help with forming and bulking the stool?  Probiotics also help for that and should be taken daily even a couple times a day.  I agree with the foods it could be something your eating that is bothering your stomach.  I find if I eat to much lettuce especially romaine or the mixed greens my stools are very loose.  Lactose is another thing that I need to avoid. Processed and packaged foods I totally avoid.

 Everyone is different so you might want to keep a journal of what your eating and how you feel after.  Many of us here have UC and IBS, I know I certainly do.

Posted 4/11/2011 1:57 AM (GMT 0)
That is how my scope went a few years ago. Absolutely no sign of disease activity but I was still having issues. My doc said I had IBS in addition to Uc. If you're not flaring but are having IBS issues, it might be wise to up the fiber a bit. And if you are still cramping, you can ask the doc to prescribe an anti-spasmodic such as Bentyl.
Posted 4/11/2011 3:26 AM (GMT 0)
That can happen for a number of reasons, including the fact that UC tends to thin the mucosal layer of the colon over time. Try adding a serving of plain boiled white rice daily to your diet for a couple weeks to see if that helps to firm up bms. Keeping a food diary for a while can also help you determine any irritants or intolerance so as to avoid/eliminate those items from your diet. I use lactose-free milk and avoid carbonated drinks and caffeine, which really helps calm my colon. Most of us UCers find out by trial and error what works best in our own digestive tract and helps us to achieve/stay in remission. Think of it as a gradual learning process ... / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 4/11/2011 1:53 PM (GMT 0)
How certain are you of the UC diagnosis? My first GI called my illness UC, but a few years later I changed docs and things pointed more towards Crohn's. I changed my 5-ASA from Asacol to Pentasa to get treatment higher in the GI tract and suddenly had formed stool. It was quite a change for me.
Posted 4/12/2011 10:16 PM (GMT 0)
I know its UC, i have had it for over 15 years with multiple doctors and biopsies... I was just really surprised my most recent one said there was no active disease when so many foods seem to give me symptoms that I experienced previously when it was active... When I was in remission about 5 years ago nothing bothered me. Now tons of foods, bread, milk, beer, caffinie, alcohol, all bother me and give me symptoms...
Posted 4/13/2011 1:36 AM (GMT 0)
I am the same. I think it is my IBS but it is always unnerving amd demotivating when I see symptoms because I have no idea if it is my UC or IBS. Over time I think I'll get better at reading my symptoms but since I was only diagnosed last year I am still unable to tell the difference.
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