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Posted 5/21/2011 6:20 AM (GMT 0)

I'mCured said...
Arggg... you are backing me into a corner here a little bit ;) I really think that most or all people's UC could be cured the same way mind was or very similarly. Parasites are a huge factor that are totally overlooked by GIs and the diets of so many people are horrible and they don't know the first thing about correcting it.

Please do a search on Google for:

parasites UC site:healingwell.com

for:

food journal UC site:healingwell.com

and for:

genes UC site:healingwell.com

You will see that we all know about parasites, diet, and genetics in regard to this disease. And most of us have checked all three and then some. Personally, I do feel that some people are genetically predisposed to this disease and some aren't. I'm one of those people who aren't. I believe I got this disease due to abusing antibiotics. Since some in the medical community define UC as colon inflammation when all external factors have been ruled out, and since diet and antibiotics (and even parasites) are considered external factors, I will say I have IBD instead of UC. I was diagnosed as having UC though.

Post Edited (subdued) : 5/21/2011 1:09:39 AM (GMT-6)

Posted 5/21/2011 7:05 AM (GMT 0)

notsosicklygirl said...
I am the same way Eva. ...it's difficult to know exactly where things come from.

Same here.

I'm thinking of becoming a vegetarian. I already cut down my meat to only organic fish and chicken. Mostly, I eat veggie burgers, which are considered packaged.

My boyfriend grows our green beans, squash, and pumpkins. I get my spinach at Whole Foods. He doesn't like spinach, and I eat it year-round due to it helping my IBD.

I buy organic eggs, butter, milk, cheese, breads, rice, noodles, plain oatmeal, bananas, strawberries, carrots, pineapples, ...

I don't add condiments to my foods anymore. I've gotten used to it. I do eat mild curries though, owing to turmeric being anti-inflammatory.

I make my own Chai. All the ingredients come from Whole Foods. I don't add sugar to my Chai.

I usually bring some snack food (such as bananas) that I can eat to parties just in case. I also examine the ingredients of foods at parties. Usually, I'm only able to eat home-cooked baked goods. If I can't eat it, then I don't. HFCS gives me severe diarrhea; so it's not hard to keep away from foods at parties if I have to.

I don't eat potato chips, pretzels, candy, ...

I will bake cookies once in awhile. I make them from scratch, using organic ingredients.

Mind you, after my divorce, I was consuming only chocolate and HFCS bubble teas. Life has changed... Having experienced what it's like to bleed out the butt will do that...

Post Edited (subdued) : 5/21/2011 1:34:10 AM (GMT-6)

Posted 5/21/2011 7:24 AM (GMT 0)

I'mCured said...
...I do know that the way I was eating and the supplements that I was on are specifically designed to flush out parasites and that is exactly what they did. I know everyone wants the hard evidence here but you are just going to have to take me word on it.

After my first flare, I did a colon cleanse that was supposed to flush out parasites. I had lived abroad in Asia; so parasites was a possibility. Six months later, I had my second, very serious flare.

I've seen the inside of my colon. I watched the whole time my GI did the sigmoidoscopies and colonoscopies. I didn't see any parasites.

Were there any before? I don't know. But parasites are not a factor in my IBD.

I know parasites can be a factor, but I don't think it's a factor for most people who have UC.

The medical community is finding out that bacteria play a strong role, either due to external factors or genetics. They don't really know how bacteria is playing a strong role; only that it does.

Post Edited (subdued) : 5/21/2011 11:25:25 AM (GMT-6)

Posted 5/21/2011 1:27 PM (GMT 0)

subdued said...
Mind you, after my divorce, I was consuming only chocolate and HFCS bubble teas. Life has changed... Having experienced what it's like to bleed out the butt will do that...

:-)

Thank you for making my day. OT but it had to be said.
Posted 5/22/2011 12:47 PM (GMT 0)
Hi ya im cured just wanted to let you know that your not the only one who is on to this parasite thing. Im doing the

Biamonte Center program. he treats candida and other paraisties. I ve been doing the program for a while. It took me ages to get rid of the mucus and i havent finished the program. im still on a very strick diet of no carbs. my diet is more strict than yours. I think that some people do get a way with letting more carbs in their diets that others. I also think it  depends on you some people heal quicker than others. Ive been on a very strict low carb diet for over a year. and i am still on it, but i think i will be able to increase my carbs in the not to distant future. Biamonte said he already wants me to increase them.

Im also not convinced of the whole autoimmune thing. I think that doctors push drugs for the sake of it. My last doctor was trying to push prednisone even though i was only having a bit of mucus. I wasnt even using the mesalzines. I dont think it is their fault though i think that when they go to med school they are trained this way i dont think they know any different.

Any way ill check out what your doing. Sorry i didnt read all the posts do you have a web page for what you are doing and the program you are involved with. im sure you posted it but ive only read a bit of your story so far and there are alot of posts to go trough.

also i did think that Biamonte was expensive but now reading a bit of your story i realize he isnt really i didnt know that remicade was $12,000 surly you can get it on medical insurance. we here in the Uk are goverment funded so our durgs are alot less. That is extortionate. If any one is paying that for their drugs please try this Biamonte program you will pay alot less and it is not for the rest of your life :)

Posted 5/22/2011 3:15 PM (GMT 0)

Dear I'm Cured or anyone else that might be able to help. I was so inspired by your story. I just don't know if your cure applies to me. I'm a 53 year old female and I was diagnosed with Acute Colitis in Jan. of 2010 after having  2-3 months of diarrehea & my GI reviewing a previous colonoscopy. They said the colitis was flared up from an infection in my stomach. No meds were given. On May 16, 2011(1yr 4mos later) my colitis flared up again and I'm going on my third week of severe diarrehea. I have an appointment set with my GI on Monday. If you think your cure applies to me, what are the dosages of the aloe juice, coconut oil, etc per day and what brand name of yogart do you buy and is it from a specialty store or just a grocery store? I hava a juicer so what types of fruit do you juice? Also, I've been a big meat eater in the past, do I need to eliminate all meat from my diet? How long before I will see results? Desparate for a solution & ready to go to the store now & get started.

Posted 5/22/2011 4:17 PM (GMT 0)

Hellokitty said...

Im also not convinced of the whole autoimmune thing. I think that doctors push drugs for the sake of it. My last doctor was trying to push prednisone even though i was only having a bit of mucus. I wasnt even using the mesalzines. I dont think it is their fault though i think that when they go to med school they are trained this way i dont think they know any different.

Me either. The body attacks itself for a reason. I think most doctors admit to this nowadays. There is simply too much evidence that factors such as bacteria, genetics, parasites,... can cause us to get this disease.
Posted 5/22/2011 4:19 PM (GMT 0)

Ginger Bee said...
Dear I'm Cured or anyone else that might be able to help. I was so inspired by your story. I just don't know if your cure applies to me. I'm a 53 year old female and I was diagnosed with Acute Colitis in Jan. of 2010 after having 2-3 months of diarrehea & my GI reviewing a previous colonoscopy. They said the colitis was flared up from an infection in my stomach. No meds were given. On May 16, 2011(1yr 4mos later) my colitis flared up again and I'm going on my third week of severe diarrehea. I have an appointment set with my GI on Monday. If you think your cure applies to me, what are the dosages of the aloe juice, coconut oil, etc per day and what brand name of yogart do you buy and is it from a specialty store or just a grocery store? I hava a juicer so what types of fruit do you juice? Also, I've been a big meat eater in the past, do I need to eliminate all meat from my diet? How long before I will see results? Desparate for a solution & ready to go to the store now & get started.

Hi Ginger Bee.

I, too, get infections easy. Did your GI say what caused the infection? If it is bacterial, perhaps fecal transplantation and probiotic enemas might help. They both put bacteria back in the colon, bacteria that can fight the bad bacteria.

I haven't needed to try it (due to fecal transplantation putting me in remission), but some people use vitamin-E enemas and aloe vera enemas. Have you tried these?

Post Edited (subdued) : 5/22/2011 10:24:37 AM (GMT-6)

Posted 5/22/2011 4:34 PM (GMT 0)

subdued said...


Please do a search on Google for:

Thanks! I never realized I could focus my searches within a specific site with the use of 'site:healingwell.com'.
Posted 5/22/2011 4:41 PM (GMT 0)

Hellokitty said...
remicade was $12,000

Funny here I am looking at all my hospital bills from last year and it is near $12,000 so effectively that is the cost of prednisone to me. I was over the UC flare by the time the high dose prednisone contributed to a stroke. I was still tapering down a month later.

I think corn syrup etc feeds the bad parasites/bacteria, I can eat an entire box of natural pop tarts that do not contain syrup etc & refined sugar and actually have fiber in the flour and it has no effect on me at all. I worked 65 hours for my client last week and was so busy I think I ate 2 boxes in one 15 hour work day. No effect on me at all, just like eating spinach, fish etc.

I have to eat carbs a lifetime of high protein muscle building diet leaves me with bad kidney scores which come down by eating carbs.
Posted 5/22/2011 5:46 PM (GMT 0)
i dont know aguywithuc everyone is different that is so true. i ve seen people on line who have said in 6 months they cured uc and now have carbs in their diets. for me it has been alot harder. its been so hard to get rid of the mucus in all honesty in total its taken me a year. and im not going to say its not going to come back at this point im not saying i am cured. I not seeing at present and i havent had any bleeding in ages. but for me i had to cut everything out to find the real tiggers. i had to be so strict and the foods that i thought that didnt cause me problmes really did. I used to think i was fine with pasta and that meat was my problem. I was wrong. I used to think i could get away with things that didnt include dariy and go for the sainsburys dairy free range again i was wrong. when i really cut everything down i found it was the sugars that was causing the bleeding but i had to do it for a long time. and i had to cut everything and go down to the bare minimum. meat and vegs only for a long time. Then of course diet alone did not work and that is why im doing this program. Im not saying im cured by any means at the moment i am in remisson. I am begining to think though with the cost of the drugs why not try these natual things they are cheaper, and to be honest most people get quicker results than i have. Dont know why but it seems to be the way.


I want to add some carbs though now, i am going to speak to biamonte and see. i did the raw diet and i miss those smooties they were so nice in the morrning. :) loved them.
Posted 5/23/2011 2:07 AM (GMT 0)
Subdued said;

My GI said my infection turned bacterial. Did your infections last 2 months or are my extra lengthy? Your suggestion of trying the probiotic enema seems like a good one. Do you think it would be a OK to do the enema while in a flare up? Can you buy these enemas on line or can you get them in a store some place? Thank you for your help!
Posted 5/23/2011 4:03 AM (GMT 0)

Ginger Bee said...
Subdued said;

My GI said my infection turned bacterial. Did your infections last 2 months or are my extra lengthy? Your suggestion of trying the probiotic enema seems like a good one. Do you think it would be a OK to do the enema while in a flare up? Can you buy these enemas on line or can you get them in a store some place? Thank you for your help!

Sorry. I wasn't explicit enough. I get infections easily due to having abused antibiotics, but my colon inflammations aren't infection related.

Fecal transplantation (FT) is mostly used for C-diff, which is a colon infection. Even though I didn't have a colon infection, I did FT to replenish the fecal bacteria I lost from abusing antibiotics. It worked.

Probiotics also work for me, but not nearly as well as FT. There are way more strains of bacteria in feces than in a probiotic pill.

If you want to try FT or probiotic enemas, there are many ways to go about it. I usually don't use much. So I just need a typical medical syringe that can be bought at the drug store <http://en.wikipedia.org/wiki/Syringe>.

There is a great deal of information on the topic in previous posts. To find them, do a Google search for:

fecal transplantation UC site:healingwell.com

and

probiotic enema UC site:healingwell.com

You can also find information on wikipedia.
Posted 5/23/2011 1:27 PM (GMT 0)

I'mCured said...
:) Well served Dr. A. 60mg of prednisone had me pissing the bed regularly at 3-4am. Plenty of Enemas along the way too. That was a great time with my fiance! That aside, I did misunderstand some of your earlier postings but now I have a much more clear understanding of where you are coming from. I apologies for coming across as naive or ignorant. I just know that there is not a lot of good information floating around when it comes to diet and parasites and frankly, I am the anomaly here since I seem to be the only one on this forum stating that I have been to the depths of hell with this disease and made it out on top. Its lonely up here and I want others to join me. Not being able to leave the house, go out with friends, or a vacation is a terrible feeling. No one should have to go through that because they fear going in their pants just like I had so many unpleasant times before.

No, you are not the only one that has been through hell on this forum. Why don't you READ other threads and see what others are going through.

With all due respect, now you are coming off like you are the Messiah brought here to cure everyone. Don't you GET IT. Everyone with this disease has to manage it in a way that works for THEM, not YOU.

And as far as this forum goes, I started posting in January, when I had a bad flare. The information I've been reading and continue to read is educational and helpful.
Posted 5/23/2011 1:36 PM (GMT 0)

Hellokitty said...
Then of course diet alone did not work and that is why im doing this program.

Could you elaborate on that ?

Thanks
Posted 5/23/2011 2:41 PM (GMT 0)
Hi I'm Cured,

Thank you for taking the time and encouraging us, I do believe we all can be healed but in different ways. I've been tested for parasite from a well known company in Arizona, negative, my Lyme's test came back negative for parasites. Can you please post the supplements you took to rid yourself of the parasites. I still couldn't mind tryinig something for it, naturally of course like oil of orgenano.

Thanks

Posted 5/23/2011 7:19 PM (GMT 0)
Michelej...it seems HELL is subjective..lol. I doubt I'm cured is here for anything but goading.

q
Posted 5/23/2011 8:13 PM (GMT 0)
We need to take this post, as with many others, with a grain of salt. Anybody who proclaims to have the "cure" for this disease (other than the removal of the colon) is selling the same snake oil as anyone else claiming to be able to cure *insert disease name here*. Not that they are purposely trying to mislead or hurt anyone (I am certain that most aren't), but most effects are going to be temporary and of a placebo sort.

I have a friend who did the same thing. She has Crohns. Saw a nutritionist, naturalist, what have you. She was "cured". No more pills, no more inflammation. Then, within a few months of no meds and a few days here and there of eating the "wrong" foods, and she had a flare up like no other. These so-called "cures" are rarely permanent, and sometimes dangerous. I've been told to go on fasting diets, juice diets, meditation retreats, and who knows what else. I've seen an accupunture doctor, done yoga, meditated, prayed, and let me tell you, my UC is still here (as it likes to remind me on its somewhat regular visits). I've changed my diet, I've taken a variety of pills, and tried to reduce my stress and increase my exercise. I still have UC.

I understand what the OP is trying to do. But, OP, I suggest that in the future you think twice before posting something as a cure. Just because it is working right now for you, doesn't mean it's going to work for everyone. Please don't give people false hope.

To those who are reading this and thinking that you've finally found a cure: Please be careful with whatever you decide to change. I would be very cautious about getting rid of your GI doctor as well, as you want to make certain that this chronic illness is consistently watched, and that you are taking the best possible care of yourself.
Posted 5/23/2011 8:30 PM (GMT 0)
Well said Girlzilla.

Posted 5/24/2011 2:18 PM (GMT 0)
Well said Girlzilla, with a lot of maturity and experience, all at a young 21!

Sue
Posted 5/24/2011 4:28 PM (GMT 0)
I have dabbled in lots of the remedies suggested here, and it seemed each might have helped for a little while -- from days to weeks -- but then it would go back to what is was (I was always in a mild flare, and had big flares once or twice each year).
Remicade is what I needed, it stopped my bleeding every day, plain and simple.
Posted 5/24/2011 4:44 PM (GMT 0)
Hopefully you are cured and not just in remission. Being ill sucks. The people who aimlessly stumble down the street while mumbling to imaginary demons and having hallucinations...they're psychotic. I figure you're just happy to be feeling well...God bless you! Stay well! Thanks for the laugh to whomever mentioned flora living in one's colon...I began pondering if it's not both flora and fauna given the odd nature of some plant-like critters...and let's not forget our fungi friends...all God's creatures screwing up my innards! smilewinkgrin
Posted 6/5/2011 2:28 AM (GMT 0)
I am not here to argue or defend my view points. All I can do is provide you with my story and tell each and every one of you that this is what worked and healed me and got my life back. I was not a functioning person when I was ill because I was very, very sick. I could barely leave the house. I am not sick anymore and will not be again. If you'd like more information, I obviously am glad to help and want to. If you want to shoot holes through what saved my life, I am not going to respond anymore. As stated previously, if anyone would like to meet with me personally I live in Albany, NY. Thanks for all your input so far.
Posted 6/5/2011 3:59 AM (GMT 0)
I'mCured, could I get your email? I'm interested and I have a few questions.

I've been on REALLY strict diet since my discharge and want to discuss further into your view on exercising while being sick to achieve remission/absorb food efficiently.
Posted 6/5/2011 7:54 AM (GMT 0)

I'mCured said...
I am not here to argue or defend my view points. All I can do is provide you with my story and tell each and every one of you that this is what worked and healed me and got my life back. I was not a functioning person when I was ill because I was very, very sick. I could barely leave the house. I am not sick anymore and will not be again.



Yes. That's one of the main reasons for this forum--to tell each other our experiences with this disease.

I'mCured said...
If you'd like more information, I obviously am glad to help and want to. If you want to shoot holes through what saved my life, I am not going to respond anymore. As stated previously, if anyone would like to meet with me personally I live in Albany, NY. Thanks for all your input so far.



Be careful. First this person was claiming that he had the "cure" to UC and that you would be cured too if you followed his protocol. Now he is asking you to email him. This person's posts are sounding questionable. Be careful, especially if this person starts asking for money if you email him. The whole idea of this forum is to tell each other our experiences, not to get people to email us for information.
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