Open main menu
☰
Health Conditions
Allergies
Alzheimer's Disease
Anxiety & Panic Disorders
Arthritis
Breast Cancer
Chronic Illness
Crohn's Disease
Depression
Diabetes
Fibromyalgia
GERD & Acid Reflux
Irritable Bowel Syndrome
Lupus
Lyme Disease
Migraine Headache
Multiple Sclerosis
Prostate Cancer
Ulcerative Colitis
View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders
Bipolar Disorder
Breast Cancer
Chronic Pain
Crohn's Disease
Depression
Diabetes
Fibromyalgia
GERD & Acid Reflux
Hepatitis
Irritable Bowel Syndrome
Lupus
Lyme Disease
Multiple Sclerosis
Ostomies
Prostate Cancer
Rheumatoid Arthritis
Ulcerative Colitis
View Forums A to Z »
Log In
Join Us
Close main menu
×
Home
Health Conditions
All Conditions
Allergies
Alzheimer's Disease
Anxiety & Panic Disorders
Arthritis
Breast Cancer
Chronic Illness
Crohn's Disease
Depression
Diabetes
Fibromyalgia
GERD & Acid Reflux
Irritable Bowel Syndrome
Lupus
Lyme Disease
Migraine Headache
Multiple Sclerosis
Prostate Cancer
Ulcerative Colitis
Support Forums
All Forums
Anxiety & Panic Disorders
Bipolar Disorder
Breast Cancer
Chronic Pain
Crohn's Disease
Depression
Diabetes
Fibromyalgia
GERD & Acid Reflux
Hepatitis
Irritable Bowel Syndrome
Lupus
Lyme Disease
Multiple Sclerosis
Ostomies
Prostate Cancer
Rheumatoid Arthritis
Ulcerative Colitis
Log In
Join Us
Join Us
☰
Forum Home
|
Forum Rules
|
Moderators
|
Active Topics
|
Help
|
Log In
how many flares have you had since diagnosis?
Support Forums
>
Ulcerative Colitis
✚ New Topic
✚ Reply
❬ ❬ Previous Thread
|
Next Thread ❭ ❭
ilovefood
Regular Member
Joined : Dec 2010
Posts : 140
Posted 5/18/2011 6:49 PM (GMT 0)
Here's a question for everyone-- I don't know whether others have posted it before:
How many distinct flares have you had since first being diagnosed with UC?
And, relatedly: Would you say your flares seem to have been triggered by something identifiable (antibiotics, changing/going off meds, stress, childbirth, etc.) or simply occurred randomly?
Levi
Veteran Member
Joined : Nov 2009
Posts : 1714
Posted 5/18/2011 7:08 PM (GMT 0)
I've had UC/CD for 18 months now and had one flare since diagnosis. I think I tapered too much on the Apriso (two pills per day, three mesalamine enemas per week.)
Symptoms were a little blood and a little mucus.
Michelejc
Forum Moderator
Joined : Jan 2011
Posts : 3052
Posted 5/18/2011 7:35 PM (GMT 0)
I've had 2 flares since I was diagnosed
Eva Lou
Veteran Member
Joined : Sep 2006
Posts : 3444
Posted 5/18/2011 7:41 PM (GMT 0)
jeez, seems like it's been one never-ending flare, with varying degrees of intensity. Since 2002, I've basically always had daily symptoms, some so bad I've been hospitalized, some nothing more than a big inconvenience in my day. Stinks. Currently, I'm doing alright, with the odd bad day thrown in every 3-4 days. But still having AM urgency, occasional accidents, numerous bathroom trips, etc. Those are my day-to-day reality now.
quincy
Elite Member
Joined : May 2003
Posts : 33769
Posted 5/18/2011 8:05 PM (GMT 0)
in 22 years since diagnosis...who knows. I've had a lot to be truthful, probably for sure 2 a year.
q
canadagal
Veteran Member
Joined : Jan 2011
Posts : 599
Posted 5/18/2011 10:40 PM (GMT 0)
2 flares (both lasting almost a complete year) within 5 years...
1st remission : glorious 3 years. 2nd remission : 4 great month and holding... :)
cause for me (in my opinion): STRESS!!!!
Pops61
New Member
Joined : May 2011
Posts : 1
Posted 5/18/2011 10:59 PM (GMT 0)
First post. 61 years old. I believe I have had UC for 40 years but was just diagnosed this week. See, I've have Hep C since I was 21 and thought the symptoms were from that even though I had at least 4 doctors said my liver couldn't have created the symptoms. I know for a fact that too much physical exertion will put me into a pretty serious flare. Even walking for 5+ miles can do me in (has at least twice - buckets of blood in the toilet). My own wife called a gold bricker (long story, good woman) because I couldn't explain my symptoms very well. Anyone else have a problem with physical exertion? Sorry for the length.
NickiM23
Regular Member
Joined : May 2011
Posts : 48
Posted 5/18/2011 11:15 PM (GMT 0)
I've had about
19 flares since I was diagnoised. I was in remission for awhile too. I noticed that when i was younger before my remission I got a flare 2 to 3 times a yr and almost always at the same time. I've been outve remission now for a little over a year and have had 4. Same times of the year. Not sure why. I'm convinced the stress from Christmas puts me in a flare in January. And that my allergies in the spring throw me back into one now. Even with preventative measures I still flare.
mom2panda
Veteran Member
Joined : Oct 2009
Posts : 713
Posted 5/19/2011 1:14 AM (GMT 0)
I am still in the same one since diagnosis. Pred relieved my symptoms, but I could never get off of it without symptoms returning. Still trying.....
Christine1946
Veteran Member
Joined : Aug 2008
Posts : 5988
Posted 5/19/2011 2:03 AM (GMT 0)
Diagnosed with UP in Sept of 98. Flare lasted two months. Had a two yr remission. Flare in Sept of 2000, lasted two months. Remission till 2002. Flared yearly until 05, then twice a year till 08. Could not achieve remission, became prednisone dependent and had surgery last year. Best decision I ever made.
notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17890
Posted 5/19/2011 3:07 AM (GMT 0)
I've had UC for 5 years and I've had 2 or 3 flares. The first one was when I was diagnosed but it was mild and only treated with Canasa. I was never 100% in remission and eventually - about
a year later, I flared up really badly and started Oral Asacol. I was in remission for a year or year and half from Asacol and then I had a major flare up and it took almost a year to get that under control, that leaves off a few months ago and I've been a bit unstable but in remission. Hopefully I stabilize and don't flare for a long time.
subdued
Veteran Member
Joined : Dec 2008
Posts : 3231
Posted 5/19/2011 6:09 AM (GMT 0)
I don't really remember. I think one serious one, two bad ones, a few mini flares that went away within two weeks. I've had IBD for six years?
Serenity Now
Veteran Member
Joined : Jan 2009
Posts : 2780
Posted 5/19/2011 2:42 PM (GMT 0)
I've so far just had the one original flare that led to diagnosis... knock on wood. Been in remission 2+ years now.
Red_34
Elite Member
Joined : Apr 2004
Posts : 23581
Posted 5/19/2011 4:33 PM (GMT 0)
How many flares? Hmm I would have to say 15 years worth with 4 years of sporadic bouts of remission. But many of those years were spent in denial and lack of compliance, so my fault really.
Sara14
Veteran Member
Joined : Mar 2007
Posts : 7914
Posted 5/19/2011 4:35 PM (GMT 0)
I think my flares have been caused by me not keeping up with my maintenance dose of Rowasa and by stress. They also seem to happen every year around Christmastime (could be stress or the change in seasons?) Not sure how many distinct flares I've had, because I think I've never gone back to absolute normal, but I've had at least 6-7 different instances where I started having worsening symptoms again (bleeding, tenesmus, etc).
Old Hat
Veteran Member
Joined : Feb 2007
Posts : 6012
Posted 5/20/2011 4:39 AM (GMT 0)
I had a lot of flares from diagnosis in 1980 until 2003 when my gastroenterologist put me on Colazal, which was then in Phase 2 (of 4) NIH clinical trials (U.S.). This med was a real blessing for me though I had rough patches until Salix took something out of the 1st formula that made my eyes puff up & itch after 10 weeks of daily dosing. Then when the generic came to market in 2008, my insurance insisted that I had to go on it, and I flared soon afterward! So-- without brandname Colazal my UC would be flaring 2-3 times a year. I really need to be medicated daily because experience showed that I start having symptoms about
3 weeks after going off UC meds-- which I did prior to 2003 either because they were inconvenient to use regularly or gave me side effects. In answer to your other Qs, yes, antibiotics can disturb my colon, and so can some foods, mainly spicy, high fat, heavy roughage, or seed-containing items, carbonated drinks, or caffeine. / Old Hat (30 yrs with left-sided UC/presently in remission taking brandname Colazal)
JOVIGIRL26
Veteran Member
Joined : Sep 2003
Posts : 686
Posted 5/20/2011 7:54 AM (GMT 0)
i've had uc for 23 yrs now and i've had at least 3 flairs a year if not more. it depends on whats going on in my life. i'm in one now and its been since last oct when things in my life started to go bad. for me its stress, medications i took for other elments.
Dunia77
Regular Member
Joined : May 2011
Posts : 149
Posted 5/20/2011 11:28 AM (GMT 0)
Dx 6 years ago, mild flare then, put into remission. Second flare, big time, April this year. Just hoping, that everything will be back to 'normal' for me when I wean off the prednisone
pestgg
New Member
Joined : Jul 2011
Posts : 2
Posted 7/5/2011 2:37 AM (GMT 0)
When I was first diagnosed It was after 9 months of blood, IBS, cramping. I wnt to the GI doc and had a colonoscopy and blamo, I had UC. I tried ASACOL, LIADL for the next year or so with limited success to reduce symptoms. so after another 8 or 9 months I went to a different doctor and was given a couple of weeks of Ciprofloxacin and Flagyl, which seems to worked well by finally putting my UC into remission.
Now when ever it starts to actup, usually after getting sick, I take another round of those two antibiotics, which seems to put me back into remission again.
I went 1 year the first time, then got a cold and sinus infection, which seemed to trigger my UC. I was able to go into remission again after another round of antibiotics it has been in remission again and has been so for the past 6 months...
___________________
Meds:
Sulfasalazine 2 grams/day (also treats UC artritis)
Multivitamin, Vitiman D.
Dr-A
Veteran Member
Joined : Jul 2006
Posts : 2105
Posted 7/5/2011 2:43 AM (GMT 0)
about
a 13 year flare with lots of ups and downs. Haven't had a real remission since diagnosis.
KiWi44
Regular Member
Joined : Jun 2011
Posts : 239
Posted 7/5/2011 10:29 AM (GMT 0)
I'm not sure anymore.
I've had UC for 36 years and flare maybe 10 or less. One real long flare due to inadequate meds, and plenty of shorter ones. My longest remission was 15 years without any medications, and I've had several lasting 5, 4 3, 2, and 1 years. I think I'm living my shortest flare-up at the present, less than two months from first symptoms to no symptoms.
The number one trigger for me is stress. http://www.ccfa.org/reuters/stress
Also, food have triggered my flares, and some other diseases. At least one was triggered by antibiotics.
Hard to say what causes what with UC.
imagardener2
Veteran Member
Joined : Jan 2010
Posts : 5896
Posted 7/5/2011 11:36 AM (GMT 0)
I've had UC going on 11 years and was in a flare for the first 9.5-10 years, I just didn't know that was the name and that other people responded better to meds than I did. Like Red I was in denial and wanted to be better so ignored that I was not better.
In the last 1.5 years I've achieved remission through diet modification, symptoms have gotten dramatically better, almost normal but the mental part of not being able to trust my body lingers.
Triggers to symptoms (haven't flared again): caffeine, chocolate, too much spice in foods, dairy. Wheat is a big gut problem but I haven't had any in 1.5 years.
✚ New Topic
✚ Reply