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@ Chris123

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Ulcerative Colitis
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Posted 5/26/2011 8:32 PM (GMT 0)
How did your appointment go today?
Posted 5/26/2011 11:02 PM (GMT 0)
Basically just told me i have to go in for more tests tomorrow, he said that my blood work from a little over a week ago is completely normal, and that it is strange that im going 20+ times a day with blood and yet my hemoglobin levels are probably higher than his are. I go in for a partial scope tomorrow, he wants to make sure that there are no signs of infection that could be causing this rather then remicaid failure. I guess we will make a decision on what to do based on the results of the scope tomorrow, but i believe that i am going to be switching my doctors soon to a different doctor i had once in the hospital. I asked today about the possibility of trying LDN if everything else was failing and he told me he simply didnt believe in its usefulness. So i guess i will know more tomorrow and hope for the best.
Posted 5/27/2011 1:32 AM (GMT 0)
Well, I guess an infection would be better than Remicade failure. Did he mention Humira?

Here is a link to a compounding pharmacy in Toronto that dose LDN: www.lowdosenaltrexone.org/#How_can_I_obtain_LDN

Depending on the results of your sig flex tomorrow, you could ask him a larger dose of remicade. In some people, they just metabolize the Remicade too quickly. I had the private Promethius Lab test done to measure my Remicade levels, and they were much lower than they should have been - hence the double dose I am taking. Not sure it is going to work for me still, but we'll see.

Please post to let us know how what your GI says after the scope.

I am so curious, but realize this is a public forum, since we are both in Toronto who your GI is. I don't know how to send you a private message, or if that is even possible.
Posted 5/27/2011 1:45 AM (GMT 0)
I post my email and then remove it if you would like? or you can also go into the chat function for ulerative colitis
Posted 5/27/2011 1:58 AM (GMT 0)
My Email is [email protected], feel free to send me an email about my GI i wouldnt mind knowing what other peoples opinions are on other GI's in the area considering i may be looking for a second opinion soon.
Posted 5/27/2011 9:15 PM (GMT 0)
Check your email...how did it go today?
Posted 5/27/2011 9:16 PM (GMT 0)
And sorry, I was subscribed to this thread, but wasn't notified that you had posted back....
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