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Ulcerative Colitis
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Posted 6/24/2011 12:05 AM (GMT 0)
Hi everyone, I was recently diagnosed with UC and I have really bad episodes in the morning, to the point that if I had a "normal" job I would be missing days at a time, luckily I do work at home doing editing so that's not much of an issue, but I'm really worried that I won't be able to have a normal 9-5 office job because of it and I'm just wondering what type of job you do? TIA
Posted 6/24/2011 12:21 AM (GMT 0)
I work from home in web development and marketing.
Posted 6/24/2011 12:55 AM (GMT 0)
full-time Montessori preschool teacher
Posted 6/24/2011 1:22 AM (GMT 0)
Nope, I don't work. I used to even with Uc but it got to be too much for me. I used to be a Payroll Accountant. I would love to work from home but I haven't the foggiest idea of how to even start. I thought of editing or proof reading but I am not sure how to go about getting started...any tips?
Posted 6/24/2011 2:01 AM (GMT 0)
@Red, I actually started working in the office but then I moved so they let me continue doing my job at home. I also do transcription, that's a pretty good field to get into for at home, you can make a decent salary ($40k+ in most areas). Some jobs you need transcription training, but you can take classes online. Good luck :)
Posted 6/24/2011 11:11 AM (GMT 0)
I am on the road from 9AM-6PM daily.
Posted 6/24/2011 12:14 PM (GMT 0)
Good idea Twizliz, thanks :)
Posted 6/24/2011 2:36 PM (GMT 0)
I quit during my first flare. I couldn't keep up with the job. I was spending so much time in the bathroom, or doubled over at my desk in pain, or barely keeping my eyes open from fatigue. I hadn't been diagnosed so I thought maybe it was from stress and that if I quit I'd get better... Well I guess I did but it wasn't an instant fix. Anyway, I discovered I don't miss working and I can take care of my health better now, so I am officially "retired".
Posted 6/24/2011 2:44 PM (GMT 0)
I'm a mobile hairdresser (go to clients' homes)...but I have the option to cancel if I'm sick.
I was a sign language interpreter for 5 years in the school system. I missed time for having colds /flurather than for UC.

If you can work from home, it's a great idea for sure.

q
Posted 6/24/2011 3:12 PM (GMT 0)
When I first got sick I was doing outside sales, it was horrible trying to find a bathroom and I did not want to have machine gun sounding bm's at customers offices.

Now I do inside sales, luckily I can use the bathroom whenever I need to. But I work an hour away, had some tricky rides.....
Posted 6/24/2011 4:06 PM (GMT 0)
Yes, I work in a healthcare setting. I work 8-5 full-time. I would go crazy if I did not work.
Posted 6/24/2011 7:48 PM (GMT 0)
I work fulltime for the school system in an office that I run. Forunately theres a RR close by if needed and my admin is well aware if I say "I have to go", he understands. :)

I have been lucky that I haven't lost time due to UC but I find that if I am feeling yucky in the mornings if I push myself to go on that I am much better at work than at home. There have been a couple of days I have to lay back down just for a few before I head out but i am always glad I did.
Posted 6/24/2011 9:10 PM (GMT 0)
I work about 30 hours a week in an office environment. The washroom is pretty much my own, and it about 35 ft away. Drives to and from work have been a bit dicey sometimes. Fortunately, any accidents I have had have been on the way home.

I also teach part-time first aid/cpr, but I have had to give that up for the time being. Running out of a classroom in the middle of a lesson - and possibly not making it to the washroom - doesn't really work in that environment.
Posted 6/24/2011 10:05 PM (GMT 0)
I billed 80 hours last week and the week before on my new deal where I work from home until the end of summer. After that my kid is in school again and I will spend 3-4 days downtown.

I am getting my game face on and ready for my late summer flare. 90 degrees outside and I am doing fantastic which absolutely nothing as UC can flare up suddenly.

After next week I will move my daytime office to the downstairs office where it is even cooler as my UC flare is related to dehydration.

Targetting 60 hours per week as a good balance between income and good rest. Last couple weeks I had too many 2 hour nights of sleep and that will take its tool of it becomes long term.
Posted 6/25/2011 2:06 PM (GMT 0)
I managed a retail store but went part-time in the fall. I could work full-time now but had such a hard time when my flare was crazy that I don't want to chance it. Too much stress and as a manger you have no choice but to drag yourself in. Can't afford to take as many trips as I'd like but feeling much better as semi-retired:)
Posted 6/26/2011 12:09 AM (GMT 0)
I work around 50 hours a week. I try and get in the clinic about 7:30am to start reviewing patients I'll have for the day. Been doing it for years even in severe flaring. You just get up alot earlier.... I mean 4 am earlier... to be ready to get out the door by 7. You can't just get up, shower and leave anymore. Doesn't work that way, lol. My mornings have always been the worse. I still have to remind my wife that frequently.
Posted 6/26/2011 12:34 AM (GMT 0)
I tutor 5 highschool kids. 11 hours a week and 1 on 1 style at their houses. I have really nice flexible hours lol.
Posted 6/26/2011 2:06 PM (GMT 0)
I go to school. My UC is pretty much under control with the meds I am on. Things are not perfect as in. I don't feel like I did before UC but my BMs are pretty normal so I do well.
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