ldn doctors in oklahoma or suggest. to get GI to prescribe ldn

Hi! I've been a fan of this forum but never became a member because i could always get my questions answered by other's posts, but now i'm real sick and want to find a dr. to prescribe ldn, or any tips to get my GI to prescribe it,going tomorrow, wed. I've printed off info from the internet of trials with it, helping Chron's , ms and other diseases but not UC. After talking to CCFA, they don't feel like there's enough longterm studies and proof and i feel my GI will agree. I'm going to tell him that i will consent to be his guinea pig, answer any questions he has, sign a waiver of liability, do any testing,blood,stool,extra colonoscopies, whatever he wants. I would love any advice!!! I've had uc since '02, "tummy aches" since I was 6, turn 40 soon. became an almost vegetarian at 6, eating chicken or fish a few times a year. Was verrrry healthy, a runner, worked 60 hrs. week, happily. Pregnant in "02 and encouraged to eat meat and gain weight, same now and then110lbs., and, like a tiger, loved it, made up for lost time,gained 60 lbs. during preg. Healthy 8lbs. 10 oz. baby, lost my weight due to due diligence and uc. tried Colozal, 9aday, mp6/mercaptpurine, prednisone every few months, never seemed to do much. Quit working in'04 due to uc, stay at home mom. Hospitalized three times with uc related issues, pic lines, tube fed, etc. tried Remicade, worked great at first, wound up with psoriasis covering 80 % of my body, my dermo took pictures and "had never seen anything like this". Stopped breastfeeding my 2nd child for fear that it was something contagious,before biopsy revealed psoriasis. Wound up with Pneumonia and back in the hospital, Remicade had possibly lowered my immune system that much. i took Remicade to stay out of the hospital! That is my story. I've been bedridden for a few weeks now, and staying at mommies, with my kids. I take liquid multi, liquid calcium,mag,probiotics, omega 3's, marshmallow root extract, slippery elm, milk thistle, chlorella growth factor, blackstrap molasses, inner part of Aloe(Code of life),liquid B., digestive enzymes. I drink green tea,eat mostly soups,cooked vegetables and fruit juices, and soft fruit(peeled) Cranberry juice and limeades help with nausea. No milk products,bread,no fast food, greasy food . very small amts of chicken. PLEASE HELP WITH ANY LDN OR OTHER SUGGESTIONS!

gottago,

Here's the info on LDN i promised. I would definitely recommend you do your due diligence and research and would certainly think it is something you should consider. However, I would recommend should you decide to try LDN, get it as Transdermal LDN, I would hate for you to waste 5 weeks as I did on the wrong type of LDN, especially in the pain/distress/condition you are in.

Here's my story on LDN:

I started on 4.5mg of oral LDN on 2/7/2011, and saw no change - still continuing to bleed at a 10.

When I spoke with the compounding pharmacist, she mentioned that I may not be absorping the LDN properly, and suggested I switch to a transdermal LDN formula, which would be a cream applied to the bottom of the forearm. She told me alot of her pediatric patients do much better with the Transdermal LDN, and in some patients with absorption issues it helps too.

 

LDN - low dose naltrexone is very cheap - it costs around $25-30 a month (for pills or the transdermal cream). Gastro doctors usually don't prescribe it because they say "it isn't the standard of care". My gastro refused to prescribe it, so I found a local osteopath who did. I did ALOT of research, and the bottom line is: it works!

 

Once you get the script for it, you'll need to get it from a compounding pharmacy, who'll make it up for you, and ship it to you. The best compounding pharmacy in the country for LDN is Skip's Pharmacy in Boca Raton, FL.

They ship all over the world - they have 20,000 patients with various conditions on LDN. That's where I get my transdermal LDN. If you contact them, they'll tell you who locally to you will prescribe it to you.

You can reach them at: 800-553-7429

www.skipspharmacy.com

 

Please, go to www.youtube.com write: Low dose Naltrexone in the search field and you will find a pharmacist explaining where in the U.S you can buy your medicine. You can also read these pages to find more info to bring to your doctor:
www.ldninfo.org

www.lowdosenaltrexone.org
www.ldnscience.org
www.ldnresearchtrust.org

and if you want to find what other Crohns/UC patients have experienced when used LDN, choose Crohns/UC Disease at:
www.ldndatabase.com

And here is a good video of what/how LDN works:

www.ldnscience.org/

Also, here's the link to the Dr. Jill Smith Studies from Penn State:  http://live.psu.edu/story/53494

Lastly, to find a local doctor if your GI refuses to give you script for LDN, you can email Crystal, she is the guardian of the doctors' list:

[email protected]

Hope this helps.

Good luck to you.

Please let me know how it works out for you.

badslinke,

Been thinking about you.

How are you doing? Are you off corn now? What have you been eating?

How are you feeling?

gottago,

Glad you tried the salmon and liked it. Try and beef up your protein intake, if you can. I think it will do you a world of good.

Also, have you been tested for Vitamin D3 deficiency? I suspect you may be deficient as well. There have been many studies showing a link between D3 and IBD.

I, myself take through a doctor's prescription (and follow up blood work every few months) 100,000 I.U. of Vit. D3 every 10 days.

Let me know how you make out. Hope you start feeling better and stronger soon.

gottago,

Glad you found an insightful practioner.

What did he say as far as treatment? Solutions?