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Ulcerative Colitis
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Posted 7/10/2011 9:12 PM (GMT 0)
Everyone has there days to vent, so It is my turn today. I not only got UC, i also got arthritis due to UC. I pooped my pants at work today, which i had never done before. I just couldn't make it in  time. mad . I am always tired with no energy and my meds are not working for either issue. I can't stand the methotrexate i am on for my joint pain, for  it is low dose chemo and it is making me sick. I am just so sick of it all. In two months if my inflamation does not go down, my doc is going to change my meds. 

 He is giving the methotrexate a chance to work, before he decides to change them. He doesn't seem to think the humira is working anymore for me. He is thinking of switching me to cimzia. He is trying to combat both diseases with the same meds, for they work for both. It is not so much the UC, it is mostly the arthritis that i can''t control. The UC flare is mild compared to the joint pain. Thanks for listening

Posted 7/10/2011 9:21 PM (GMT 0)
Have you tried mesalamine enemas? I see you're a veteran member but no siggy so I can't tell. No it may not help arthritis but does help urgency.
Posted 7/10/2011 10:23 PM (GMT 0)
Oh Jano, I am so sorry to hear about your terrible day.
I hope you can get your arthritis under control soon.

Feel free to vent away. We all understand accidents.
Posted 7/10/2011 11:44 PM (GMT 0)
Sorry to hear about you're horrible day/diseases! You are not alone, I pooped my pants in the car last Thursday. Had a ton of stuff to do, and had to come home and bathe/change completely :( It sucks!

I'm curious about your statement UC gave me arthritis?? I was on prednisone for 10 months, and after tapering got horrible pain in my knees and heels. I thought this was from getting off the satan pills, but it seems to be getting worse as the days go on. I cannot do hardly anything bc I"m so tired and achy, and am beginning to wonder if I now have arthritis as well (It runs in my family).

Can you tell me a bit more about this?

Thanks, and hope tomorrow is a bit better than today :)
Posted 7/11/2011 12:13 AM (GMT 0)
UC and joint pain go hand in hand. Mine started out as stiff joints in my hands. My GI sent me to a rheumatologist and sure enough, I have IBD related arthritis. And yes, imagardener2 I use protofoam as a rectal med
Posted 7/11/2011 1:44 AM (GMT 0)
Agreed that pooping one's pants is the UC pits!!!!!!!! Sorry that the meds aren't doing enough for you. Have you ever used Cortifoam for proctitis? It is 10% steroid whereas Proctofoam is only 1% & comes with a shorter applicator besides. RE Cimzia: rey posted about 6 weeks ago that the gastro switched her daughter to it after she reacted badly to Remicade. You may find more info about it on the Crohn's forum. Best wishes! / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 7/11/2011 2:06 AM (GMT 0)
Vent away Janice! You have been here for us over the years so now it's your turn to lean on us. I'm so sorry you are having to endure all that. I can relate! Have you ever tried Voltaren gel? I use it on my hands and it seems to help.
Posted 7/11/2011 2:52 PM (GMT 0)
Janice...oh no...just what we all fear. Can you try the mesalamine enemas to see if they help you?

I hope you're able to find some relief from the pain and fatigue with another medication.

Heather
Posted 7/11/2011 4:53 PM (GMT 0)
Oh gosh, Janice -- I'm sorry things are so rough for you right now. Yes, we can all understand the accidents and how awful they are so you are free to vent away to us! I hope the Cimizia works for you -- keep us updated. Take care and big ((((HUGS))) from me.

Posted 7/11/2011 7:43 PM (GMT 0)
Thanks you everyone for listening. I love this group and i love you all
Posted 7/12/2011 11:47 PM (GMT 0)
More hugs! Take care & definitely keep us posted. / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 7/13/2011 4:15 AM (GMT 0)
Why do doctors prescribe prednisone for UC when people who have UC are at risk for arthritis?

I was on pred once. Pred taught me what it's like to have arthritis. I was so relieved that it gradually went away. For me, having arthritis is far worse than having my colon taken out.

I think doctors aren't comparing health and quality of life between being on meds and getting the colon taken out. If they did, more doctors would be recommending surgery and not the meds that are currently being prescribed for UC.
Posted 7/14/2011 2:37 AM (GMT 0)
Hi everyone,
This is my first time here. It is all very interesting. I have UC as well. 6 years ago I had a flare that wouldn't go away. I ended up on predisone for 11 months. 4 years ago I was diagnosed with fibromyalgia. I am now wondering if this too is related to the Treatment for UC. your thought?
Dianna
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