MustLoveDogs said...
My daughter has been off of Prednisone for 1 week - she starting bleeding on Friday and today she is in a lot of pain. Of course her Dr. said to put her back on 5 mg of Prednisone - I said "NO". Did a Cortocoid enema on Friday night & that helped a little, but didn't do one last night. He said we can move up her next Remicade infusion by 1 week, which would make it later this week. I just can't believe this is happening again. She is supposed to start camp tomorrow; it doesn't look like that will happen. I am so angry. I just don't know what to do anymore. My heart is breaking for her.
UC is one of the cruelest diseases I know.
What you do is to keep on fighting, as you've been doing all these years.
The camp would most probably had lifted her spirits and energy, so it's really unfortunate if she misses it.
I'm at a loss of words.
Hopefully things turn around soon.