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HAVE ANY OF YOU BEEN TOLD TO DO THIS BY YOUR DOCTOR?

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Ulcerative Colitis
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Posted 8/4/2011 4:10 PM (GMT 0)
So, my doctor wants me to do two clean outs about a week apart because she says I am constipated.  They did an x ray and it showed a whole bunch of dried stool in my colon.  I feel very sick after I eat and she said that being constipated will do this.  She also wants me to take a cap full of miralax everyday in the morning.  I did this before about two years ago and I had to go to the bathroom all morning long with alot of urgency.  She said this will go away once I am cleaned out which could take months.  I stopped doing it before because I am not going to not leave my house every morning because I have to go to the bathroom every five minutes.  So, have any of you done this and are on miralax and it is fine after you are cleaned out.  I don't even know if I should do this again.  I will not take the miralax if I am going to go all the time.
Posted 8/4/2011 4:17 PM (GMT 0)
Do you have colonic inertia on top of UC?

Sue
Posted 8/5/2011 2:43 AM (GMT 0)
It sounds bizarre to me. Did the doctor ask about your diet or make any dietary recommendations-- or fiber supplement recommends? I can understand your reluctance to take Miralax if it gave you continuous D in the past! Do you drink water throughout the day? Do you feel rumbling in your colon or is it mostly quiet? Probably if the waste stays in there longer than 2 days it dries out excessively-- so unless there's a structural problem, which she didn't seem to mention, you're dealing with irregularity of bms. I think a lot of members here could advise you on this-- Quincy, Red34, bbc, and others. / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 8/5/2011 1:47 PM (GMT 0)
My FIL was told to take Miralax for 2 weeks or so a few years ago..... but as best I recall, he didn't share the details of who that went. (lol).

I believe I would just tuck into some fiber, Benefiber, Metamucil, Citrucel, etc, small dose at first, then as tolerated, increase to what the package says......

But that's just what I would do.

Miralax for someone with UC sounds a little odd to me, unless there's something else going on, as those above suggested.
Posted 8/5/2011 5:47 PM (GMT 0)
Is your doctor a GI? If she's not a GI, perhaps you could ask for a consult.
Posted 8/6/2011 2:45 AM (GMT 0)
When I first saw my GI, I was in the beginning of my remission and was constipated (my flare started and ended with constipation, with the usual million bathroom trips per day in the middle). She had me do a clean out with citro-mag and then start taking metamucil daily. I really did not think this was a good idea AT ALL. But, to my shock, it actually worked. I started having regular BMs right away.
Posted 8/6/2011 1:12 PM (GMT 0)
Yes my doctor is a GI.  I really like her and trust her I just have never heard of this.  It makes sense to me the way she explained it but on the other hand I am on medication so I don't go to the bathroom all the time.

Sue- What is that I never heard of it?

Old Hat- I tried taking fiber and it gave me really bad D.  My GI said some people can take it and some can't. So, I tried it but it was no good. lol 

She said the remicade is healing my colon and helping with the D and when that happens alot of people get constipated even though I go to the bathroom about 4 times a day. 

Posted 8/6/2011 1:31 PM (GMT 0)
Sounds logical, the way she describes it. Why don't you give it a try, see how it goes. Miralax will keep things moving, but I don't think a capful a day will make you stuck in the bathtoom. It's basically akin to taking fiber supps, just something to smooth things out, keep everything going in the proper amount. It's like taking 1-2 T of Milk of Magnesia every night, remember how grandmothers & old ladies did that daily??? Their slogan used to be "a T in the PM, for a BM in the AM!". Too funny... gotta love regularity!
Posted 8/6/2011 3:44 PM (GMT 0)
Colonic inertia is sluggish colon. I would ask your GI if she suspects it. It can be confirmed with a sitz marker test. Your level of constipation is severe and well beyond what I have seen from UCers. Keeping my fingers crossed for you; it's got to be terribly uncomfortable.

Sue
Posted 8/7/2011 5:18 AM (GMT 0)
Are you taking thyroid med, too? I'm wondering if that could be affecting your bms. Judy2 would be a good member to ask about it; she takes Remicade & thyroid med, plus she's a recently retired RN. / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 8/7/2011 1:54 PM (GMT 0)
2nd opinion, your Doctor would get one if someone gave her that rx I am sure.
Posted 8/7/2011 6:30 PM (GMT 0)
yes, I am on a thyroid med also.  Thanks Old Hat
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