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Still on Pred 40mg buring from throat to anus, divided dose

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Ulcerative Colitis
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Posted 9/19/2011 3:11 PM (GMT 0)
Hi All, I've tried looking for my previous posts, can't find them if you can help me how to search I wouldn't always start a new topic, sorry.

Anyways, I'll will be 2 weeks on 40mg of pred on Wednesday of this week. about a week in my anus was burning and my throat real bad acid reflux! So sore it was hard to stand. I figured it was pred so I'm doing 20mg in morning and 20mg at night, seems to be helping with stopping the burning.

Still bleeding a little but not as bad. Seems like it's more hemmroid/fissure. I'm taking a c-diff A&B toxin soaker upper like Clay but prescription strength  to bulk up my stools, they were really bad with just liquid diarreah, since I tried that anti parasite medication!   They are back to being ribbon like stool instead of liquid. I'm relieved. 

Anyways just thought I would give an update. I'm thankful I'm not feeling the steriod rage or crying spells. I'm working out well too. My energy is great and over all well being has improved.

I'm on 40mg for 6 weeks then I taper. I'm praying, praying for a miracle!

I've ruled out parasites and bacteria and I figure now it's only autoimmune since I tried medication for parasites, the combo antibacteria therapy and been tested extensively for both. No treatment above has worked. You have to be your advocate so I have no regreats.  I really like pred though for now, it's the best thing that has helped me in 6 years of this madness!

Posted 9/19/2011 3:29 PM (GMT 0)
Hey miracles, if you click on your username here, you may be able to find the thread you're looking for. That pulls up the most recent topics you've participated in. Otherwise, you would have to try the search box.

I am sorry you're not feeling great but it does sound like you've had some improvement which is good. I am surprised your stools are still so loose considering the high dose of pred. Hopefully in a few more weeks, you will be having sollid stools. You have been dealing with inflammation for quite some time without a break, you really deserve a long remission. If it is AI, you may do better if you start an immunosupressant. I hope you get on track soon.
Posted 9/19/2011 3:31 PM (GMT 0)
Hi Thank you and that would be the next step after Pred, but I'm staying hopeful here. I think things are really turning around! Thanks for the tip on searches I will try that next time.
Posted 9/19/2011 4:15 PM (GMT 0)
Could the burning be relieved by Omeprazole (Prilosec) tablets. When my daughter is on Prednisone, she gets lots of discomfort and it seems to always be relieved by this. I see on the medication website that it can increase risk of all sorts of things so best to check with Dr. first.
Posted 9/19/2011 4:35 PM (GMT 0)
Alot of times its misconstrude that we have too much stomach acid when in fact prescription medication lower the ph acid and give us acid reflux. What really helps me is Apple Cider Vinager by Braggs, when my throat is burning it burns drinking it but it helps so much! Also HCL capsules to get more acid into the stomach. I learned this from my NP doctor. It really really helps, it's just opposite of what you think. If you google low stomach acid you'll see a bunch of illnesses that come with it. It's amazing to me. I tried Prilosec in the past when all this started and zantac it did nothing, but adding in acid like the Braggs Apple Cider vinergar it has done wonders. I'm learning my body and it feels so good!

Thanks!


linda

Posted 9/19/2011 6:23 PM (GMT 0)
Wow, "therearemiracles", that's an inexpensive solution there!

Anyway, TAM, why do you need to be on pred at 40 mg for six weeks? That's a long time. How about two weeks then taper....
Posted 9/19/2011 7:04 PM (GMT 0)
my doc said it will take 6 weeks to get into remission. I was really bad, really bad and 5asas weren't helping much. Some have posted 40mg for 6 weeks is not bad. I'm just starting to see improvement now, it will be two weeks on Weds night. So I'm hopeful still. I'm not having any issues like rage, crying, weight gain or anything so I'm doing ok. 40mg is not as much as 60mg and others have been on that. I will see how I'm doing after the 3rd week. I'm sick of being my own doctor, maybe for once, I should take my doctors advise on this one. My way hasn't been working. I'm not scared of it. It can be more help than harm. This is my first time on it.

The triple antibiotic therapy, parasite medication and two years of injections of antibiotics for my lyme's probably was worse.

Posted 9/20/2011 12:55 AM (GMT 0)
I had a sour stomach while taking Pred. Ginger tea seemed to help. You don't wan tot take anti-acids as it interfers with the releasing of the meds. It' lowers your pH balance!

I was on 40mg Pred for 5 weeks and was told that was too long. Started tapering without being in remission. Also is you over do it on steriod it will take care of the inflammation but interfere with healing. If all you have is blood/mucous it could be due to too much steroid and you may want to taper down 5mg a wait a week to see if the bleeding stops. I just experienced this.

Got to find a balance between inflammation control and healing with steroids!
Posted 9/20/2011 1:00 PM (GMT 0)
good suggestions! Thank you. I will be very careful. Thanks again!
Posted 9/20/2011 9:42 PM (GMT 0)
therearemiracles, have you heard of Beck's protocol?

Just wondering since you are into other alternative ways go about treating your disease.

I actually know, not personally but through a naturopathic doctor, two people who are asymptomatic from using the Beck's Protocol for good 3-4 months.
Posted 9/21/2011 1:09 PM (GMT 0)
No I haven't heard of that, I will look it up. Thank you. I've learned too fiber is the my worst enemy for me! Thanks
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