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SCD and illegals

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Ulcerative Colitis
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Posted 9/29/2011 4:46 PM (GMT 0)
I've been doing SCD since July.  Normally I take certain supplements in order to help manage my uc with a lot of success.  Some of these are illegal on SCD so I removed them.  I am so tempted to try then again though because I know they are helpful in soothing inflammation.  I have taken slippery elm powder, aloe juice and I used to dring Ultra Infamix which is a rice based protein powder with l-glutamine in it.  I know I can buy this separately.  Anyone on SCD and doing illegal supplements.  I'm torn.  I would only do it until I saw no blood.  I have formed stool with small amts of bright red blood on them.  Sometimes pass mostly white mucous in between.  Only every few days.  I've been on 40 mg or Prednisone for 3 wks or so and I'm tapering now.  No maintmenance meds.   First time I've not been able to hit remission with Prednisone.  Wanting to avoid 6mp if at all possible.

Also so many people say no dairy on SCD.  I'm confused because the yogurt is such a crucial part of the diet.  I'm already losing tons of weight and I didn't need to.  Not from uc but from restrictive diet.

Really struggling and desperate for remission. 

-M

Posted 9/29/2011 4:51 PM (GMT 0)
seasons, I don't think SCD is a set solution for everyone. Many users here modify the SCD diet to work for them. There are things on the legal list they can't tolerate and things on the illegal list that they can tolerate. I think once you experiment and figure out what works for you, it is okay to go outside the structure of the diet.

Just my opinion. I have tried SCD diet but didn't have much luck. People who have had success will be able to offer better advice.
Posted 9/29/2011 5:11 PM (GMT 0)
Thank you. You know you keep searching for answers but the more you search the more different opinions you get. It's muddling through it all and making the right choices for you. I am just ready for a breakthrough. I appreciate you response, thanks again.
Posted 9/29/2011 5:26 PM (GMT 0)
I wouldn't trust the illegal shipments. People are always trying to cut costs as much as possible to make a profit. No telling what you are getting.

Have you tried probiotics and turmeric?

Milk contains Lactose, which many have trouble digesting. Yogurt contains probiotics. There is no reason to eliminate eating yogurt if your body can digest it. If your body does have trouble digesting it, then yes it makes sense to avoid it. That goes for other foods/beverages. It matters more how your body responds than what people say. Listen to your body.
Posted 9/29/2011 6:15 PM (GMT 0)
Breaking the Vicious Cycle author, Elaine Gotschall, emphasizes absolute, strict compliance to the diet repeatedly. Many SCDer will tell you if you consume ANY "illegals," (I've even seen them in rabid debate over a communion wafer) you might as well not do the diet at all. I can respect that, and anyone who chooses to try the SCD should at least give it a few months of strict compliance.

However, in my experience, the diet was a starting point for defining what works for me personally. There were foods that were allowable that bothered me and some that weren't allowable that seemingly didn't bother me. It's my personal opinion if you have "illegal" supplements you know are helpful to you, you should take them. In the big picture, I just don't see how a minute amount of illegal ingredients in the filler of a capsule could negate the positive effects of the supplement.

Concerning the yogurt, it's great if you can tolerate it, not only for the probiotics, but the yogurt is used in alot of SCD recipes. Some people can't tolerate it. It may be more of a problem with the casein (protein) than the lactose (sugar). If you're one of those, you take a high quality probiotic supplement instead. In fact, I'm of the opinion anyone in a state of IBD flare needs probiotic supplementation regardless of whether or not you consume yogurt. I don't think you can get enough of a therapeutic dose from food sources alone.
Posted 9/29/2011 6:25 PM (GMT 0)
I take SCdophollis and Sacro B. The yogurt seems to be ok with me. Like I don't notice anythign worsen when eating it. I'm talking about the SCD 24 hour yogurt. My main issue nowi is that even with formed stool I see some blood on stools. I'm at 35mg of Prednisone.

I know BTVC does say fanatical adherance. So difficlut knowing what to do. I'm still deciding.

Thank you for responding!
Posted 9/29/2011 6:27 PM (GMT 0)
Could it be from internal hemorrhoids?
Posted 9/29/2011 6:59 PM (GMT 0)
Most of us who are successful on SCD are modifying it for their own body.

For me for example it's easier to trace offending foods since also my joints get inflamed together with my colon. so i know i am into trouble much before my colon starts to show signs of inflammation like gas, pain, mucus or blood.

Youghurt is one of the things i cannot eat.

Princesa question is a good one. Does the blood is bright red? A quick rectoscopy can rule out the possibility of bleeding hemorrhoids. Last time i've bled it was from my hemmyes, my colon looked verry good.
Posted 9/29/2011 8:35 PM (GMT 0)
Well I thought of that. The have documented that I have internal hemmies on one of my scopes. But before Prednisone that is what I was seeing. I used hydrocortisone suppositories and over about a month it progressed to looking like uc. So now I'm on the Prednisone I have formed stool but still the blood. Hard to tell. Is it inevitable for me to go back to square one now that I'm tapering. Just diet and supplements, no maitenance med unless I agree to 6mp. Also starting to feel effect of Prednisone. Tired, palpitations, blurry vision, bruising. Will this all go away? I'm feeling so depressed and backed into a corner. I'm so afraid of the immune suppresors. Call me crazy.
Posted 9/29/2011 9:38 PM (GMT 0)
there is also the possibility that the foods you eat right now, even scd legal, are affecting your gut. there are a lot of foods on SCD that can exacerbate a flare. it all depends on what you react to. as you can see in my signature i limited my self to a very short list of aliments in order to keep things in check.
keeping a food journal since 2010 led me to this solution which i consider it satisfying.

anyway, the hemmy problem should be excluded too.

I agree about the immune supresants, i would avoid them too as long as possible.

Do you use 5-asa medication? what kind of 5-asa's? if not, why not?
Posted 9/29/2011 9:41 PM (GMT 0)

princesa said...
In fact, I'm of the opinion anyone in a state of IBD flare needs probiotic supplementation regardless of whether or not you consume yogurt. I don't think you can get enough of a therapeutic dose from food sources alone.

i have a different opinion, based on my personal experience: until this moment i was unable to find a probiotic that does not trigger a flare on me. i've tried different strains (and fillers) to the same effect. but i do think that probiotics are a good option for most people.
Posted 9/29/2011 10:22 PM (GMT 0)
I can't take any mesalamine which is so frustraing because I have what you'd call mild to moderate colitis. I get deathly ill. Major fever, chills, headache, nausea. I just went through another bout after taking canasa suppositories suggested by my GI. She thought because they were local I might not react. After 2 of them I was done for. I feel like I won the lottery of bad luck. Got uc, can't take lower level drugs, am a toxin phobe and am gong to be forced into an immno suppresant which is goint to hightly elevate my anxiety level. I have two kids diagnosed autism spectrum and I just feel my bank is full. Sorry for the vent. I know we all have our stresses. Oh an I also take BCQ supplements. All started after the bleeding. It's quercatin, curcumin and bosweillia. I'm sure I spelled all those wrong :) I'm tring to tailor SCD for me but I don't always see an obvious reaction to food. More of ...the blood is still there when I go. You know what I mean, I can't pinpoint it. I need to start a food journal, I'm just overloaded with things I need to do.... Thanks for listening, I appreciate all your advice.
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