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15 vials of blood for my last lab tests.....

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Ulcerative Colitis
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Posted 11/3/2011 5:20 PM (GMT 0)
My GI and Nephrologist (Kidney Doc) are apparently checking everything before my appt's next week on the 7th and 8th respectively.  They have both been taking me off of drugs and I am doing just fine so far. I hope to start a family very soon.  I have been working with a personal trainer and feel great physically and emotionally (getting out all my aggressions).  I can walk down stairs like a normal person, before the pain was so bad after coming off pred that I could only do one step at a time.

Still have about 1 bm a day w/blood about 1/2 the time and I came off of imuran a month ago.  GI says he may increase my remicade dose and/or schedule, but wants to be cautious (good : )

I crapped my pants for the first time this week, ate something spicy at a work dinner and driving home got diarreah, oh it was just lovely about a 40 min ride home and there was construction work on the highway.  I thought of healingwell and all the people that have to deal with this part of UC, it really sucked!  I hope I don't get a UTI from it.

I was in England the week before and UC behaved well.  Going again for work in 1.5 weeks and have my fingers crossed!

Hope everyone else is doing well, I caught up on a bunch of threads, haven't been here in a while.

Posted 11/3/2011 8:02 PM (GMT 0)
I think the most blood I've ever had drawn was about 10 vials. That was when my WBC plummeted and I was thinking about starting Remicade.

I can't believe you had an accident. I am so sorry. You know, it happens to normal people too soemtimes if they eat the wrong thing so don't be too hard on yourself. Are you suffering from a lot of UC symptoms? Have you ever askd your GI about LDN? I know Boxermom was having a lot of trouble with flares and she has been doing well since starting LDN. My GI wouldn't consider it, I guess she doesn't see enough evidence that it would help or she's not familiar with it.

If you're only going once a day, I don't think a tad bit of blood is too worrisome, especially if it's formed and you're able to eat what you want. Some GIs believe Remicade works better while being used with 6mp or imuran but I know you want to try for a baby. Not that you CAN't on those drugs but of course, we would all prefer to be drug free.
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