killcolitis

killcolitis, how is your daughter doing? I think about you guys often.

Thanks guys. I'm "here" sometimes. She is up and down, we're recently in the middle of another scare, she's on "low dose" pred and ssz as per her GI and chinese meds. Next stop possibly 6MP (though she's allergic to aza so I think i want to avoid it), remicade (!), FT (again, but I'm trying to find someone who will do it via scope, proving very difficult), or ovamed (not too promising but we're desperate here).
I hope you're well bookworm and G I owe you an email, on my long list of things to get to but have been thinking of you guys and hope R is doing great.
Thanks again for thinking of us. It has to get better, right?