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Ulcerative Colitis
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Posted 12/21/2011 5:19 PM (GMT 0)
Why is this flare so stubborn, or is this just how it goes?

When first diagnosed, I took asacol at 800 mg/3X day, and that took care of things in about a month.

Then, I ran out of meds, and re-flared. Ive been diligently on that dose for about 6 weeks now, and at first, then again at periods, it really seemed to be turning around. Then I go backwards. The other day I woke with D so bad, I got nausea and then threw up... each day seems to be so different. I dont know what to eat, what not to eat. Cutting out all corn, wheat, etc, seems to be nearly impossible.

Do you all find that flares vacillate before going away? I really dont want to get on pred.
Posted 12/21/2011 5:35 PM (GMT 0)
For me when I'm flaring I really try to cut out dairy as it seems to bother me and of course nothing spicy (can't really eat it if I'm not flaring). I don't think I've really gotten worse after starting to do better but I know its kinda stopped getting better but no worse. Are you on some rectal meds? That is key or me. Maybe a call in to your doctor at this point would be a good idea...see if he wants to change the meds up a bit. Feel better.
Posted 12/21/2011 5:42 PM (GMT 0)
freddyj

Are you using mesalamine enemas? Sorry but I can't see your siggy. Enemas realllly help and much safer than pred.
Posted 12/21/2011 7:24 PM (GMT 0)
rectal meds....suggesting them ONCE AGAIN!!!
q
Posted 12/21/2011 9:16 PM (GMT 0)
Hi Guys,

I was on them for a month, didnt see much benefit honestly, and I dont really enjoy applying them or picking them up at the pharmacy...


I suppose I should stay on them.
Posted 12/21/2011 9:28 PM (GMT 0)
Yes pills are soooo much easier to deal with, I was exactly the same way. Enemas are annoying, potentially messy, embarrassing if you have a partner....etc. I also understand the pharmacy part because I fired one pharmacy due to the gal at the counter who always had some stupid remark. Have you considered getting them by mail-order? Private.

Please give them another try. Not to belabor this but there is a difference between retention enemas and the kind of enema that you use to have a BM. Mesalamine enemas are retention type and (for me) best done at night in a horizontal position to retain all night. There are some people on this forum that use them in daytime but for the life of me I can't fight gravity that way.

Good luck. Way way better that jumping to prednisone unless necessary. Use every tool you have available.
Posted 12/22/2011 1:12 AM (GMT 0)
were you on them in conjunction with the asacol? or alone?

A month...well..did you improve even a little?
or are you subconsciously focused on the fact you consider 5ASA part of your hairloss issue?

q
Posted 12/22/2011 6:09 AM (GMT 0)
thanks Imagardner.

Quincy, yes in conjunction. Yes, I did improve for a day or two, then go back... We will see about tomorrow. And if the asacol had anything to do with hair loss before, is definitely isn't now.
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