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Worse on Remicade?

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Ulcerative Colitis
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Posted 1/10/2012 9:27 AM (GMT 0)
Has anyone's symptoms worsened on Remicade. My doc says it's unlikely, but my worsening did start one week after I started Remicade. I chalked it up to stopping the steroids, but maybe not. Also has anyone had oral thrush symptoms on rem.
Posted 1/10/2012 1:15 PM (GMT 0)
I was off pred about a month after I began remi and I did worsen for a couple of weeks and got better after my next remi, it took a while to get back to where I was before that. It is such a roller coaster, good luck. Keep on trying!
Posted 1/10/2012 1:29 PM (GMT 0)
Remicade was a total failure for me. I did get worse on it. I tried for a whole year though hoping it would get better. I flared worse than ever at the end and got really sick and that's when I had enough and opted for surgery. Hope it ends up working out for you.
Posted 1/11/2012 2:59 AM (GMT 0)
I have already stopped, last infusion was 7 weeks ago. It's just that I have been improving over the past 9days, even though I have held steady at 10 pred for the past 6 weeks. So wondering if I am getting better as the Remicade leaves my system.
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