Med changes

I called my doctor after my third Remicade infusion with a "now what?" She told me to start tapering my Apriso from 4/day to 3 > 2 > 1, but stay on the Entocort indefinitely. She said Remicade and Entocort is the best combination for treatment.

Weird - it's the exact opposite of what I was expecting. I've wanted off the Entocort because I don't want to be on steroids anymore after my experience with prednisone. But I have to admit it's not doing anything bad (as far as I know) and remember that I'll never have the ideal situation where I'm not on any meds and perfectly healthy because.. I'm not.

It looks like Entocort is more often used for CD than UC so I'm wondering if anyone else is on this combination. Does this sound normal?

I've been reluctant to declare remission until I've gone long enough to know for sure, but I had a good (normal!) week last week for the first time in forever. Then I think I overdid the kidney beans on my salad Monday (fiber overload?) and I'm still waiting to see if that was just a one-day blip.

I don't know why the change in Apriso but I'm not going off of it, just tapering down to one pill a day. I assume that's a maintenance dose. At least it'll save me money, especially if they don't update my prescription so I'll get four months worth in one refill!

Too much fiber and beans in general could probably do that to you. And your doctor will probably till write your script for your higher amount of pills and if they don't ask them to so that they will last longer. My doctor does for me no problems.

@Captain Ca-Ca-I thought only my husband new the term "dutch oven" :P

Hi sherbear,

"@Captain Ca-Ca-I thought only my husband new the term 'dutch oven'. :P"

Ah, so your husband has been revenging himself on you for those long periods in which the bathroom fan was just not up to the job in your house, eh? Dutch-ovening is a nasty thing to do to someone, admittedly, but remember, people like us are uniquely prepared for this kind of abuse. We're inured to these vapours. God help him if you were to turn the tables on him in some concerted way.

notsosicklygirl,

One must wait for the victim to be sleeping. Only then can one gently position the covers over his/her head. All of this needs to be timed perfectly with the required natural event, of course. Then, any nightmare they may be experiencing in sleep will be child's play when compared to the reality they will face upon waking. Go ahead, do it. He deserves it.