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Ulcerative Colitis
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Posted 2/6/2012 1:25 AM (GMT 0)
Well, I don't know if I'm just catching a bug or if I'm starting to flare but... For the past week I've been nauseous and have had diarrhea with some cramping below my belly button. Tired all the time, back pain... but I figured it was just PMS... who knows, maybe that's part of it. But today, aside from the nausea, my intestines started to make that running water sound and was grumbling a bit and then I needed to go to the bathroom. It wasn't super urgent, but still urgent enough for me. All I ended up passing was some mucus tinged with blood. I haven't seen blood in... well, a very long time, and I have no idea why this is happening. Maybe it's my diet, maybe it's stress, I don't really know or care anymore. I feel like giving up sometimes. I hate this disease. All I want to do is cry.
Posted 2/6/2012 1:47 AM (GMT 0)
Aww I'm sorry your not feeling well. Do you have some enemas? If your not doing them I definetely would be and you could also up your Lialda to 4 a day. Thats what I take when flaring.
Posted 2/6/2012 1:48 AM (GMT 0)
WingZero,
Sweetie, it doesn't matter why its happening, but it is happening and you need to call your GI.

This is exactly what happened to me a while ago. That gurgling water sound just flips me out as i know its a sign of what's to come.
Just this week, my Dr. Intestine put me on some cortisone enemas. I'm having a BAAADDD year with my UC. And I'm telling you, no lie, in three days, with one enema at night, most of my gurgly, gassy, mucus-y/bloody bm's have gone byebye. I'm just having one, I tellya, ONE bm a day for the last 3 days!! I cannot believe it. I hope it lasts.....
I am only on Lialda and some probiotics and supplements.

So, I'm going to use these for about a week, check in with my GI, then move to Rowasa enemas.
I've heard a lot of folks on here talk about these, so I'm hopeful.

Go ahead and have a good cry cause it does suck. Then call your doctor and get some assistance. Hang in there.
Posted 2/6/2012 1:59 AM (GMT 0)
WingZero,

Sorry you feel so bad right now. Let it out and take a deep breath. Stressing about it will make it worse. The gurgling and sound of the internal pipes is always unnerving. Think about what you can do and not what is out of your control right now. Cup of herbal tea and a Rowasa enema might be the right way to end the evening and start fresh tomorrow. The longer you ignore the symptoms the deeper you can spiral down into a flare and the harder it will be to get back out.
Posted 2/6/2012 2:20 AM (GMT 0)
WingZero,

Sorry to hear you're not feeling well.

Could be an intestinal bug.

Do you remember eating anything that may have brought this on?

Regardless, like the others said, you need to get handle on this.

How about some rectal meds? And upping your probiotics?

Posted 2/6/2012 2:33 PM (GMT 0)
Thanks guys.

To answer your question, no I'm not on enemas and I cannot afford them right not as it is. I'm going to try increasing my Lialda to 4x/day and take it easy food-wise in hopes that it will just clear up. It's possible this was brought on/is an intestinal bug since everyone around here has caught some kind of puke/diarrhea flu, but it's difficult to tell and with the blood it's just freaking me out.

The only thing I can think of aside from a bug causing this is I ate 1 chicken tender and 2 chicken wings from a bar the other night. But the nausea has been going on well before that, so I don't really know. I did add goat yogurt to my diet around the time this all started so maybe that's causing problems? Die-off? Intolerance? I don't know anymore. God I'm so tired of having to think about these kinds of things.
Posted 2/6/2012 2:46 PM (GMT 0)
The diarrhea is of concern, the blood is even more so. My gastroenterologist's rule: One day with diarrhea, not to worry; two days with diarrhea, still not to worry; three days with diarrhea, call him. Call your doctor immediately!
Posted 2/6/2012 2:48 PM (GMT 0)
You're flaring...pretty straight forward.

q
Posted 2/6/2012 3:01 PM (GMT 0)
Could really do without your blunt remarks right now, Quincy.
Posted 2/6/2012 3:08 PM (GMT 0)
Wing i hope you dont give up. It seems remission can slip through our fingers so easily and road to remission takes forever.
However if you are beggining to feel unwell its still time to get it under control.

When im unwell I feel depressed too. Anyone would do!!
But small steps that makes you feel better can make a huge difference in your feelings. Cause when you feel better you are yourself back again.

I agree with captain to call your doctor. Try to not put too much stress on you. You can have a chat with your doctor and increases your meds. Trying to find the guilty one (stress, periods, diet) can drain you. Try to concentrate on getting better :P Good luck
Posted 2/6/2012 3:13 PM (GMT 0)
Ok, but at least I'm not the only one suggesting rectal meds this time.

q
Posted 2/6/2012 3:16 PM (GMT 0)
And where do you suggest I get the money to pay for them, Quincy? I've already stated that I cannot afford them. I don't know what you want me to do in that case. If you don't have any suggestions, then move along. I don't need your sarcasm and general negativity.
Posted 2/6/2012 3:40 PM (GMT 0)
Wing, I'm so sorrry that you feel down with all that crap. Yeah, it sucks. If you can, call your GI and ask him about your options, even taking into account your financial standing. Maybe he/she have some meds in the office and could give you some?
I had bad flare last April and I also thought it was a bug, as my son had baaaad D that time, and something was going around. So in the beginning I wasn't paying to much attention, but it had moved to another stage so fast that I ended on prednisone. Had my bowel tested, and after a while my GI told me that there were some bacteria that could speed up the flare itself. With this s**t you never know.

Take care, eat light and hope for better this time. Keeping my fingers crossed.
Posted 2/6/2012 4:31 PM (GMT 0)
Its so frustrating to me that people need a certain med and just can't afford to take it. Have you checked the resources at the top of the page to see if you can get on one of the programs?
Posted 2/6/2012 4:37 PM (GMT 0)
WingZero; I just had this a couple of weeks ago. I thought it was food poisioning, but coming back to work I understand everyone has had it. I got it on a Saturday two weeks ago, and had to fly to Philly (from Cali) with it. I still don't have an appetite and have nausea when I think about eating. The only good thing is that I've dropped some pounds! Hope you are feeling better soon, WingZero.

Posted 2/6/2012 7:23 PM (GMT 0)
Chin up. I soooo know the feeling - was there about a week or so ago, had a cry and felt sorry for myself for a good half day. Give yourself some time to work through the emotions - cry, write or yell it out if you need to. Then, wrap it up and figure out what you can do to help yourself to nip this in the bud. UC is crap.
Posted 2/6/2012 7:26 PM (GMT 0)
Sorry; I should have said that it might be the stomach virus and not just the UC. Whatever, it's miserable. Take care.

Posted 2/8/2012 3:11 AM (GMT 0)
WingZ:
Please call your doctor. Tell your GI/PCP you have no money but need some help here.
I'm hoping the increase in Lialda will help, but just in case, still call your MD.
I so wish we could have a stash somewhere of folks left over, but still usable medications, that we could all share.
I know I have many Hydrocortisone enemas in my closet right now and would love to share.
I live in the twin cities in Minnesota. Not that I am going to do it, just thinking and saying it would be so cool. Dont' wanna get in trouble here!!
I'm a nurse and we send "expired" medical stuff to Haiti, but we won't use it on our own people??? Insane.
I sure hope you feel better sweetie.
Keep us posted on what your doc. thinks.
Posted 2/8/2012 7:49 PM (GMT 0)
I have the rowasa enemas (I think that is the ones they prescribed) I would have to look... and never used a one... they are sitting collecting dust as we speak. Thankfully my insurance covered them at 100% and I didn't out of pocket anything for them, would have been a waste for me. It would be great if we could share for sure! I would think that if WingZ had a prescription for the exact same thing, then it wouldn't really matter where they got it from?
I wish you all the best! And if we can find a legal way and these are what you need, let me know... I would love to help ya out!
Posted 2/9/2012 12:43 AM (GMT 0)
Thanks everyone... Thankfully I've improved a lot within the last few days. Not perfect, but no more blood and mucus seems to be decreasing and stools forming up a bit. I've just been taking it very easy (sleeping a lot) in conjunction with eating lightly (but forcing myself to eat even if I'm not super hungry) and upping my dose to 4 Lialda a day.

I'm hoping with a little more time I'll be back on my feet again. I appreciate all your guys' support. :)
Posted 2/9/2012 2:00 AM (GMT 0)
Give these websites a try , perhaps on will help you.

http://www.patientassistance.com/B6687-rowasa.html

http://free-medicine-info.tripod.com/1518.html

https://www.panfoundation.org/index.php?option=com_content&view=article&id=57&Itemid=13

For me rectal meds will take control much quicker than oral . It does take some time but by sleeping and only worrying about things you can change does help. Take care of yourself.
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