LDN & 6mp bleeding

Forgive me if I repeat myself. I'm so overwhelmed, I have no idea what I've
already shared.

I have UC. Diagnosed 1999, lots of remission, allergic to all 5 ASAs, have had
lots of remission, only a few courses of Prednisone and mostly drug free for
years.

This flare that started mid July is just brutal. I cannot get the bleeding
under control. I started a course of Pred that lasted from Sept to Jan. I also
added hydrocortisone enemas. Weaned off oral Pred and was almost off enemas and
started bleeding again after not seeing blood for weeks.

GI wants me on 6mp. Currenly I have formed mostly formed stool 1 or 2x a day.
Blood and Mucous mixed in. However last night my bm had more blood in the
toilet and was broken up. This morning it was a little better. I told GI I got
LDN from another doctor and she said "no comment". She does not believe in it.
Anyway against her suggestions I have not made the leap to 6mp. I'm so afraid
of it and the warnings. I eat organic and do everything in a less toxic way, so
6mp is just downright scary. Remicaid too. My anxiety will shoot through the
roof being on that stuff. But I know I have to get this inflammation to stop
already. I don't want to end up with something worse from the ongoing
inflammation. What if I'm making a huge mistake. I'm so frustrated.

I spoke with Skip yeserday and he seemed encouraging that LDN would eventually
work. I've been on it since Jan 9. I do not see any difference in the bleeding
because of it. Should I still be hopeful that it will work eventually?

Can you take 6mp with LDN? Is it safe? Would the LDN be ineffective?

It really seems like my uc has changed and I will no longer attain remission
easily. Is that anyone else's experience. I used to be able to achieve
remission on my own and then I've done it with a short course of Prednisone and
tapered fine. Not this time...totally different. Bleeding came right back
after a long course and very slow taper.

I'm so afraid of 6mp I contemplate the surgery just to be done with this. I'm a
Mom to 2 young boys and my UC has tken over my life since July.

Any thoughts or advice would be great..thanks.

Eating SCD, slippery elm, Endefen, Ultra Flora, Vit D, Magnesium, vit C, dig enzymes, Oxygenics

Are you sure that you don't have a problem with hemorrhoids?

I ended up with the H problem after years of UC and I would lose a LOT of blood.
There were several months when I wasn't sure of the "source" of my bleeding.
After having the H's banded, no more blood, so I knew the UC inflammation was improving.
Just a thought..........

Does the GI prescribe LDN or is it more common to get it from another source. Why do GI's not try LDN more often?

insofla, how much do you get LDN for?

seasons21, i think 6mp might help you get into remission. you don't have to stay on it though. i have been on it since august but will be done in march.

InSoFla

I am on LDN. I have been taking the oral version since Jan 9. I've hear some people say it takes a long time to work and others like yourself saw immediate results.

I've been doing SCD since July but my integrative doc wants me on illegal supplements even though she supports the diet. I'm so confused!

I want to stick with the LDN for a month or so more before comminting to 6mp. I cannot tell you how I fear those kind of drugs. And anxiety is the last thing I need. However I am also afraid that I have not really been on meds for over 10 yrs. The good thing is that I've had minimal flares during that time but what if I'm putting myself at risk having low lying inflammation that didn't really produce symptoms. I feel like its pick your poisin and both sides have risk.

So I've been on LDN for about a month at 3 mg, would I see improvement by now? Or should I just hang tight? Is it gradual or sudden improvement?

Also I see in your dignature you drink protein shakes, what kind. I'd love to find one that meets all my diet requirements but I doubt there is one. Also can you take P. Seeds if you are bleeding?

Thanks again

seasons21,

Do you know which oral LDN - which filler is in yours?

The reason I ask is because I wasted 5 precious weeks on oral LDN (hypoallergenic formulation) and didn't see any results. That's when I realized I was probably having absorption issues and I switched to transdermal LDN.

 

InSoFla

I kind of knew about the transdermeal and considrered it. I just thought because my bleeding was so low in the colon and I wasn't having major D that I would be ok absorbing the oral version. It has the avacel filler. I just reordered it and it's coming on Monday. I know the transdermal is even more expensive. I guess I could try it after these run out but that could be a while. Hmm? Not sure what to think.

Christine 1946

Sorry to hear that. My GI is pusing them too and I just wonder if they will even work. I hate taking the risks they carry and then have them end up not even working. How do you feel about the surgery now? Do you feel like you have your life back or no? I contemplate it out of frustration. I also would love to eat like a normal person again.

seasons21,

Sorry - I just noticed I didn't answer your question about whey protein shakes.

Also I see in your dignature you drink protein shakes, what kind. I'd love to find one that meets all my diet requirements but I doubt there is one. Also can you take P. Seeds if you are bleeding?

What are your diet requirements?

I like to supplement with whey protein - IMO the brain needs to know it's body is  getting enough protein - and then if you can find one you like ( I love mine!), then it makes it really easy. I have my whey protein shakes 2 x per day - first one is early am, and then the second one is mid-morning.

Even though I am lactose intolerant (and probably casein intolerant too), I am able to digest these very well - Dr. Mercola's Pro-Optimal Whey Protein chocolate flavoured, and I  think it's because it already contains digestive enzymes in it. So I add to the whey protein: almond milk, maca powder, chia seeds, L-Glutamine 8 grams, D-Ribose 5 grams, liquid minerals and vitamins, and L-ArginineEthylEster.

You could give it a try and see if you tolerate it, no? The other thing I like about it which most whey protein doesn't have: hormone free, antibiotic free, and from grass-fed cows. But if not, you could try hemp or pea protein.

With regard to P.seeds - do you mean Psyllium seeds? Sorry, can't tell you about those.

I take chia seeds, and yes, I was using them even though I was bleeding.

Hope this helps.