HealingWell
Search Close Search
☰

After 5 years of ulcerative colitis suffering finally feel much better!

Support Forums
>
Ulcerative Colitis
✚ New Topic locked
1 2 3 4 56
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/23/2012 3:16 AM (GMT 0)
Somedude,
I do not know which clay you took, there are many kinds. I do not know why it did not work. I took another clay before these two (Terramin and Pascalite) and did not have the same result, even though I still had some improvement. If you are a skeptic, you can wait and see how other people, who have started on Terramin clay and there is one (bosniaboy) on Pascalite, doing. If there is an improvement in their health. Bosniaboy started a new thread, reporting how he is doing on the clay, VSL3 and some honey.
Like I said before, I can not guarantee everybody that they will feel much better on the 4th day, like I did. The only thing that I can say is that it works for me and it worked for a few other people.
It is up to you what to do with this information.
Get a pound of Terramin clay and try it. Who knows, it just might work for you too!
Posted 4/23/2012 3:24 AM (GMT 0)
@Somedude. I share your sentiment. "I have to find something". Good luck. I'm thru day 2 and I've noticed a slight improvement, nowhere near normal (Down to 6-8 from 10-12 bm a day), but better.
Posted 4/23/2012 2:34 PM (GMT 0)
Hi, I think it has helped a little, but not in the way I was hoping. I just went twice this morning at work and have been her just a hour. All blood some diarreah and painful because my rectum comes out from the pressure, in which its a force I can't hold back, my gut pushes on it own.

I think I will have to try my colozal with this and take it 2 hours apart. It's been 4 full days now. I do think it helps, like the way immodium helps. It kinds of soaks things up a bit. I will keep taking it every morning, because of the mineral benefits.

It weird how I will go poo and there will be no blood, lots of skinny stool then the next time I go it's painful blood, crazy UC!

I will keep posting as the weeks go by.

Posted 4/23/2012 3:51 PM (GMT 0)
Therearemiracles,
I am sorry you are not doing as well as you and I hoped for on day 4. Do you have any other health issues, besides the colitis? It could play a role too. You might need to take some meds for a while to help to calm down the inflammation, especially if you have had the flare up for a long time. Before colitis I was relatively a healthy person, minus some allergies.
Like I have said before, everybody is different and have a different medical history. I would not give up on the clay just after the 4 days and taking the clay only in the morning is not enough, but it is your decision.
Posted 4/23/2012 4:28 PM (GMT 0)
Hi lookforcure, I was taking the clay three times a day! Today is the first day I just took in the morning before I left for work. Yes I've had a flare for 7 years! I noticed starting this the past two days nausea, maybe I'm detoxing? I thought the detox would be the colon eliminating but maybe it will detox yeast too?

I'm back on colozal today, just took one pill and will work it up from there.

Yes I have some other issues,  low dhea, cortisol, iron and blood pressure :) I have lyme's too, but I'm waiting for my results to say if the lymes is gone or if its still active.

I think terramin clay is a excellent product! I like getting all my minerals. I know it's helping. Like today I had some stool with mucus attached to it, that tells me there parts of colon that is not effected by the uc.

I will stick with it that's for sure! Maybe the combo might be my ticket! We'll see.

The spinach/sunflower seeds probably worked because of the minerals in the two products, iron, magneisum. There might be something to UCers being deficient in minerals.

 

Posted 4/23/2012 4:56 PM (GMT 0)
Therearemireacles,
now I understand better what might be going on. I am not sure about the nausea, I have never had it after taking the clay. in fact if I had nausea, it was usually after eating some foods and after drinking the clay it would go away. about you might be detoxing? It is very possible. I want to share with you this, sorry for this detail. First 2-3 days some very dark and very stinky stuff was coming out of me. I do not know if it was bad bacteria mixed with candida/yeast and some undigested food, but it was very bad. So, your hunch about detox, I think, is right on the money! Maybe your body needs some more time. By the way, Terramin will help you with the iron deficiency. Also, if you do have Lyme's (caused by a bacteria in ticks?), clay should help to fight it. I will research this for you and let you know.
Please, do not give up! I am here for you.
Posted 4/23/2012 5:04 PM (GMT 0)
lookforcure, you are so sweet! Thanks, I do feel really much better on the inside not so inflammed just my rectum hurts from going and the pressure of going, but my gut doesn't hurt and I don't get gas with is nice!

 I think because my flare has been ....forever...I need a 5 asa. I look up colazal in the search engine, I was on it 6 years ago and wrote in on it. I've never stuck it out with a 5asa because in my head I want it to work like taking a tylenol or something like that. Pop it and then the pain goes away, that's not how it works for 5asa's. You have to get them in your system for a LONG TIME! Oldhat is wonderful on colazal knowledge. I will stick with it, but I'm starting out so slowly.

I don't think anyone can go wrong with this clay, it has so many pro's to it! I will stick with it. I didn't bring it to work today, so I'll have when I get home!

Thanks again!

Linda

Posted 4/23/2012 7:04 PM (GMT 0)
Therearemiracles,
I have done some reading, so here it is.
As for your inflammed rectum, I found in the Pascalite clay site this info.:
"Three individuals stated under oath that topical use of PASCALITE paste had re-moved all symptoms of hemorrhoids in 2 to 4 nightly applications. Many others have reported similar results in its use for piles, rectal fissures and related conditions."
So, what you can do is to put some Pascalite clay paste (a little water+clay) on a pantiliner or make a clay compress for that area and leave it overnight. It will help to relieve the pain and inflammation.
As for Lyme's disease, I have read that clay(Terramin and Pascalite) is used to treat the disease, but I could not find any details. What did find is that many people had a good result with using MMS for Lyme's. I, personally, do not know much about it, but you might want to look into it.
My best wishes to you!
Posted 4/23/2012 7:09 PM (GMT 0)
So just to keep the clay going today I had the pascalite in my car and took VERY SMALL amount of that this afternoon before lunch.  I will take the terramin when I get home and will try the paste also. Thanks for looking it up! Seriously you only read overwhelming great stuff about it! I sit and read most of the day at work!

Thanks!

 

Posted 4/30/2012 7:25 PM (GMT 0)
lookforcure i've only been using terramin clay so far. do you feel like pascalite is a better clay?
Posted 4/30/2012 7:27 PM (GMT 0)
I like the terramin better, I feel better with it. I put the pascilite in my bath today :)
Posted 4/30/2012 7:52 PM (GMT 0)
I was trying to reply and I do not know what happend to my reply.
Anyway, Therearemiracles, what I ment is that when I tried to order from Canada it did not work for me because the Canadian companies refused to send Mutaflor to the USA. I am glad you have found a company that is willing to do it. Mutaflor worked very well for me.
Ucslayer, give the Terramin clay a little more time, maybe 1-2 weeks and meanwhile request a sample from Pascalite. I do not know if they send it for free or $3 fee. I know they have the samples, just give them a call and talk to a nice lady there. I am sure she will send a little sample of the powder and 2 capsules (which you can just open and put the content in the water). Try the Pascalite sample when you are in pain, so you could compare how Pascalite works for you.
For me, personally, Pascalite relieves the pain and soothes better than Terramin, but everybody is different. Just try it and see. I have read that one clay works better for one person and another clay for another one. Both will work, just one might be more effective. I hope I explained well.
Now I take both clays. I take 2 glasses of Terramin and 1 glass of Pascalite or
2 glasses of Pascalite and 1 Terramin. Sometimes just one clay one day and another clay the 2d day. The more I take them the more I think the Pascalite for me works a little better. Terramin gives me more energy, though.
Posted 4/30/2012 8:09 PM (GMT 0)
lookforcure you are right you never know which one might be more effective. i ordered the 16oz bottle pascalite a few minutes ago. i spoke with the very nice lady who works there and she was very helpful. i'll get it in a few days and give it a try too. i'm getting such strange roller coaster like symptoms, for 3 or 4 days i'll get a tiny bit better and then i'll have 1 or 2 days where it gets a little worse. maybe the toxins are coming out a little bit a time?
Posted 4/30/2012 8:23 PM (GMT 0)
Ucslayer,
I am sorry you are struggling. It is very possible you are detoxing. Watch closely your diet, it might be some triggers there too.
When you get the Pascalite in a few days, try to stop Terramin and take only Pascalite for 1 week, start with 1/2 tsp in a glass of water/ 3 times per day, let it settle for 5 min and drink. After 2 days increase the dose to 1 tsp/ 3 times per day and see how you feel.
The 1/2 tsp dose should help to ease into it, because it is a stronger clay.
Posted 4/30/2012 8:37 PM (GMT 0)
what sort of diet were you on lookforcure when you were in a flare up? i've heard so many theories on what to do and what not do, it's very confusing.
Posted 4/30/2012 9:54 PM (GMT 0)
Ucslayer,
for me the best diet is basically low fat vegetarian, with maybe 2-3 soft boiled organic eggs per week as an exception. I did not eat meat or dairy at all and still do not it them. Fish used to cause more pain and would sit in my stomach like a rock, so I tried not eat fish either. My main foods were and still are:
1)different soups with rice/noodles, potatoes and different veggies(carrots, garlic, zucchinis, a little onion, peppers..)
2)potatoes (boiled, baked, mashed
3)rice (steamed or boiled) by itself or cooked with veggies like plov or vegetarian paella (go easy on tomatoes and spices)
4) pasta with veggies
5) a lot of stemmed veggies or steamed-fried with a little water and olive oil, covered
6) a lot of sugar free apple sauce
7) oatmeal cooked only with water with a little salt and honey or real maple syrup ( I need to confess I hate oatmeal, but my Gi system loves it)
I tried SCD and it did not work for me, I could not stop loosing weight on it and my blood presser was so low I could not stand on my feet. I needed my carbs. As soon as I start eating potatoes and rice... I felt so much better.
Now, since I feel better and not bleeding and have 2BM per day I can eat raw salad and raw tomatoes, drink a cup of tea without any problems, even though it is still a stimulant to me and can cause me to go, just without cramps or blood. I can eat some lake fish without problems and I also, can eat my homemade bread with yeast without paying for it dearly. But all of these foods I have just recently added. I do not recommend anybody to eat yeast bread or raw salad before they stop bleeding.
I hope it will help you too.
Posted 5/1/2012 1:51 PM (GMT 0)
I have to add being gluten free will help! If I have bread it doesn't kill me until the second morning!! Then I'm bleeding and back and forth it hurts so bad! Gluten free is for me! I can't even have oats! They tear up my gut! No pasta and no sugar but that one is hard to elimated completely!

I need to go to a resort somewhere where they cook my food for me and that's all I will eat to heal up. It's hard working and working out to being really stricked.

 

Posted 5/1/2012 3:18 PM (GMT 0)
Yes, if you are sensitive to gluten, just remove all the wheat products. For me, it was more yeast and sugar before I got into remission. Also, 5 years ago, when I just was diagnosed, I asked my doctor to test me for gluten sensitivity and I was negative, but every time I ate some bread, I felt sick. So, for me it was yeast and sugar.
Basicaly, everybody is different and yes, there are a lot of people who have gluten intolerance. Just adjust the diet to yourself. From all the gains, rice is the best one, there is a reason it is the most popular and most used grain in the world.
I highly recommend to read about the dietof Dr. John Mcdougall, Dr. Caldwell Esselstyn, Dr. Ornish, Dr. Neal Barnard. All of these people are highly respected medical doctors and all of them use and prescribe to their patients the same diet-fat free vegetarian diet. All of them wrote books that are available in many libraries. The vegetarian diet was used by them to cure, yes, I said cure people from many incurable diseases like heart disease, diabetes(II), IBS and IBD, high blood pressure, even cancer. Have you heard of Dr. Max Gerson and his Gerson therapy? He litarally pulled people out of the graves with stage IV cancer. He also healed people with many other "incurable" diseases, including colitis and Crohn's. There 3 documentaries about his therapy on Netflix and I believe, at least 1 is free online. They are: "Gerson Miracle", "The beautiful truth", "Dying to have known".
My diet is not perfect by any means and some eggs and fish are not vegetarian food at all, but I eat them only 1 time per week, not every day.
Following any strict diet is very hard, sometimes I wish I was on some island away from everything for 2-2 months, so it was not any temptations.
So, I do understand you, Terearemiracles.
Posted 5/2/2012 2:46 PM (GMT 0)
Therearemiracles,
have you received your Mutaflor?
Ucslayer,
I hope you fell better.
You are not in Canada, by any chance?
Posted 5/2/2012 4:13 PM (GMT 0)
Hi,
I have desided to put a link here for the article about MAP bacteria as a possible cause for Crohn's/colitis:
http://www.crohns.org/map_food/beef.htm
Posted 5/2/2012 5:29 PM (GMT 0)
Hey lookforcure, I'm in the US, but I'm trying to get some friends from Canada to bring me some so I can try Mutaflor.
Posted 5/2/2012 5:43 PM (GMT 0)
Hi Ucslayer,
I am glad that you have Canadian friends! Tell them to put Mutaflor in a cooler and put a few blue ice packs with it to keep the low temperature, when they will drive to bring it to you.
Another thing is as soon as they receive Mutaflor by mail or from a pharmacy they should put it in a refrigerator as soon as possible.
In my opinion, after taking multiple very expensive probiotics, Mutaflor is the best for UC.
Posted 5/2/2012 8:30 PM (GMT 0)
I'm ready to spend every last dime I have if it means better health. :) Yes they have instructed to put into a cooler with plenty of ice.
Posted 5/2/2012 9:16 PM (GMT 0)
Ucslayer,
I can understand how you feel. When FDA took Mutaflor off the market, I was just about hysterical and wanted to drive to Canada to get it. After I have been in hell and finally found something that worked so well, was safe (just a probiotic) and without any side effects and then it was taking away from me....You can understand how I felt.
Posted 5/2/2012 9:19 PM (GMT 0)
Yes I totally understand how you feel. Taking away something works for people who have suffered like we have is so frustrating. I'm so happy you found your health again. I hope I can join you soon. I've had enough of this. I want to get back to living my life, rather than living next to the bathroom night after night...
✚ New Topic locked
123456