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Ulcerative Colitis
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Posted 4/24/2012 5:37 PM (GMT 0)
I started with stomach pain about a week ago, then the blood, muscus and diarrhea came on full force.  Now I have clots and mucus and very little solids passing thru.  Dr just prescribed Lialda and cort enemas and Im hoping to get this under control - experience with the regiment anyone?  I also take a high quality probiotic, aloe vera capsules, 10,000 units vitamin D (another doc told me I was very low on Vit D) and fish oil - all 3X day except vit D. 
Posted 4/24/2012 5:42 PM (GMT 0)
Do you have a diagnosis? Did you have a colonoscopy? How many BMs a day are you having? Lialda and Cort enemas are a good place to start. Hope you feel better soon.
Posted 4/24/2012 5:45 PM (GMT 0)
Oh sorry...yes, Im new :( - I have ulcerative proctitis and diverticulosis....the diverticulosis is a non issue - I don't think its causing me any problems but the UP is eating my lunch! I have a colonoscopy every 2 years due to my history - last one was July of 2011 so Doc thinks I need not worry over this flare...but this is truly the worse flare I have had that I can remember. So far today - 8 trips to the bathroom and its only 12:45 PM ........
Posted 4/24/2012 5:48 PM (GMT 0)
GoodTxGirl,

Welcome to the forum.
Sorry you're feeling so lousy.
Did you have the mucuous and D before starting the pills?
Some can be intolerant of them and it can cause more D, more cramping - that's the reason I am asking.

There are other things you can do as well: diet modification, supplements.
Having gone through the hard way, I'll share what's helped me with you, perhaps it can help you as well.

I can tell you that I had to be my own advocate, because my Gastro told me diet has nothing to do with UC, except for spicy foods or alcohol. He loaded me up with different mesalamines (I turned out to be intolerant of them), prednisone, and then when nothing worked he gave me a choice of the biologics or surgery - neither of which I wanted. So I developed a program which helped me, which I would like to share with you in the hopes that it will help you too.
Posted 4/24/2012 5:48 PM (GMT 0)
I use Lialda and have had it do wonders for me but I use Rowasa enemas instead of the cort enemas. Cort enemas a good you just can't use them indefinetely like the Rowasa ones. Hope your meds help you quickly.
Posted 4/24/2012 5:56 PM (GMT 0)
InSoFla and Sherbear you guys are a wealth of wonderful information. InSoFla I am deficient in Vit D so I take 10,000 units per day....I also use a sublingual B12. I think the hardest part of this for me is that I work, and most times Im just so weak its hard to get through the day - much less think about and prepare my food - so I know Im not eating properly. I am about to get back into drinking Shakeology first thing in the morning - I have heard good things about it and when I did it before I was not having any issues. im pretty sure alcohol kicked this off (wine at a party) - Im going to try the L-Glutamine powder and cut out the dairy, wheat and gluten and see if that helps.
Posted 4/24/2012 6:12 PM (GMT 0)
GoodTxGirl,

It's great that you are already on the Vit. d3. I too am on the 100,000 IU every 10 days.
B12 sublingal is very good.

In addition to the L-Glutamine powder, I would recommend slippery elm powder as well.
IMO, going gluten, wheat and dairy free will also help your symptoms.

I was going to suggest a good protein shake - but I looked up Shakeology and it seems pretty good, I like its nutritional profile. Where do you get them? And how costly are they?
I make myself 2 protein shakes a day at minimum.

Let me know how else I can help you.
Posted 4/24/2012 6:17 PM (GMT 0)
The Shakeology is relatively new I think and you order it thru a disributor - if u email me I can give u my distributor info - I think its fairly expensive but if it buys me a decrease in symptoms Im ok with that :) thank you so much for your help, I will try these things and report back. My email address is [email protected] - Thanks again!
Posted 4/24/2012 6:18 PM (GMT 0)
hope you see relief soon !!!
Posted 4/25/2012 4:03 PM (GMT 0)
GoodTxGirl,

Sorry, it looks like Peter Waite decided to edit my posting and removed my listing of specific ways to help you. If you need the list, please feel free to contact me and I'll be glad to forward to you. My email address is: [email protected]


 

Posted 4/25/2012 5:15 PM (GMT 0)
Have you started the Lialda yet? Be careful with it. I had a very bad reaction to it- lots of urgency, BMs, blood, and thick hives and bloody scabs all over my body and face. I still have scars from it. I have found that mesalamines make everything worse for me, but I hope that's not the case for you.

What I can recommend is a pureed foods and liquid diet. Even bowel rest with all liquids would be helpful for a few days. I'd take a multivitamin to make sure you get enough nutrients, but maybe the Shakeology has all those? Not sure.

Do you work a physically demanding job or a job away from home? I can't work during flares (I'm not working now) so I'm so sorry you are going through this at work!  

Posted 4/25/2012 5:38 PM (GMT 0)
..and lots of water and apple pectin pills and VSL#3DS and less sugar less processed food more protein less carbs for a while and curcumin/turmeric and oily salmon for the full anti-inflammatory effect
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