HealingWell
Search Close Search
☰

about flares! newby

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 5/12/2012 11:40 AM (GMT 0)
good morning everyone..

ok, so heres a little background, symptoms started to appear after i had my babies, so almost 8 years and 5 years ago. i only had mucus, and it lasted a couple of weeks and then it went away...

so about a year and a half ago, the mucus started for no reason.. (ok probably a lot of stress) and there was mucus when i sneezed, ran, peeed., in jan 2012 i started bleeding, so thats when i decided to talk about this to my dr. i had a virtual colonoscopy done, and it said i had inflamatory colitis. by the time i had the regular one done, i was about to go check my self in the hospital, i was so low in energy, constantly to the bathroom, and the blood had been non stop for 4 months.  i was told it was UC.

ok,. i was given salofalk in pills, wich didnt do much, and then got changed to mezavant, that i take at night, and a rectal suspention.. that immediatly worked.. one night this week, i could not keep the suspention, and the next day, i had tummy aches, and felt like i got hit by a buss.

so my questions are..

how do you know your not in a flare anymore??

if your on medication, and eat something that you dont tolerate, will it make the flare last longer??

i know the answers are probably different for everyone, but any tips i will take :) have a great day

viviane

Post Edited (viviane) : 5/12/2012 5:50:43 AM (GMT-6)

Posted 5/12/2012 1:34 PM (GMT 0)
You aren't in a flare anymore when you stop bleeding and mucusing, don't have any pain or urgency, and you have less than 3 solid bowel movements each day. The goal is complete remission- you may be able to feel like you did pre-UC.

You will need to investigate which foods make you feel sick. A lot of people have trouble with dairy, raw fruits/veggies, and gluten. I've found that the only thing that bothers me is really greasy or really spicy food. Eating bad foods can aggravate your digestive tract and may prolong a flare. Some people are only bothered by their "trigger foods" when they are in a flare but others have had a flare start because they ate them.

Whenever your symptoms change or get worse, be sure to call your dr. They may be a sign of something serious or that your meds aren't working. The knowledge base in this forum is great but it is not a substitute for medical advice.
Posted 5/12/2012 6:21 PM (GMT 0)
I don't think that you could eat something one day that would make you flare the next day. I'm sure someone will disagree with me here, but the kind of inflammation we struggle with is a chronic condition, not an acute one.

How often are you using your rectal suspension (enema?)? Do you know what parts of your colon are inflamed? What dose of mezavent are you on? How are you feeling other than your bowel issues (energy, general wellness, appetite)?
Posted 5/12/2012 11:08 PM (GMT 0)
uh....bleeding isn't an only symptom of a flare, and one can flare and not have bleeding.

Hi, welcome to the forum viviane, I would say you're still flaring and should maintain the use of the enemas until you are totally back to normal.

One day of more extreme symptoms could be food related (something didn't agree) or you picked up a bug....but flaring at the same time.

Where exactly is your UC located...throughout or limited?
How are you doing today regarding symptoms?

q
Posted 5/12/2012 11:16 PM (GMT 0)
     Your symptoms sound exactly like the ones I suffered when I had UP.  Try a low residue diet along with your meds and stay away from red meat.  Good luck.  Fiber used to really do a number on me shocked .
Posted 5/13/2012 5:09 PM (GMT 0)
thanks for the responces !
for the mezavant, im on 4.8 gr (4 pills)
when i started the medication, salofalk in pills, it took about 2 weeks and it got rid of the pain, but not the mucus and the bleeding or the frequency..

then i got swiched to mezavant, and enemas,(wich i take every night, ) and the next morning, i had a normal day for the first time in almost 2 years !!!! it was amazing..
but this week i had a day with a bit of mucus (previous day i indulged in a salad with avocado and shrimps... so goood lol ) i had a feeling it would not pass well, but i really needed it ...
and this morning i had some blood. not a lot, but just to bring me back to reality..

my uc is in the distal left part of my colon to the rectum,
im trying to stay away from fruits, vegies and fiber.. but sometimes i just turn into a monster and eat... im on 2 shakes a day so it helped with the pain and its easyer to digest..
so right now, i have a little pain in the lower left side,. but its really nothing compared to 2 weeks ago.,
i feel good (cause i dont have to take a trip to the washroom every 3 minutes,) but if i do something in the morning, i have to nap in the afternoon, cause i fall asleep everywhere. which is really frustrating.. i have anemea, but the iron pills just make me so constipated !!
so its a day at a time, thanks for the advice.. i apreaciate it dearly :)
✚ New Topic ✚ Reply