Posted 5/15/2012 4:26 AM (GMT 0)
He said from my colonoscopy that I have inflammation in my large intestine and that I either have UC or CD, but he wanted to do more tests. I guess to determine which. I know that even if he says UC it could still end up being CD later. That's what happened to my nephew. He had lots of bloody stool and was even hospitalized for two weeks for bowel rest. After that episode they determined he had Crohn's. He's been on Remicade treatments every six months every since. Poor guy is only 11. I don't know how he does it. The Doc's had him on a special diet which my exSIL doesn't follow and my bro only has him every other weekend. It just stinks because she's a CNA so you'd think she'd no better...
Anyway, Right now I guess it's finding a diagnosis and then coming up with a treatment plan. The seven pics of my large intestines from the scope were horrible. Each pic had a different issue. In one there was black spots, in another there was like flourescent green mucous or pus or something, I'm not sure. Two of them had bumps all over like flash colored pimples. Every single picture had something wrong with it. Is that because they don't take pictures of the healthy sections, or is my whole freaking bowel like that? I wish I didn't have to wait a week before seeing him again. I mean the info they give you after the scope is pretty limited.
I guess it's just a waiting game. Funny the blood never really bothered me, or the consipation, or really the pain, but seeing those pictures really upset me. I'm glad that my upper GI is good, but now I'm worried that my lower gi is really bad. But if that was the case, I'm sure he'd have me on something stronger than asacol, right?
In the meantime, I just found a little ulcer on my tongue. Kind of like when you accidentally bite your cheek and there's that little pimple thing there. I have a really tiny one on my tongue and of course I'm freaking out that now my mouth is affected, when it's probably nothing more than I scratched it or something. idk.
I guess I just have tons of questions and worries and no answers. I've tried researchign UC but it all says the same thing. Every website makes it sound like it's just this minor upset stomach like disease. sigh. I guess I just have to wait till my appt before I find out more.